Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Moronic Insurance


Adalaide

Recommended Posts

Adalaide Mentor

After three months gluten free. I'm still having some pretty serious neurological problems. My biggest complain is severe migrating pain. My doctor wants me to see a neurologist, makes sense to me. We just want to rule out MS before we send me off to the rheumatologist to diagnose or rule out lupus. (oh joy) I have no doubt it'll come to a diagnosis given my come and go butterfly rash. It was the first suspect when my symptoms became troublesome four years ago.

Anway... so I finally get a call back from my (crap) insurance today about the referral. She's like "what's the diagnosis?" So I told her what the doctor told me, the point of the visit is for undiagnosed symptoms. "Yeah, but what's the diagnosis?" <_< So I explained that the point of the visit is to obtain a diagnosis. (duh!) "Great, so have the doctor fax over the referral and clinical notes so we can decide what testing you need done before you see the specialist." Wait... so now medical insurance companies with pencil pushing pinheads whose entire medical background is coding and screwing over patients are making decisions about what type of medical care and tests I need? Is it just me or is this highly abnormal? I mean, I'm going go do whatever but shouldn't a doctor be ordering these tests? Especially since if we're talking MRI he needs to specify what we're looking for and if we're talking LP the odds of getting me to let someone stick a needle the size of Texas in my spine are pretty close to zero unless an actual medical doctor tells me it's necessary.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

After three months gluten free. I'm still having some pretty serious neurological problems. My biggest complain is severe migrating pain. My doctor wants me to see a neurologist, makes sense to me. We just want to rule out MS before we send me off to the rheumatologist to diagnose or rule out lupus. (oh joy) I have no doubt it'll come to a diagnosis given my come and go butterfly rash. It was the first suspect when my symptoms became troublesome four years ago.

Anway... so I finally get a call back from my (crap) insurance today about the referral. She's like "what's the diagnosis?" So I told her what the doctor told me, the point of the visit is for undiagnosed symptoms. "Yeah, but what's the diagnosis?" <_< So I explained that the point of the visit is to obtain a diagnosis. (duh!) "Great, so have the doctor fax over the referral and clinical notes so we can decide what testing you need done before you see the specialist." Wait... so now medical insurance companies with pencil pushing pinheads whose entire medical background is coding and screwing over patients are making decisions about what type of medical care and tests I need? Is it just me or is this highly abnormal? I mean, I'm going go do whatever but shouldn't a doctor be ordering these tests? Especially since if we're talking MRI he needs to specify what we're looking for and if we're talking LP the odds of getting me to let someone stick a needle the size of Texas in my spine are pretty close to zero unless an actual medical doctor tells me it's necessary.

It's my understanding that Dr.s are supposed to give a reason for asking for a particular test? It helps eliminate the over prescribing of some tests. Usually, the Dr.s office handles that and we aren't aware it's even going on. I'm surprised the insurance contacted you instead of his office.

kareng Grand Master

Usually, a nurse reviews this stuff & sometimes its referred to a doctor at the insurance company. Let them deal with your doctor's office. They can give them a list of symptoms and a "rule out MS" type diagnosis and ask for an approval of an MRI or whatever else they think you need. Doctor's offices do this all the time so they should be able to handle it.

Usually it is the patients responsibility to make sure the "approval" is in place before doing an elective procedure like a scheduled MRI. This means you have something from the insurance company saying you are approved or you call the facility doing the test and make sure they have an official approval from your insurance before the procedure. Hospitals want that approval because they know that getting you to pay $2500 isn't likely to happen. It is not your responsibility to explain your specific medical needs to the insurance company.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,158
    • Most Online (within 30 mins)
      7,748

    MollyK
    Newest Member
    MollyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.