Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

100 (or More) Things To Do When You Are Glutened


Guest BERNESES

Recommended Posts

Guest BERNESES

I'll start:

1. Take a nap

2. Pet your pets or borrow one

3. Call a friend who will listen to you (spread out the wealth)

4. Watch some comedy ( I LOVE John Stewart's Daily Show- so irreverent)

5. Watch Sex and the City

6. Look in the mirror and tell yourself it will pass.

7. Come to this site and vent.

8. Read a magazine you'd never really read (like the National Enquirer)

9. Draft a letter to a company or place you are really grateful too because they either have gluten-free products or labels that won't fool you (mail it later when you have the energy)

10. Make a list of 10 things you are really grateful for.

Who's up next? Thanks, Beverly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

11. Have a really good cry

12. Come to this message board :)

13. Look over my old journals to remember how bad I *was* compared to now.

14. Do some yard work

15. Take a hot bath

16. Go to the sauna

17. Take my dog for a walk

18. Sleep...sleep...sleep (oh was that already mentioned?)

19. Read a good magazine (scrapbooking or People)

20. Listen to music

burdee Enthusiast

I can add a few more ideas:

21. Make a pot of really strong herbal peppermint tea and DRINK IT!

22. Do yoga positions which focus on abdominal area.

23. Put on really loose, comfortable, but attractive, clothes.

24. Drink warm water or herbal tea (besides peppermint) continuously.

25. Ask a family member, housemate or spouse to give you a hug.

26. Vent your feelings in an email to an understanding celiac friend.

27. Watch Funniest Animal Videos.

28. Mentally trace the source of your contamination and vow to avoid (or substitute for) that food or cross contamination incident in your own kitchen or restaurant where you were 'glutened'.

29. Take a hot shower and focus the water stream on the painful area.

30. When/if you feel hungry, ask your stomach what would feel really comfortable and easy to digest and then only eat/drink enough to satisfy hunger.

mandigirl1 Enthusiast

31. Put a heating pad on your stomach.

32. Drink camomille tea.

33. Eat bland food like white rice or potato to "push down" the BM.

34. Vent to someone close to you about it.

35. Write down your feelings in a journal.

36. Have a friend or family member tell you jokes to make you laugh.

37. Play with your pet, if you have one.

38. Retrace back to what you ate and promise to eat healthy.

39. Lay in a fetal position on the bed/couch.

40. CRY!!!!!! Let it all out! You'll feel better!

2old4 Rookie

I hope this edited okay, Mandigirl snuck one in on me while I was thinking, ha, ha!

41. Snuggle up on the couch with lots of pillows.

42. Call your Momma.

43. Drink some Coke, burp big!

44. Thank God we have a reaction so we know we're doing damage (some don't have this)

45. Tell yourself, this bloat will go away, I'm not this fat!

46. Remember, last year (or pre-gluten-free) this happened all the time.

47. Watch that cartoon with your child you haven't had time for yet.

48. Remind yourself, I need to take time like this when I'm not sick, to just relax.

49. Watch "National Lampoon's Christmas Vacation" and laugh like hell!

50. And remember, you're not alone...Thanks Beverly

mandigirl1 Enthusiast

Good ideas!!!!!

LOL about posting our blog at the same time!!!

happygirl Collaborator

I don't have a whole ten to add as mine mainly consists of SLEEPING and....

