Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Diagnosis


Mateto

Recommended Posts

Mateto Enthusiast

So today I went to the doctor to get the results to my bloodwork.

She had the results, only she never had the results to the coeliac test -- which is the main reason I was tested of course.

Then she told me I was bulimic or anorexic, I had to be, because I look like it. It was no use trying to defend myself because she kept saying "umhumm", you know, that sceptical "yeah, whatever" kind. Now I have to get more bloodwork, and spend more time being SICK.

Also, my iron levels are HIGH! Too high infact. Is this common?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

How frustrating! Oh no, I didn't test you for celiac because I don't think you have celiac, I think you are just bulimic or anorexic. Now really, wouldn't you know if you were bulimic? She must obviously just think you are looking for attention. Well, you are, but of the informed kind!!

mamajchis Newbie

My primary care doc thinks I am a lazyhypochondraic just because he is inept at finding the cause for my very long list of syptoms which are sypmtoms of celiac. I finally did have the bloodwrok done but understand it can give a false reading. Mine came back negative. I went gluten free mon March 19 2012 and have noticed great improvemt in my body na dmostly my mind. The brain fog was so bad I couldn't think straight, couldn't carry on a conversation, loss of memory. Glute free and proud of it.

mamajchis Newbie

My iron levels, potassium levels, magnesium levels and B12 levels test consistently low. Potassium has been so low at times that it was close to a medical emergency which I could have died from. I take iron, potassium, magnesium and monthly B12 sgots along with a multivitamin and still blood work comes back with deficiencies. Hope my next bloodwork will be much improved.

  • 2 weeks later...
ncallier Newbie

My iron levels, potassium levels, magnesium levels and B12 levels test consistently low. Potassium has been so low at times that it was close to a medical emergency which I could have died from. I take iron, potassium, magnesium and monthly B12 sgots along with a multivitamin and still blood work comes back with deficiencies. Hope my next bloodwork will be much improved.

I hope your blood work is much improved on your next appointment! What just kills me is that even with a definitive celiac diagnosis by both blood work and endoscopy that my dr. didn't suggest any other tests or anything. He even diagnosed dermatitis herpetiformis but refused to prescribe Dapsone or give any other advice. He told me I could see a dermatologist or a dietician if I felt that I needed to??? I now plan to get an appt. with an internist (maybe??) for the vitamin / mineral tests.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,781
    • Most Online (within 30 mins)
      7,748

    BH1951
    Newest Member
    BH1951
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ok thank you.  Me either 
    • Colleen H
      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.