Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have All The Symptoms But Am Not Convinced

questiongirl

Recommended Posts

questiongirl Newbie
questiongirl
Posted

For months now I have noticed after eating almost anything (most my meals contain some sort of wheat) i had digestion discomfort, but I ignored that.

Then maybe about three months ago I started having blood appear in my stool, in the toilet's water, and on the toilet paper and having painful bowel movments. It was off and on, so i just sort of ignored it.

I also started getting rashes on my face and neck. My face cleared up after about three days but my neck still has noticable bumps after maybe a week.

Then yesterday, I only nibbled on three things. two pieces of toast, a green onion cake, some protein bar. Then, when trying to sleep I felt a lot of discomfort. I was passing a lot of gas and cramping up, there was also knotting sensations. I thought maybe I was just hungry (stupid lol i know) and I ate a bun. I still couldn't sleep, and usually to fix this i eat more. So i ate half of a baked potatoe with butter at 4 am.

I managed to sleep but woke up in agony.

This whole day i've suffered from cramps that come and go every ten minutes or so, and they are painful. I have also been farting and my usually thin stomach is really bloated. I think I had atleased 6 different bowel movments, all in which they were not normally colored or textured. They were more grey, dull browns, and near black.

Before I go to the doctor's I want to make sure I have this disease.

After my last bowel movment, I felt better. Then, I accidentally just ate a bunch of triscuits, thinking they were gluten free.

So i am expecting some pain. What sort of pain should I expect from eating maybe like 20 triscuits?

Also, the main reason I am not convinced I have this disease is because there have been times where i've ate alot of bread and didn't feel too bad. As I mentioned before, after eating anything, i usually feel really queasy. So i'm not sure if I have celiac, or maybe I just have some constipation. I am also quite young if that helps your opinion.

Thanks!! <3

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaupupup Contributor
mamaupupup
Posted

Hi there,

The best thing to do, in my opinion, is to print out the "Am I the One" pdf from the Celiac Disease Foundation website. Highlight the symptoms you have. Write up a page of notes detailing each symptom for you and make an appointment with your doctor. Have the doctor write up a celiac panel requisition for the lab and get your bloodwork done. That's the best start. Don't take yourself off gluten until you test or the results can be a false negative.

Hang in there!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Surely, you can't thik it's normal to have blood when you have a BM? :o

Get yourself to a Dr. ASAP!

Skylark Collaborator
Skylark
Posted

Before I go to the doctor's I want to make sure I have this disease.

You need medical attention and it's not up to you to make sure you have celiac. A black stool or a stool with dark coffee-ground looking stuff in it can be signs of internal bleeding and requires immediate medical attention. Bright red blood is less of an emergency but you still need to get to a doctor. It is not normal, even for celiac, to have blood in your stool.

It is not up to you to try to diagnose what's going on. You are not a doctor, It may be celiac, it may not. Keep eating gluten so celiac tests work properly, ask for a celiac panel, but let your doctor test for infections, parasites, and rule out other reasons for severe pain and bleeding.

Once everything is done you can try the gluten-free diet on your own to see if it's generally helpful.

Metoo Enthusiast
Metoo
Posted

You need medical attention and it's not up to you to make sure you have celiac. A black stool or a stool with dark coffee-ground looking stuff in it can be signs of internal bleeding and requires immediate medical attention. Bright red blood is less of an emergency but you still need to get to a doctor. It is not normal, even for celiac, to have blood in your stool.

It is not up to you to try to diagnose what's going on. You are not a doctor, It may be celiac, it may not. Keep eating gluten so celiac tests work properly, ask for a celiac panel, but let your doctor test for infections, parasites, and rule out other reasons for severe pain and bleeding.

Once everything is done you can try the gluten-free diet on your own to see if it's generally helpful.

Ditto the other posters....my mother in law sadly ignored her blood in stool for months and other GI distress symptoms by the time she went to the doctor it was too late (she had cancer).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note:...
    3. Scott Adams
      0

      Homemade Gluten-Free Egg Drop Soup

    4. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it. There are...
    5. lalan45
      - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,842
    • Most Online (within 30 mins)
      7,748
    aetherwax
    Newest Member
    aetherwax
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.