Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Hunger....

Rachel--24

Recommended Posts

Rachel--24 Collaborator
Rachel--24
Posted

Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Danijela Contributor
Danijela
Posted

I have enperiences the same thing. It usually happens to me right after I eat or after a period of fasting. I get this oerwhelming feeling that I need to eat right NOW!!! I get shaky and my mind gets kind of foggy. It makes sence to me that thats from malabsorbtion. A person feels hungry when they have burned off the calories or energy from their last meal. If your body is not absorbing nutrients properly that could be the reason.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks Danijela,

I just answered your topic question with pretty much the same response. He-He

Too bad we couldn't just condense the 2 topics since they are almost identical. :P

BTW....Welcome to the board! :D

jknnej Collaborator
jknnej
Posted

I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

Wandering Hermit Contributor
Wandering Hermit
Posted

gluten-free since April and I feel the same way pretty much every day. Does not always coincide with a feeling of hunger, though.

I just keep hoping that someday this gluten-free diet is going to pay off and I will start feeling like a normal person again with no fatigue, dizziness, and bizzare stools. At least the d has stopped.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I had this for the first two or three months after going gluten-free. It went away, though. I've been gluten-free for 9 months now and I no longer have this problem.

It was not a fun problem-I'm glad it's gone. How long have you been gluten-free?

<{POST_SNAPBACK}>

I was probably 95% gluten-free since April but only got dxd a couple weeks ago. I've swtiched all my products to gluten-free now but I've had a couple slip-ups already cuz of contamination. I'm wondering if maybe my body is starting to heal and the hunger attacks mean it wants more food/nutrients since its trying to heal? Just a guess..

Guest Viola
Guest Viola
Posted

I think part of it is physiological. Before we were diagnosed we thought about food only when it was meal time, or time to cook. Now that we have been diagnosed we spend all our time and effort thinking of food in one way or another. Checking ingredients, calling companies, worrying about going out, thinking about what we can take out etc. In other words most of our lives is all of a sudden tied up with food. It's only natural that our stomach follows our brain waves sometimes. :lol:

I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge. :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
  • Author
  I find if I am out doing something I don't have to eat at all ... as soon as I come in, or sit at the computer it keeps saying feed me, feed me, I know there's ice cream in the fridge.  :rolleyes:

<{POST_SNAPBACK}>

LOL...I think I'm actually the opposite in that I think about food alot LESS since getting dxd. I thought I'd had candida so I was constantly worried about "feeding" the candida or getting sick...paranoid everyday...but I never had these hunger attacks...I was eating way less also. Now I know all my food is gluten-free and I know the candida is not going to "get" me so I just stick to stuff I know is safe and I'm not too worried about food anymore. But my body is REALLY hungry.

mandigirl1 Enthusiast
mandigirl1
Posted

HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!! I may be able to help!!

:):):):):):):)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
HI!!!!

I have the same symptoms that you described. Ive had celiac disease for 6 yrs. Usually I get extreme hunger after having an attack from gluten. Its a killer BM, then I feel sooooo hungry, I eat everything in site (gluten-free of course).

To feel full, I think you need to eat more protein with carbs like potato or rice. I went to a top, high priced Manhattan nutritionist, and thats what he told me. Also told me to stay away from sugar (Avoid it like the plague, he used to say). Finally, take your vitamins. I never enjoyed better health in my life until I followed a strict regime of vitamins. I felt like I had the energy of a 10 yr old (Im 32).

BTW, what is "candida"??? Never heard of it before.

Good luck, and if you have questions, ask!!!  I may be able to help!!

:)  :)  :)  :)  :)  :)  :)

<{POST_SNAPBACK}>

After I get glutened I'm NOT hungry at all for a few days. The attacks come about a week later when I start to feel a little better and my appetite is good. All of a sudden I'm starving and even though I've eaten I'll get a hunger attack. Come to think of it its usually after I've eaten something high in sugar. :blink: Why would that be? As soon as I eat something it goes away.

Candida is a yeast overgrowth in the intestines. Its a very controversial condition to say the least.

Oh yeah...what vitamins do you take? I'm not taking any right now cuz I wasnt sure if mine were making me feel worse. I'll try them one more time but if anything bad happens I'm done with them. They are a liquid gluten-free multivitamin.

mandigirl1 Enthusiast
mandigirl1
Posted

I get my vitamins from Freeda Vitamins in NYC. You can look them up online to order or request a catalog. I think every single vitamin they make is gluten-free.....so you should be safe. I take the Multi Vitamin, calcium, b6/12/, folic acid, and a few others. Ive never gotten sick from them.

Sugar makes you hungry. Once Ive had sugar, Im on a sugar "high" and eat and eat and eat. Its best to avoid sugar, if you can.

Just curious, if you dont mind, is candida a female condition????

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Just curious, if you dont mind, is candida a female condition????

<{POST_SNAPBACK}>

Thanks for the info. on the vitamins. :)

Nope....Candida can affect anyone male or female. We all have candida in our guts...its a bacteria. We also have "good bacteria" as well. If there is an upset in the balance between good/bad bacteria (numerous things can cause this) the candida will grow and can sometimes cause problems. The *extent* of damage it can cause is what is debateable and controversial.