51. Have your darling significant other give you a massage....it is the only thing that helps my muscle/bone pain temporarily. Even for those w/o the pain, hey, you are still getting a massage from your sweetie! :)

52. After you've called your mom, call your grandma! "Older" people can relate to the chronic pain and are so sweet and caring. Plus, you know you'll get an extra mention in her prayers that day, so that always helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

Reading the suggestion about watching "National Lampoon's Christmas Vacation" (I laugh just thinking about that one) reminded me of another funny movie which I saw BEFORE I learned I was celiac, but while I was continually tormented by loud, embarrassing gas. One especially fitting scene from "Hot Shots Part Deux" featured scuba divers who were trying to sneak underwater past a boat where enemy soldiers stood guard. Just when the divers were passing under the boat, the narrator says "And then it happened ..." and a whole bunch of bubbles float up to the surface from one of the divers. The scene makes it look like those were intestinal gas bubbles. You would expect that the enemy would discover the divers from the bubbles. However the next scene depicts all the enemy soldiers keeling over (fainting) and falling off the boat as the bubbles surface. :lol: So that takes care of the enemy and the divers go unnoticed. The first time I saw that scene, I laughed so hard I was literally rolling on the floor. :D I'll have to rent that movie the next time I suffer a contamination episode. ;)

BURDEE

Guest BERNESES

Oh my God! That's awesome- I've got to SEE that! I did threaten to fart my husband out of the bed last night. I haven't been successful yet, but I've come darn close!

Wow! we're up to 50. That's awesome! Thanks everyone.

Kenster61 Enthusiast

53) have some gluten free chicken soup :P .

Guest BERNESES

Oh yeah!

54. Go watch something you enjoy (have someone take you if you're too tired to get there). I went to a horse show this weekend and it cheered me up so much.

burdee Enthusiast

I noticed we got stuck at #54, so I thought I should add a few more to get this topic rolling again ... ;)

55. As mentioned in my post, watch "Hot Shots Part Deux" for celiac humor. :lol:

56. Call a celiac friend who shares your SAME SYMPTOMS and ask her to 'talk you through the pain' (my best celiac friend makes me laugh during waves of dairy cramps).

57. Look through gourmet gluten-free cookbooks (like Karen Robertson's "Cooking Gluten Free") for ideas to cook when your appetite returns. :blink:

Anybody else have any different ideas? I want to print this topic out when we have 100 ideas, because I will facilitate a discussion at my next celiac support group meeting about 'coping with contamination, confusion and consternation'. We only need 43 more ideas ... :lol:

BURDEE

Guest BERNESES

Thanks Burdee! Good thinking.

58. Fart, fart, fart.

59. Call a friend who doesn't have Celiac's and makes you laugh. I talk to my friend Niki who also has an auto-immune disorder, and she refers to it as "Celeriac's" and we joke about how I wish it was a celery intolerance because I HATE celery.

60. Plan something fun for the first day you feel better.

61. Plan your dream vacation. When I want to escape my body, I go online and research all the places I want to travel in this life. last time, I planned my dream vacation to Paris and you know what, I just might do it.

62. Watch a sappy movie. I just watched "Shall we Dance?" with Richard Gere and JLo and I'll admit it, it made me happy.

63. If you're not too ill, do something nice for someone else.

64. If you can, get a pet- a fish, a cat, a dog. It gives you something to focus on besides yourself and fish are wonderful stress reducers.

65. Tell someone who has been supportive of you during this and tell them how much you appreciate their support.

ponita Newbie

66. Watch Meg Ryan in "French Kiss" have her "lactose intolerance" scene on the train with Kevin Kline. While she's eating the cheeses on the bread, I dying, then when she starts have spasms I'm crying but nothing compares to her walk afterwards, I've been there SO many times until I found out I too was Lactose intolerant.

67. Make something with your hands. I string jewelry and it's great for my mental attitude.

68. Read some of the old classics, such as Tom Sawyer or a Nancy Drew story.

What fun!

Melissa

burdee Enthusiast

The idea about getting a pet reminded me of a few more ...

69. Visit a pet store, even if you don't have time or money to have your own. I especially like whistling at the cockateils and dream of having one someday when I have more time and energy. :)

70. If you're feeling well enough to walk around, go to a local zoo. Nobody will notice when you pass gas, because there are so many animal smells already. :lol:

71. Clean out closets, box clothes to donate, transfer summer to winter storage, etc., if you feel too awful to go anywhere, but don't want to sit and stew.

