Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This And Still Not Sure If It Is Celiac Disease


scaredblossom

Recommended Posts

scaredblossom Rookie

It might be helpful blood sugar wise to check it before you eat then at 1, 2 and 3 hour intervals after. Do this with each meal and record the findings and take them to the doctors office at your next visit. You can also ask your doctor to do an A1c which will show your BS average over a 3 month period.

If you can go with more whole food and less stuff like pizza, chips and soda for a while that would be a good thing.

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!

Not a dumb question at all in this day of premade and processed and boxed foods. Whole foods would be fresh meat, chicken, fish, eggs, veggies and fruits etc. in their natural state rather than processed or premade. Like our grandparents used to cook. Some of us find it helpful to wait until we have healed a bit before we try too many special gluten free baked goods. Some are made with stuff like bean flour, sorghum, soy flour etc that may be hard to tolerate until you have healed a bit.

tom Contributor

Sorry you're feeling poorly again, blossom.

...

Also is it strange that I seem to be getting headaches when I eat any type of potatoes? Just seemed to notice getting a headache every time I eat potato products, maybe it's not related but it seems to only happen then!

I get the feeling this doesn't include trying a plain baked potato.

Which oil is used in potato chips makes a HUGE difference for me. Canola makes me dizzy so I usually have to skip anything that has the "this or this or this or this oil" since one is invariably canola.

BTW If at anytime I am rambling too much or need to start a new thread please let me know =}

...

Ramble away & we'll ramble back & if you have a new topic, or want a new thread to ask or comment on anything else ("is this bean flour supposed to smell like this?") it's all up to you.

And I'm sure ppl will keep replying in this thread while anything's still being asked or commented on.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

I think we use the term 'whole foods' as mostly non-processed. My 1-ingredient almond butter could be called processed compared to buying raw unshelled almonds, but it's a far cry from a couple inches of ingredients & processes in making a gluten-free cracker.

Sometimes I think of it as buying ingredients.

P.S. hehe I was slow enough finishing that Raven beat me to that last part! (Better, too)

Pro Newbie

I'm so sorry you had a rough day!! I could barely eat yesterday, I had about 3/4 of a small hot pocket at work around 10pm! It of course stayed down long enough for me to be past the 12am deadline for nothing to eat or drink for my tests today!! I'm hungry but afraid to eat!!

Thank you :D it's nice to have people who understand, and don't just write you off as exaggerating.

First off congrats on the wedding. Wishing you much happiness. Do keep eating gluten until your celiac related testing is done and then give the diet a good strict try. When you go for testing do make sure the doctor does stool testing to make sure that it isn't a case of food poisoning since these symptoms came on suddenly. Hope your feeling better soon.

Thank you! I was going to, but I just couldn't bare it any longer. It probably helps that I don't have health insurance either, and don't want to foot that much money to be told to eat gluten free :P

Pro, have you started your own thread? Not that you have to but it's easier when ppl ask questions like "Is your appt far off?"

I just started one, it is awaiting moderation.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

Not many people look at the introduction threads, so I am making one in this coping section. It is more in depth than my original post. Should be approved before too long. Very punny joke by the way :P

Sorry if I jacked your thread blossom. I hope you are feeling better now! :D

scaredblossom Rookie

Not a prob Pro :D The only prob I have with the whole foods thing is while at work....hard to get a good lunch put together! I have always had issues with dairy so just eating plain cheese is a no go, yogart would probably work though! Nuts have always made my stomach hurt and popcorn kernels! I hate hate hate veggies...the only raw veggie I'll eat is very crisp lettuce! Cooked veggies are limited to green beans with potatoes cooked in bacon grease mmmmm or corn on the cob (only in moderation though, kernel thing) :huh: So now what??? I took fresh fruit last night, some plain chips, and beef jerky and no headaches and sugar didn't do bad! Before eating it was 79 but an hr out it was 112 and two hrs out 149, three hours it was 102! It's so hard not to order takeout or eat junk from the vending machine (can't see the labels though so not a safe bet) I have never been one to pack my lunch!

Oh yeah I have been stressing big time over waiting on my blood work! I guess I previously ha failed to mention family history; my sister has been dx with Lupus and Colitis and urinary issues (including stones), my mother has Crohns and Colitis breast cancer twice and a slew of heart conditions, dad has DM and HTN, Paternal Grandmother died from breast cancer, and Paternal Grandfather bone cancer I think, Maternal Uncle died of cirohsis of the liver. I have wondered if I might have Lupus but idk, when I was younger I had severe sensitivity to the cold! I would get hives and blisters all over my body if I got too cold and my hands an feet would swell to the point they felt like they would pop! When i was diagnosed hypoglycemic the Dr said I react differently to sugar, almost like i'm allergic to it! I will spike up then crash hard and lower than most!! I just wish I knew what was going on in my body!! I'm only 34 and most of the time I feel in my 80's!! :(

scaredblossom Rookie

OMG YOU'RE KIDDING ME RIGHT!!!! Excuse the truthfulness, I have diarrhea so bad it's like a faucet being turned on and and vomiting again, WTHECK is wrong with me?????

ravenwoodglass Mentor

I don't have a lot of time so a couple brief lunch ideas. How about a hard boiled egg and some fruit, cold baked chicken and fruit, some gluten-free lunch meat rolled with a piece of lettuce or left overs from dinner the night before as a couple examples.

Maybe start a thread asking for lunch ideas as many of us do have to deal with this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scaredblossom Rookie

Well figured out what it is, didn't even think to check for a warning label on the beef jerky, I only checked ingredients and it was ok but at the very bottom it said contains wheat products and soy!! Been sick all day at work and kept eating it cause I'm starved!! I have ate everything I brought with me but applesauce and chips and what's left of the jerky...God I feel dumb!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,557
    • Most Online (within 30 mins)
      7,748

    Ortega
    Newest Member
    Ortega
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.