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Symptoms Worsen?

sallyalewis

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sallyalewis Rookie
sallyalewis
Posted

I have been Gluten Free for about 2 months. I feel SO much better. The 2 year Migraine is gone, and so is the 2+ year Sinus Infection. I had chronic joint and muscle ache before too. But it seems now, like if I accidentally "gluten" myself the symptoms are MUCH worse. I can barely move without tremendous pain. Is this "normal"?

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pricklypear1971 Community Regular
pricklypear1971
Posted

Yep.

sallyalewis Rookie
sallyalewis
Posted
  • Author

Any ideas why it's worse now?

pricklypear1971 Community Regular
pricklypear1971
Posted

No one is really sure, but the idea is that pre gluten-free your immune system was busy attacking alot of tissues, and lots of gluten. Then it gets a break and comes back energized and ready to make you feel like total crap when you get into gluten.

Mine is a terrible version of the idea, but it gets the point across.

Or, as some people put it - your autoimmune Army is now well rested and on attack. It's kind of like the U.S. vs. a small European nation instead of fighting China?

sa1937 Community Regular
sa1937
Posted

Any ideas why it's worse now?

Simply put: We become more sensitive to trace amounts of gluten after we've been gluten-free.

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  • Posts

    • StuartJ
      Gluten Sensitivity

      By StuartJ · Posted

      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Could this be a new intolerance

      By trents · Posted

      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      Could this be a new intolerance

      By trents · Posted

      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
    • Rogol72
      Could this be a new intolerance

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