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Wondering What The Results Will Be

noenergy

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noenergy Newbie
noenergy
Posted

Here is my story, trying to figure out if this sounds familiar to anyone. I went to the doc several months ago for a general sick feeling. I had fatigue, insomnia, stomach pain, RLS, diarrhea, tingling in my hands and feet and my heart palpitations were worse. They ran some blood work and it came back that I had low calcium in the blood...so they ran more blood work and found that I have very low magnesium. My doc was thrilled because apparently low magnesium causes all the symptoms I had been having, put me on supplements. We did some eliminations to figure out why I wasn't absorbing magnesium and decided it was because I had been taking prilosec for 2 years. Apparently PPI's can cause low magnesium in some people. My doctor had me quit taking prilosec, had me continue with the supplements and decided to send me to gastronoligist to figure out how bad my acid reflux is and how to control it with something other than a PPI. So I met with my new gastro doc this week and he wants to do EGD and take a biopsy of my small intestine to check for celiac. Does this sound familiar to anyone? Do these symptoms sound like celiac? I am feeling better with the tingling but I am still having the stomach pain and tenderness and diarrhea, also still not sleeping well. During the last two months I have broken my foot walking down stairs and gone to the dentist and found out I had 14 cavities (had only been a year since I had gone)!! I feel like I am falling apart but just have never in a million years thought I could have celiac. Thoughts??

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ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. IMHO it sounds like you are in the right place. Don't go gluten free until you are done with celiac related testing. Once celiac testing is done then go strictly gluten free for at least a couple months no matter what the results. I bet your feeling a lot better after a bit gluten free but it can be up and down for a bit at first.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Your symptoms sure do fit. I hope you get the answers you need to get on the path to wellness.

noenergy Newbie
noenergy
Posted
  • Author

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much for your replies. I feel like I am learning so much from this site. Leaving a gluten free life seems so overwhelming to me, where do you start? I read somewhere that celiac can be triggered for some, I had my gallbladder out a little over a year ago and it seems my symptoms have gotten way worse since then. Do you think it's possible that could have triggered it?

It's possible the surgery triggered it. It is also possible that you were celiac before the gallbladder came out and it contributed to your gallbladder issues.

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  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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