Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help.

TomC

Recommended Posts

squirmingitch Veteran
squirmingitch
Posted

Ice pack on your forehead Tom. Sorry you're having the headaches.sad.gif Yes, people report headaches while going through withdrawal. and for what it's worth I had a lot of that shaky feeling a lot of the time. And being able to hear your heart beat --- very annoying.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I agree with the icepacks. Try to stick it out. Normally it (the heavy withdrawal) does not last too long (although every day can seem too long :rolleyes: )

TomC Rookie
TomC
Posted
  • Author

Thanks everyone! You're helping me stay calm!

  • 2 weeks later...
TomC Rookie
TomC
Posted
  • Author

Hey guys, I need some advice again.

I went gluten/dairy free about three weeks ago.

Before going gluten free I suffered with digestion problems, hand and joint pain.

After going gluten free, as I wrote in earlier posts, I had weird withdrawal symptoms. Headaches, muscle twitching and shaking at night. All of those symptoms have gone away now on week three. No more headaches, no more shoulder and hand pain.

But now my back is in terrible discomfort. Last week I did a light work out and the next day it seemed to have messed with a nerve on my back. It wasn't so bad but each day of going to work made it worse, until yesterday I couldn't take it no more. Now I can barely do anything.

Does this sound like a withdrawal symptom or more like nerve damage? I'm thinking the gluten attacked my nerves and they are/were super sensitive.

pricklypear1971 Community Regular
pricklypear1971
Posted

All is fair in love, war and gluten.

All I can tell you is that for the first 6 months weird crap is going to happen. I thought I'd wake up one morning with wings sprouting out of my back.

Your body is "rebooting". It will make a few bad starts if you know what I mean??

Start tracking your food - that will help you pinpoint an additional food issue if you have one. And drink water. Lots of it.

You may notice weird stuff, just try to breathe deep and realize most of it will pass.

I don't remember if you had your vitamin levels checked or not, but if you didn't you should- and you may need some supplaments: iron, b's, d, cal/mag, k.

TomC Rookie
TomC
Posted
  • Author

Thanks. Six months is a long time. I have a job and only so much sick time left ! But I guess I have no choice but to deal with it.

I have an appointment next week with the doctor. Right now I am supplementing with multivitamins and other supplements. I pretty much eat as healthy as I possibly can...Organic foods, totally gluten free.

pricklypear1971 Community Regular
pricklypear1971
Posted

Everyone makes their way through this. Have you read the fitness board here? there may be some hints in there.

Personally, I notice gluten makes a big difference in stamina and cramps. It's where I feel it first. Perhaps you're just going to have to take it easy for a while.

And alternate hot and cold on the painful area. Mostly cold. What about a good masseuse?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


TomC Rookie
TomC
Posted
  • Author

Alright thank you for the all the responses.

I been staying out of the fitness section because it depresses me to read about fitness and nutrition when I feel like I can't even move very well. haha.

A masseuse would be nice right about now.

squirmingitch Veteran
squirmingitch
Posted

Tom, FWIW, I (hope) have just finished (fingers & toes crossed) going through weird stuff like body parts that out of nowhere swell up, get red, won't move, or you scream when you try to move them. It might last a couple hours or 3 or 4 days. You never know. One day I would drag a leg around then be fine for a week then BOOM! the back of my hand would swell & be as painful as all get out. Weird stuff.

When it happens just go with the flow & try not to panic. Lay down, use a heating pad or an ice pack or a shot or two or three laugh.gif or whatever makes you feel better if anything. Breathe. And keep breathing.

frieze Community Regular
frieze
Posted

Thanks. Six months is a long time. I have a job and only so much sick time left ! But I guess I have no choice but to deal with it.

I have an appointment next week with the doctor. Right now I am supplementing with multivitamins and other supplements. I pretty much eat as healthy as I possibly can...Organic foods, totally gluten free.

Are your supplements gluten free? and egg free?

TomC Rookie
TomC
Posted
  • Author

Are your supplements gluten free? and egg free?

Yes, all of my supplements are gluten free. I barely cut eggs from my diet about a week into being gluten free after noticing I'd have lower back pain the next morning every time I ate some eggs.

MitziG Enthusiast
MitziG
Posted

Ditto the above. When you go off gluten, it is like your body systems kind of go into shock. They don't know how to function properly. It takes time. Just relax, tell yourself weird stuff is gonna happen for a few months.

It is unlikely you have any permanent nerve damage. Get your vit levels checked, rest, relax and ride it out. It gets better. I promise.

TomC Rookie
TomC
Posted
  • Author

Hey thanks everyone for the responses. It really helped in keeping me calm in one of the worst times of my life. I struggled for months not knowing what was wrong with me.

Because of the kind of work I do, I am trying to see a chiropractor just to make sure things are in order. I never thought gluten would cause such a wide range of symptoms, from my stomach, hands, shoulders and now my back!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,796
    • Most Online (within 30 mins)
      7,748
    Raybo
    Newest Member
    Raybo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      The previous post did not come through right. I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hello  I was glutened by a person that knew it.  I'm having 
    • wellthatsfun
      still struggling with cravings

      By wellthatsfun · Posted

      as my last post stated, i was diagnosed via endoscopy on the 14th of june. i have been eating amazing home cooked meals, luckily, mainly cooked by my boyfriend who is extremely careful about contamination (and is an incredible cook at that). however, i find myself in a mental rut still. being 18, this is the time in my life where i should be exploring things, going out, having fun. yet every corner i turn i'm tortured by the amazing smell of something i can't have anymore. the wonderful sight of such yummy foods. it's near torture. if my boyfriend and his friend who lives with us buy something i can't have, they'll usually eat it outside of the house or the car or wherever we are - which is greatly appreciated - but even seeing a burger or chips or a sausage roll in their hands guts me almost beyond repair. i just wanna have it again too. i miss it. i feel left out and it makes me very sad all the time. it's not their fault. they are allowed to eat whatever they want to, whatever their intestines will allow. it just stings, bad. and i feel so ungrateful given i basically have a private chef who is doubly the love of my life. but it's just so hard. i know i'll adapt. i haven't given up hope.i just wanted to vent. thank you for reading
    • RDLiberty
      Toothpaste question.

      By RDLiberty · Posted

      Thank you. I must have misinterpreted a study or something. Thank you for the clarification. Much appreciated. Almost three years into my celiac diagnosis and I'm still learning new things. 
    • RMJ
      Manitol and mri

      By RMJ · Posted

      I wasn’t clear, glucagon and gadolinium were intravenous. I drank about 5 cups of the prep during 45 minutes. I feel very tired now, probably partly because I was nervous, and partly because I had to fast for 6 hours beforehand and wasn’t very hungry when I got home.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.