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New To This And Still Not Sure If It Is Celiac Disease


scaredblossom

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scaredblossom Rookie

It might be helpful blood sugar wise to check it before you eat then at 1, 2 and 3 hour intervals after. Do this with each meal and record the findings and take them to the doctors office at your next visit. You can also ask your doctor to do an A1c which will show your BS average over a 3 month period.

If you can go with more whole food and less stuff like pizza, chips and soda for a while that would be a good thing.

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!


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ravenwoodglass Mentor

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!

Not a dumb question at all in this day of premade and processed and boxed foods. Whole foods would be fresh meat, chicken, fish, eggs, veggies and fruits etc. in their natural state rather than processed or premade. Like our grandparents used to cook. Some of us find it helpful to wait until we have healed a bit before we try too many special gluten free baked goods. Some are made with stuff like bean flour, sorghum, soy flour etc that may be hard to tolerate until you have healed a bit.

tom Contributor

Sorry you're feeling poorly again, blossom.

...

Also is it strange that I seem to be getting headaches when I eat any type of potatoes? Just seemed to notice getting a headache every time I eat potato products, maybe it's not related but it seems to only happen then!

I get the feeling this doesn't include trying a plain baked potato.

Which oil is used in potato chips makes a HUGE difference for me. Canola makes me dizzy so I usually have to skip anything that has the "this or this or this or this oil" since one is invariably canola.

BTW If at anytime I am rambling too much or need to start a new thread please let me know =}

...

Ramble away & we'll ramble back & if you have a new topic, or want a new thread to ask or comment on anything else ("is this bean flour supposed to smell like this?") it's all up to you.

And I'm sure ppl will keep replying in this thread while anything's still being asked or commented on.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

I think we use the term 'whole foods' as mostly non-processed. My 1-ingredient almond butter could be called processed compared to buying raw unshelled almonds, but it's a far cry from a couple inches of ingredients & processes in making a gluten-free cracker.

Sometimes I think of it as buying ingredients.

P.S. hehe I was slow enough finishing that Raven beat me to that last part! (Better, too)

Pro Newbie

I'm so sorry you had a rough day!! I could barely eat yesterday, I had about 3/4 of a small hot pocket at work around 10pm! It of course stayed down long enough for me to be past the 12am deadline for nothing to eat or drink for my tests today!! I'm hungry but afraid to eat!!

Thank you :D it's nice to have people who understand, and don't just write you off as exaggerating.

First off congrats on the wedding. Wishing you much happiness. Do keep eating gluten until your celiac related testing is done and then give the diet a good strict try. When you go for testing do make sure the doctor does stool testing to make sure that it isn't a case of food poisoning since these symptoms came on suddenly. Hope your feeling better soon.

Thank you! I was going to, but I just couldn't bare it any longer. It probably helps that I don't have health insurance either, and don't want to foot that much money to be told to eat gluten free :P

Pro, have you started your own thread? Not that you have to but it's easier when ppl ask questions like "Is your appt far off?"

I just started one, it is awaiting moderation.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

Not many people look at the introduction threads, so I am making one in this coping section. It is more in depth than my original post. Should be approved before too long. Very punny joke by the way :P

Sorry if I jacked your thread blossom. I hope you are feeling better now! :D

scaredblossom Rookie

Not a prob Pro :D The only prob I have with the whole foods thing is while at work....hard to get a good lunch put together! I have always had issues with dairy so just eating plain cheese is a no go, yogart would probably work though! Nuts have always made my stomach hurt and popcorn kernels! I hate hate hate veggies...the only raw veggie I'll eat is very crisp lettuce! Cooked veggies are limited to green beans with potatoes cooked in bacon grease mmmmm or corn on the cob (only in moderation though, kernel thing) :huh: So now what??? I took fresh fruit last night, some plain chips, and beef jerky and no headaches and sugar didn't do bad! Before eating it was 79 but an hr out it was 112 and two hrs out 149, three hours it was 102! It's so hard not to order takeout or eat junk from the vending machine (can't see the labels though so not a safe bet) I have never been one to pack my lunch!

