Not Just Wheat

[JoyfulGF]

I was talking to a friend today about my bloodwork from a celiac test being a false positive. She and her husband own an organic dairy farm. She's purchased some wheat berries from a trusted organic farmer and she then grounds her own flour to make bread. She suggested that in a year or so that I try the bread because the false positive may be the cause (even when I have the symptoms) because of everything else that is added in with the wheat flour in the product and the junk done to the wheat (like genetic altering)

Anyone think this could be a possibility? I'm not trying to condone anyone's diagnoses at all, it's a very real thing. I'm just trying to find a link between genetic food alterations and diseases like Celiac.

[Gemini]

I was talking to a friend today about my bloodwork from a celiac test being a false positive. She and her husband own an organic dairy farm. She's purchased some wheat berries from a trusted organic farmer and she then grounds her own flour to make bread. She suggested that in a year or so that I try the bread because the false positive may be the cause (even when I have the symptoms) because of everything else that is added in with the wheat flour in the product and the junk done to the wheat (like genetic altering)

Anyone think this could be a possibility? I'm not trying to condone anyone's diagnoses at all, it's a very real thing. I'm just trying to find a link between genetic food alterations and diseases like Celiac.

There are no false positives with Celiac testing.....only false negatives. If you tripped any of the tests in a Celiac panel, it means you have a problem with gluten on some level. It also does not matter what source the wheat comes from, wheat is wheat and will cause a reaction. It has nothing to do with genetically modified or added ingredients. Wheat berries or anything else containing wheat are not acceptable for a Celiac to consume.......sorry!

[JoyfulGF]

There are no false positives with Celiac testing.....only false negatives. If you tripped any of the tests in a Celiac panel, it means you have a problem with gluten on some level. It also does not matter what source the wheat comes from, wheat is wheat and will cause a reaction. It has nothing to do with genetically modified or added ingredients. Wheat berries or anything else containing wheat are not acceptable for a Celiac to consume.......sorry!

How come those who are lactose intolerant can consume raw organic milk from grass fed cows? Lactose is a protein and so is gluten. Just trying to understand

[pricklypear1971]

I was talking to a friend today about my bloodwork from a celiac test being a false positive. She and her husband own an organic dairy farm. She's purchased some wheat berries from a trusted organic farmer and she then grounds her own flour to make bread. She suggested that in a year or so that I try the bread because the false positive may be the cause (even when I have the symptoms) because of everything else that is added in with the wheat flour in the product and the junk done to the wheat (like genetic altering)

Anyone think this could be a possibility? I'm not trying to condone anyone's diagnoses at all, it's a very real thing. I'm just trying to find a link between genetic food alterations and diseases like Celiac.

There can be false positives on a blood test. Read here. Open Original Shared Link

Regarding the ability of a person with a gluten issue being able to eat any glutenous grain, even organic or heirloom, the answer is sadly "no".

Glutenous grains are glutenous grains. Period.

Humans have been altering their "natural" form since cultivation began. Unless you find a wheat grain in an iceberg I'm afraid you're out of luck finding an ancient grain in its original form, unaltered or modified by humans - and alas, that one will still be glutenous.

Once the autoimmune reaction has started it doesn't stop. Celiacs can heal, but you dont return to being able to eat glutenous grains. There are a few documented cases of Celiac remission but I'm afraid it's very, very rare.

[pricklypear1971]

How come those who are lactose intolerant can consume raw organic milk from grass fed cows? Lactose is a protein and so is gluten. Just trying to understand

Here is some information about lactose intolerance: Open Original Shared Link

Perhaps organic raw grass fed cows milk is lower in lactase?

[rosetapper23]

Lactose intolerance does not involve the same immune response as with celiac. With celiac, gluten causes the junctures between cells in the small intestine to remain open so that large molecules can pass through the intestinal wall, which causes an immune response. The two conditions are quite different.

[Skylark]

Modern wheat and GMOs may be causing more people to develop celiac, but once you have the autoimmunity all wheat is toxic to you.

Lactose is NOT protein. Lactose is a sugar and the way lactose intolerance works is completely different from celiac. Lactose intolerance is not an immune response at all. It is a result of undigested sugar either feeding bacteria or getting into the colon and causing trouble.

The reason raw milk is tolerable for some people with lactose intolerance is because it has a little bit of lactase in it that will break down the sugar. The lactase (which IS a protein) gets destroyed in the pasteurization. Unfortunately there is no property of high-quality organic wheat that would make the gluten protein safe for people with celiac. It still has gluten and your immune system will still recognize it and hit the "self-destruct" button.

[JoyfulGF]

Modern wheat and GMOs may be causing more people to develop celiac, but once you have the autoimmunity all wheat is toxic to you.

Lactose is NOT protein. Lactose is a sugar and the way lactose intolerance works is completely different from celiac. Lactose intolerance is not an immune response at all. It is a result of undigested sugar either feeding bacteria or getting into the colon and causing trouble.

The reason raw milk is tolerable for some people with lactose intolerance is because it has a little bit of lactase in it that will break down the sugar. The lactase (which IS a protein) gets destroyed in the pasteurization. Unfortunately there is no property of high-quality organic wheat that would make the gluten protein safe for people with celiac. It still has gluten and your immune system will still recognize it and hit the "self-destruct" button.

Oh ok, it's starting to make sense now. The fact that it's an auto-immune response as opposed to the undigested sugar makes a ton of sense!

Thank you Skylark for being patient with me and explaining everything!

[Skylark]

You're welcome. Glad I'm making sense.

[bartfull]

Skylark always has the best advice, explanations, and help.

Skylark, I think you should change your title to "Doctor of Glutenology". (But then again, most doctors are clueless compared to you.)

[Skylark]

Skylark always has the best advice, explanations, and help.

Skylark, I think you should change your title to "Doctor of Glutenology". (But then again, most doctors are clueless compared to you.)

I'm not a doctor; I'm a scientist. I have to admit scientists tend to look down on doctors slightly because they didn't have to slog through a dissertation.

[JoyfulGF]

Dr. Awesome called me tonight. He definitely thinks that I shouldn't go back to eating gluten, unless I absolutely want to (and I don't)

Anyway, he also said basically what you said Skylark about the lactose intolerance and Celiac, two different things.

Skylark, here's your stamp of approval for glutenologist!

[Skylark]

Aww, thanks. Glad we had you good and ready to talk to him and get the most out of the conversation.

[JoyfulGF]

Aww, thanks. Glad we had you good and ready to talk to him and get the most out of the conversation.

Thank you for giving me the wealth of information!

We talked for 20 minutes on the phone and he called at 7:15 this evening. I wish everyone could have him as a doctor.

He did say that there are false positives for every test, that's just the way things are.