Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering What The Results Will Be


noenergy

Recommended Posts

noenergy Newbie

Here is my story, trying to figure out if this sounds familiar to anyone. I went to the doc several months ago for a general sick feeling. I had fatigue, insomnia, stomach pain, RLS, diarrhea, tingling in my hands and feet and my heart palpitations were worse. They ran some blood work and it came back that I had low calcium in the blood...so they ran more blood work and found that I have very low magnesium. My doc was thrilled because apparently low magnesium causes all the symptoms I had been having, put me on supplements. We did some eliminations to figure out why I wasn't absorbing magnesium and decided it was because I had been taking prilosec for 2 years. Apparently PPI's can cause low magnesium in some people. My doctor had me quit taking prilosec, had me continue with the supplements and decided to send me to gastronoligist to figure out how bad my acid reflux is and how to control it with something other than a PPI. So I met with my new gastro doc this week and he wants to do EGD and take a biopsy of my small intestine to check for celiac. Does this sound familiar to anyone? Do these symptoms sound like celiac? I am feeling better with the tingling but I am still having the stomach pain and tenderness and diarrhea, also still not sleeping well. During the last two months I have broken my foot walking down stairs and gone to the dentist and found out I had 14 cavities (had only been a year since I had gone)!! I feel like I am falling apart but just have never in a million years thought I could have celiac. Thoughts??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Welcome to the board. IMHO it sounds like you are in the right place. Don't go gluten free until you are done with celiac related testing. Once celiac testing is done then go strictly gluten free for at least a couple months no matter what the results. I bet your feeling a lot better after a bit gluten free but it can be up and down for a bit at first.

Bubba's Mom Enthusiast

Your symptoms sure do fit. I hope you get the answers you need to get on the path to wellness.

noenergy Newbie

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

ravenwoodglass Mentor

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

It's possible the surgery triggered it. It is also possible that you were celiac before the gallbladder came out and it contributed to your gallbladder issues.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      6

      Am I nuts?

    2. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    3. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,837
    • Most Online (within 30 mins)
      7,748

    Chat
    Newest Member
    Chat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.