72. Look online for a local celiac support group or consider starting one of your own. I decided to assume leadership of my local group (which was floundering after our previous leader resigned) when I was sick for a whole week, after cross contamination in my own kitchen. :blink:

BURDEE

YankeeDB Contributor

73. Take deep breaths, breathing in through your nose and blowing out gently and slowly through your mouth. Very soothing and eases pain.

74 Take Immodium if you absolutely cannot have any downtime.

75. Read a good book.

76. Listen to your favorite music.

78. Watch the news -- so many have it so much worse.

79. Indulge in your favorite gluten-free treat food.

80. Lie in a comfortable position and moan and groan.

pogirl1786 Apprentice

81.) Watch too many epsiodes of your favorite show on DVD.

82.) Call your friend who let's you know that it's totally okay to feel awful and cry to let it all out.

83.) Remember other times when you've been so sick and someone has done something nice for you to make you feel better.

84.) As has been mentioned many times- sleep!

85.) Put on your favorite hoodie sweatshirt and sweat pants.

86.) Walk slowly and focus on making it through the next minutes, instead of our usual fast-pace of thinking about things weeks in advance.

87.) Watch or listen to something that makes you laugh so hard you cry.

88.) Buy yourself some more sweat pants.

89.) Cuddle with your pets!

90.) Know that even though you feel absolutely horrible right now, and the pain doesn't seem like it will ever pass- that it will get better!

VegasCeliacBuckeye Collaborator

91. Take a hot bath with sweet smelling soaps to cover the deadly-smelling bubbles

92. Jump in a whirpool with a friend and don't tell them about the gluten incident (gee whiz, this whirpool stinks - haha)

93. Exercise, exercise, exercise -- get the bad stuff through the system and get your metabolism going

94. Healthy Dose of Pepto for the bad days...."the one that coats..."

95. Write the company that glutenized you a nasty letter/e-mail :)

96. Take a trip to Whole foods/Wild Oats/Henry's/Trader Joes to pick something out for later.

97. Massage your belly, Massage your belly, Massage your belly

98. Bake homemade gluten free Mac N Cheese

99. Make Homemade Ice Tea -- Yummy!

100. The last one has to be a good one --- Consumate your marriage or relationship -- Hey, its just like pizza -- even when its pretty bad, its still pretty good !! HAHA

burdee Enthusiast

WOW!!! Thanks everybody. Now I can share these 100 suggestions at my support group meeting in October. We really DO know how to get through those contamination episodes and even learn to prevent future ones! :rolleyes:

BURDEE

FaithInScienceToo Contributor

Just wanted to add a reply to this...

Really, just to keep this post fresh, so am moving it back to the top of the list with my reply, since this is such a good one for the newbies to read.

[Also, am emailing this one to myself, for future reference ;-) ]

Thanks for all of the good ideas!

Gina

Guest BERNESES

Yeah!!!!! We did it! Nice work everyone!

Nicolette Rookie

How about...

Start a cross-stitch kit? The things are so damned complicated at times, it'll take your mind off of anything!

Nikki

FaithInScienceToo Contributor

Just moving this one back to the top again, since it is SUCH a good one for newbies to see... (hope that's OK with the site's Admin) -

Actually, maybe we can have a place where the site admins keeps these kinds of threads - the best ones for newbies? So, we don't have to re-generate the info over and over again....?

Just a thought -

Gina

toxemicfrog Rookie

just finished reading the 100....i sleep sleep sleep, watch vids and usually cos im so crook i go on ebay and look at all the pretty gems and dresses....window shopping from home and i can burp from the backside as much as i want cos its only my dog who smells it and she thinks its great anyway...heheheheeh...im sure she thinks it is channel au de canine hehehehehehehe.

great ways to cope though thanks...am just getting over (3 days off work) an accidental glutening from my own kitchen...am learning though.

have a great day :D

Guest BERNESES

i'm so glad we kept this going!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.