Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ttc


horsemom

Recommended Posts

horsemom Newbie

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



upwitht21 Rookie

We did 10 cycles of fertility meds....diagnosed with celiacs in November and accidently got pregnant in January (didn't stick). Can I say without a doubt celiacs caused fertility issues...no but seems like it affected something

Good luck

raea2002 Apprentice

I don't know but wishing you luck.

JNBunnie1 Community Regular

Hi

Im new here and so glad to have found this forum.

I have been ttc for 2plus years and have just done 6mths of fertility treatments with no results.

I have slightly low FSH but am pretty much considered unexplained fertility.

My mother has suggested I try a blood test for Celiac. My grandfather has it and my mother is Gluten Intolerant.

Tomorrow I go for that blood test. Regardless of the result, I am going to go Gluten free.

I have been researching this more and more and it makes so much sense. Im a health nut so it doesn't phase me to eat gluten-free.

Has anyone had a gluten issue linked to fertility troubles.

I have severe period pains, numbness and tingling down my neck and arms sometimes.

That is about my only real symptoms. I do not fit the profile of a celiac but you never know.

I do have severe seasonal allergies so am interested to see if they subside by going gluten free.

Everyone fits the profile of a Celiac. You don't even have to have symptoms to have Celiac. The numbness, tingling, and problem periods are frequent complaints of Celiac.

I personally have seen a dramatic reduction in seasonal allergies since going gluten free, and I do know that a good number of people have seen success in conceiving when they were previously unable to, after gluten free. Here's hoping, right? :)

jigsawfallingintoplace Newbie

hello and welcome :) :)

I had an ectopic and a miscarriage - both took a long time to concieve.

Followed by 2 plus years of unexplained infertility, very painful and highly irregular periods (one every 45-60 days)

Had 6 months of clomid - no success.

At 40 got to top of ivf list but decided not to go through with it and be childfree by cholce (it has been a long and tearful journey over 10 years and we had had enough)

I am self diagnosed celiac at 42 and since going gluten free all symptoms have gone - i had the tingling and numbness you describe too.

My periods have returned to every 28 days - the first time in 20 years!

I may have felt differently if I was younger but now I have come to terms with being childfree through choice but I do strongly believe that celiac was the cause of my losses and UI and I am sad that it was never investigated.

There is a call that all unexplained Infertility patients are automatically tested for celiac (oxford medical journal) but as yet, i am sure many ladies are celiac and dont know that this is the cause.

Good Luck and like someone else said , there are many successful stories of motherhood after going gluten-free!

addis001 Apprentice

i had my first son fine (concieved on first try), but looking back I was on a diet of fish, vegetables, fruits, chicken, etc.. because my parents eat super healthy, and I was back with them until husband could find a job when school was over.

I had weird pains etc while preggo.. Then after I had him, I had SEVERE fatigue, and other symptoms. Then about at 8 months old, I was vomitting, pain, diarreah, unexplained other things just once in awhile.. So when he is 20 months old, we were TTC and my symptoms were getting worse, to the point of everyother day. It was hard getting preggo.. No positives at all..Periods were short and sporadic.. it was bad.. So I went to doctor after doctor..

My grandmother has celiac, my aunt has celiac, my other aunt is gluten sensitive, My mom is sensitive.. So I decided after 1000 dollars in medical procedures to go gluten free... A Month after going gluten free, we got pregnant.. I'm at 15 weeks now and going strong..

If you've had strong symptoms for 2 plus years you might have more damage than me.. and you might want to wait a few more months before TTC.. I've heard of others that have a ton of damage they tend to miscarry more because their body is still repairing itself.. and when your preggo your immune system is suppressed so your body will accept the fetus..It can't do that and repair at the same time sometimes... Just a thought but its up to you..

  • 3 weeks later...
deb445 Rookie

Horsemom

Welcome to the forum, and I am hopeful for you ...

In hindsight, after trying to start our family for years, and suffering loss (ectopic pregnancy)...I finally got pregnant again when I was on vacation, eating fresh veggies, fruit and lots of fish. I carried my little gluten sensitive guy to term. :D

Since being glutenfree, my cycles have been significantly less painful. Recently, cutting out corn (coincidence? too soon to tell) I was completely painfree, and no bloating/inflammation.

I think there is a connection...good luck to you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
holland Newbie

Yes, I have [had] fertility problems because of it..

We saw an 'expert' but they couldn't figure out what was going on.. we don't want to do the IVF because to us, if it's meant to be, it'll happen...

I've lost one officially (meaning I had a positive on the test) and I know I lost at least 3 others (unofficially - no positive; but I just knew I was) and during all those times (over 19 years) I was gluten intolerant and I didn't even know it. I just recently (2 years ago; with my last pregnancy - the one I had the positive) I found out that I am... and yes, it can cause problems getting pregnant and even staying pregnant.

Even before they found out what the problem was, they took out my gallbladder.. that helped some (it was problematic), but with me, the damage is/was pretty bad.. :(

Just recently (2 months) have been completely gluten free. When I was told, I wasn't sure where to turn... at the time, I was a junk food-aholic! I had to have me those brownies!!... cakes, crap like that; basically, just that, crap. Things women love during those hormone peaks.. you know... my chocolate!! anyway... lol...

during those times, I would feel like crap.. wore down, wore out and put away wet type of thing...

so my doctor told me "stop the gluten.. and after a bit, maybe months, maybe it'll happen.. if the damage isn't too great" so I've been off gluten for 2 months.. still going strong (even though I sometimes miss what my husband eats (bastard! lol) ice cream, cake.. (my sons birthday was recently so...) but anyway, I'm taking my vitamins (folic acid, iron..etc) just in case I do end up pregnant.. and other vitamins from the foods I can't eat...

I haven't eaten Gluten for these 2 months, I feel sooooo much better... and just the other night, I took a drink of something that had malt in it and immediately, even before I found out it did, my mouth was like "GROSS!".. and then I got sick... so I think my body is trying to tell me "thank you so much for keeping me clean.. I don't need that crap!"

anyway, good luck! stay Gluten Free... and if it's meant to be, it'll happen! :)

  • 3 weeks later...
pinkscooby6 Rookie

So, I have been having the same issues. My husband and I started trying to conceive in December 2011, we were successful the first month, but then miscarried at 5.5 weeks, heart broken. Haven't been able to conceive since. Now I haven't had a cycle for 52 days, but the urine tests are saying negative! All of my vitamin levels are normal, so I don't know why I am late. Have any of you had this happen?

  • 3 weeks later...
upwitht21 Rookie

I wanted to update my previous comment to state it absolutely causes fertility problems.....

We did 10 cycles of fertility meds with zero success. When I got diagnosed and went gluten free I got pregnant the first month we tried literally "trying" once (hubby had just had back surgery) we miscarried at 9 weeks in march.

I just found out I am pregnant again (wow that sounds crazy seeing it out loud).... Absolutely without a doubt gluten caused the problem.

Pinkscooby6, how long have you been gluten free? I have long cycles and the endocrinologist I used to see recommends doing a month of birth control and 3 months off. Its suppose to help regulate your cycles.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,419
    • Most Online (within 30 mins)
      7,748

    kristitullos219
    Newest Member
    kristitullos219
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.