Oh yeah I have been stressing big time over waiting on my blood work! I guess I previously ha failed to mention family history; my sister has been dx with Lupus and Colitis and urinary issues (including stones), my mother has Crohns and Colitis breast cancer twice and a slew of heart conditions, dad has DM and HTN, Paternal Grandmother died from breast cancer, and Paternal Grandfather bone cancer I think, Maternal Uncle died of cirohsis of the liver. I have wondered if I might have Lupus but idk, when I was younger I had severe sensitivity to the cold! I would get hives and blisters all over my body if I got too cold and my hands an feet would swell to the point they felt like they would pop! When i was diagnosed hypoglycemic the Dr said I react differently to sugar, almost like i'm allergic to it! I will spike up then crash hard and lower than most!! I just wish I knew what was going on in my body!! I'm only 34 and most of the time I feel in my 80's!! :(

scaredblossom Rookie

OMG YOU'RE KIDDING ME RIGHT!!!! Excuse the truthfulness, I have diarrhea so bad it's like a faucet being turned on and and vomiting again, WTHECK is wrong with me?????

ravenwoodglass Mentor

I don't have a lot of time so a couple brief lunch ideas. How about a hard boiled egg and some fruit, cold baked chicken and fruit, some gluten-free lunch meat rolled with a piece of lettuce or left overs from dinner the night before as a couple examples.

Maybe start a thread asking for lunch ideas as many of us do have to deal with this.


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scaredblossom Rookie

Well figured out what it is, didn't even think to check for a warning label on the beef jerky, I only checked ingredients and it was ok but at the very bottom it said contains wheat products and soy!! Been sick all day at work and kept eating it cause I'm starved!! I have ate everything I brought with me but applesauce and chips and what's left of the jerky...God I feel dumb!!

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    • cristiana
      Good evening @EssexMum You are quite right to be concerned about this situation.  Once diagnosed as coeliac, always a coeliac, and the way to heal  is through adopting and sticking to a strict gluten diet. That said... I have travelled twice to France since my diagnosis, firstly in May 2013 and again in August 2019.   My spoken French isn't bad, and whilst there I tried my best to explain my needs to chefs and catering staff, and I read labels very carefully when shopping in supermarkets, but both times I came away with worsening gastric symptoms and pain. Interestingly,  after the second holiday, my annual coeliac review took place the following month and although I'd been very careful to avoid gluten all year, thanks to that August holiday my coeliac antibodies were elevated,  Clearly I hadn't been imagining these symptoms and they must have been caused by gluten sneaking in somehow. When I spoke to my gastroenterologist on my return, who is an excellent doctor, he told me with a smile that this was a very common experience in France among his patients, and not to worry too much about it! In fact, before we went away in May 2013, which was just after I had been formally diagnosed, he told me not to even bother trying to adopt a gluten free diet until I returned, knowing what France was like, but I was feeling so awful at that time I ignored his advice and at least tried to make a start with it. (I ought to say - both these visits were some time ago, so perhaps things are a lot better there now.) So what to do?  I would say at least try to explain to catering staff the situation - they should be able to rustle up a plate of cheese, boiled eggs, tuna, salad and fruit, and if things like crackers and gluten-free pot noodle or oats can be packed in the UK, those can be produced at mealtimes.    Of course, most larger supermarkets in France do now cater for coeliacs, but when I was last there the the choice wasn't as wide a range as we have in the UK but I think that is partly because the French like to cook from scratch, whereas our gluten-free aisles have quite a lot of dried or pre-baked goods in them/convenience foods, because I think we as a nation tend to use them more. I would be worth doing a bit of research on the internet before the trip, - the words you want are 'sans gluten'.  I've just googled 'sans gluten Disney Paris" and this came up.  I do hope at least some of this is of help. https://www.tripadvisor.co.uk/Restaurants-g2079053-zfz10992-Disneyland_Paris_Ile_de_France.html  Whatever befalls in France, at least your stepdaughter can resume her usual diet on her return. On a related tack, would you be happy to post any positive findings/tips upon her return - it might be of use to others travelling to Disneyland Paris with children in future? Cristiana
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