Carriefaith Enthusiast
Carriefaith
Posted
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days.
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something. It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.
thomas3000 Rookie
thomas3000
Posted

Candida is caused by chronic infection or overuse of antibiotics.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I also feel like that sometimes, it's really annoying and I don't know for sure what causes it. For me, it happened really bad after I started the gluten-free diet and now it happens about a week or so after I've been glutened. I get so hungrey that I feel like I am going to faint if I don't eat something.  It may be that food isn't absorbing proporly (due to gluten) and the body reacts by telling itself that it needs more food. But that is just a guess.

<{POST_SNAPBACK}>

Yup Carrie...that is *exactly* whats happening to me. Its about 1 week after getting glutened. When it happens I feel a little faint and shaky. Once when it happened I was luckily near a Whole Foods so I stopped and got some Envirokidz bars and some blueberries. I worry what will happen if I'm somewhere where there is no gluten-free food I can eat. Will I pass out? :blink: Maybe I should just carry around snack bars in case. :)

tarnalberry Community Regular
tarnalberry
Posted
Lately I've been experiencing something new. All of a sudden I'll feel REALLY hungry...I get a little lightheaded and kinda shaky. I'll feel like I need food badly...RIGHT NOW. I could've just eaten 1/2 hour earlier but you'd think I hadn't eaten in days. I'm eating alot more now than I was before my dx when I was just eating meat, veggies and fish (candida diet). I had this feeling a few times before I went on the candida diet..back when I was still eating gluten...but it went away until now. What could be causing it? I still have malabsorption...my stools are abnormally huge.

<{POST_SNAPBACK}>

That sounds like a fairly standard hypoglycemic response. Have you been tested for that? (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

jknnej Collaborator
jknnej
Posted

When I had this problem someone on this board told me that without gluten there is a massive change in stomach volume contents. Plus, our bodies go through gluten withdrawl.

Give it some time; what helped me out was eating every hour or so, just something small. Even today I eat very little at each meal so I can eat many times a day. It really does help.

It will go away and get better!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
That sounds like a fairly standard hypoglycemic response.  Have you been tested for that?  (And I'm sorry if I already asked you this one... I feel like I might have, but I just can't remember.)

<{POST_SNAPBACK}>

Nope...you never asked me. I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year! I'll be leaving my HMO soon so I'm requesting all my records. I'll be able to see all that was done....I'll ask my doc as well.

tarnalberry Community Regular
tarnalberry
Posted
I'm sure I've been tested since in the beginning they ran a million tests. I know I got tested for diabetes 4 times in the first year!

<{POST_SNAPBACK}>

Meh... tests aren't that great. And I don't think the standard diabetes tests cover testing for hypoglycemia very well (but I could well be wrong about that). My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay". The only way to know for sure is to try the treatment (a more balanced meal (at every meal) and significantly less in the way of refined, high-glycemic load carbs). I'm sure, however, there are other things that could be going on as well.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
  My tests all come out fine too, but my doctor noted that a lot of people she sees (particularly women) find that they are just more sensitive to the effects than what the lab tests say is "okay" and "not okay".

<{POST_SNAPBACK}>

I know this to be true with thyroid testing so I'm sure the same things goes for most tests. I think since it's only happening after a glutening it may just be something my body's going through as it tries to recover. If it continues to happen in the absence of gluten I may have to ask you for some meal advice. ;)

aikiducky Apprentice
aikiducky
Posted

This happens to me, too, and also about a week after being glutened. I try to always take some nuts and raisins or a banana with me, especially when I'm recovering from a glutening. And eat some protein at every meal. Gluten is a protein after all, if you leave it out, I figure something has to come in it's place.

Pauliina

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Thanks,

Well noones said I could pass out from one of these episodes so thats a relief. :D

I'll just keep munchies with me if I leave the house.

mandigirl1 Enthusiast
mandigirl1
Posted

Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

I also feel faint and dizzy and very hungry. I had that yesterday, during the day, and immediately devoured the closest thing to me, which happened to have been a bag of baked lays doritos !!!! Then a baskin robbins pistachio/mint choc. chip ice cream (and I never eat this way because I like to stay thin)

The idea that maybe youve been glutened and arent absorbing nutrients properly makes sense.

Best Advice: Just 'hang in there' like the rest of us Celiacs do!!!!!! ;)

mandigirl1 Enthusiast
mandigirl1
Posted

Oh yeah, I just remembered, it always helps to keep a stash of gluten-free food, with you if you go out. I find that when I dont bring a snack I get ravenous, faint and very irritable!!!!

My boyfriend always makes sure wherever we go that I have my chocolate rice cakes on hand. This does help. He knows if I dont have something quick I get crazy.......as a matter of fact he calls it "crazy food". So if we go on a vacation, he'll ask, Hon, did u pack your crazy food?????? :lol:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Where is the chronic infection in the body? Like having a whole body like flu or in a specific area???????

<{POST_SNAPBACK}>

Mandigirl,

He's talking about chronic conditions which may leave the immune system weakened and vulnerable to bacteria overgrowth. Any undiagnosed condition I suppose could lead to this. It would be most dangerous to a person with a very compromised immune system though...such as an AIDS patient.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.