Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac In The Real World


Sarunski

Recommended Posts

Sarunski Newbie

Hey all,

I've been gluten-free since August and I am realizing just how sensitive I am. If it says same equipment or facility, there is a high chance I will be glutened. I recently started the final semester of college as a student teacher in a high school classroom. I've been glutened a few times throughout the semester, luckily a few of them have been on weekends so I could recover enough to go back to work. I only have so many days I can miss, but I can't help it if my source of food (the cafeteria) accidentally glutens me. I try to cook as much as I can on my own, but with financial restrictions like gas money and no source of income, it's extremely hard for me to afford it right now. I don't know what to do! How do most people deal with this if you are glutened and have to go to work. I have really bad symptoms like severe mood changes, the usual abdominal pains and problems to where I might as well not go anywhere. Any tips? What is it really like to live and be gluten free in the real world?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cujy Apprentice

Sarunski, I know what you mean about the expense...I can't afford the diet either as we are on one income, Im just buying some things here and there, and trying to stock up on some ingrediants so I can make my own stuff. I deffinately can't afford for my whole family to eat that stuff, and unfortunately because of the no preservatives, it goes bad much faster....I also have the same abdominal pains that you do, its doubled over almost a continous cramp. I am very new to the diet and finding it very hard re expense and knowledge.

I don't work, I have to stay home with my son who had a heart transplant and a stroke so I am busy and find cooking an absolute nightmare.

Having said that though, I made a HUGE pot of beef/veggie soup the other night and froze almost all of it. That way if I don't feel like cooking I can take a container out and stick it in the mic. Last night it was caramel apple pork chops with smashed potatoes and green beans almandine....extravagant for me, but really not a big deal....made enough that I have leftovers for tonight too. The potatoes are crazy easy to make and would make something good for you to take to work.

Just a thought, and like I said there are others on this board who are WAAAAAAAAY more knowledgeable then me, but know that you are not alone, in pain or frustration!

Take care!

Angela

birdie22 Enthusiast

You said you are student teaching and eating at the school cafeteria is that correct? Can you prepare your own lunch and bring it? I would think that is safest. Could you supplement some cafeteria food with your own or stick to things that come individually packaged like fruit (things with peels like banana, orange), single serve fruit or applesauce cups, cheese sticks (if you can do dairy), yogurt, nuts? My guess is the cafeteria food isn't all that tasty anyway.

aeraen Apprentice

Believe me, it gets better and easier once you've gotten used to it. There are pages and pages in these forums of inexpensive ways to make your own food. The only thing you can't replicate gluten free is convenience. It will take you time to make your own food, but it doesn't have to be spendy.

First of all, if it is affecting your job performance (I'm assuming that leaving a classroom to run to the restroom could do that), stop relying on the cafeteria for lunches. Heck, as a cost saving (as well as nutrition) measure, my son brought all of his lunches from home. He isn't celiac, but it saved us money rather than costing more.

Second, stop buying the packaged gluten-free foods. Instead, find your local Asian food store. There you will find a wealth of rice based ingredients, especially flour and noodles. I find my favorite rice based crackers there. A can of tuna, a little mayo and I have the ingredients for tuna salad on crackers. Nice lunch. Replace the tuna salad with chicken salad, egg salad, ham salad, thinly sliced beef roast, hummus... you get the idea. Even PB&J taste pretty good on rice crackers. If you don't have a Asian food store nearby, and can't find the crackers in the Asian aisle of your local food store, Blue Diamond makes some nice rice/almond crackers that can be found in the regular cracker section of most supermarkets.

In the end, what it comes down to is being creative and even a little adventurous. You can eat gluten-free on a shoestring budget.

Monklady123 Collaborator

It really is not more expensive to eat gluten free if you avoid the packaged convenience stuff, and cookies, etc. Bread will probably be more expensive but on the other hand I find I eat way less of it. So a loaf probably lasts just as long as a gluteny one did. I love Udi's with peanut butter for breakfast, but don't like it as sandwiches.

I bring my lunch every day instead of eating in the cafeteria. (I work in a hospital and the only thing I trust in that cafeteria is a hard-boiled egg!)

Some of the things I bring for lunch:

-- leftovers

-- hummos and carrots

-- yogurt

-- applesauce

-- salad

-- lunch meat

-- cheese

-- lettuce (to make lettuce wraps with my meat and cheese)

-- cheese stick

-- pudding

-- soup

-- fruit - fresh or canned, depending on the fruit and the season

-- frozen vegetables (I buy those Steamfresh bags, cook them at home in the morning in the microwave, then bring them to work)

-- rice (cook up a bunch at once then you have several days' worth)

-- hard boiled egg

-- chips and guacamole (I buy individual packs of guacamole since it goes brown as soon as you open it)

That's just off the top of my head. None of that is made specifically "gluten free", it just is naturally. When I cook dinner I often make extra to be used for lunches. Yesterday I took sausage, mashed potatoes, and corn.

eatmeat4good Enthusiast

I went Paleo to fix the problem.

I have saved a ton of money.

Meat, fruit, vegetables, nuts.

A1 and mayo and mustard.

No gluten free grain flours or products.

If we crave a sweet I make Nestle toll house recipe and sub Almond flour for the flour portion.

The more you eat mainly meat, the less you really have to buy all that other stuff.

My food budget is cut by 25% at least just by not buying any packaged foods or grain products at all.

I mean we Will buy gluten free bread, but it lasts just forever in the freezer. we eat like 2 slices a week each and there are 2 of us gluten free.

My first month gluten free I bought all that stuff, but soon realized there was very little nutrition in it.

Good fats, protein, fruit and veggie are great for your metabolism too.

Corn tortilla's with bakad chicken mayo and lettuce are great if you miss a sandwich. Not the same but just great for us.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748

    AnnaLousGFBakery
    Newest Member
    AnnaLousGFBakery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.