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New To This And Still Not Sure If It Is Celiac Disease


scaredblossom

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scaredblossom Rookie

It might be helpful blood sugar wise to check it before you eat then at 1, 2 and 3 hour intervals after. Do this with each meal and record the findings and take them to the doctors office at your next visit. You can also ask your doctor to do an A1c which will show your BS average over a 3 month period.

If you can go with more whole food and less stuff like pizza, chips and soda for a while that would be a good thing.

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!


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ravenwoodglass Mentor

Okay I'm being dumb right now despite being a Nurse (we're talking about me not a patient)define whole foods!!

Not a dumb question at all in this day of premade and processed and boxed foods. Whole foods would be fresh meat, chicken, fish, eggs, veggies and fruits etc. in their natural state rather than processed or premade. Like our grandparents used to cook. Some of us find it helpful to wait until we have healed a bit before we try too many special gluten free baked goods. Some are made with stuff like bean flour, sorghum, soy flour etc that may be hard to tolerate until you have healed a bit.

tom Contributor

Sorry you're feeling poorly again, blossom.

...

Also is it strange that I seem to be getting headaches when I eat any type of potatoes? Just seemed to notice getting a headache every time I eat potato products, maybe it's not related but it seems to only happen then!

I get the feeling this doesn't include trying a plain baked potato.

Which oil is used in potato chips makes a HUGE difference for me. Canola makes me dizzy so I usually have to skip anything that has the "this or this or this or this oil" since one is invariably canola.

BTW If at anytime I am rambling too much or need to start a new thread please let me know =}

...

Ramble away & we'll ramble back & if you have a new topic, or want a new thread to ask or comment on anything else ("is this bean flour supposed to smell like this?") it's all up to you.

And I'm sure ppl will keep replying in this thread while anything's still being asked or commented on.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

I think we use the term 'whole foods' as mostly non-processed. My 1-ingredient almond butter could be called processed compared to buying raw unshelled almonds, but it's a far cry from a couple inches of ingredients & processes in making a gluten-free cracker.

Sometimes I think of it as buying ingredients.

P.S. hehe I was slow enough finishing that Raven beat me to that last part! (Better, too)

Pro Newbie

I'm so sorry you had a rough day!! I could barely eat yesterday, I had about 3/4 of a small hot pocket at work around 10pm! It of course stayed down long enough for me to be past the 12am deadline for nothing to eat or drink for my tests today!! I'm hungry but afraid to eat!!

Thank you :D it's nice to have people who understand, and don't just write you off as exaggerating.

First off congrats on the wedding. Wishing you much happiness. Do keep eating gluten until your celiac related testing is done and then give the diet a good strict try. When you go for testing do make sure the doctor does stool testing to make sure that it isn't a case of food poisoning since these symptoms came on suddenly. Hope your feeling better soon.

Thank you! I was going to, but I just couldn't bare it any longer. It probably helps that I don't have health insurance either, and don't want to foot that much money to be told to eat gluten free :P

Pro, have you started your own thread? Not that you have to but it's easier when ppl ask questions like "Is your appt far off?"

I just started one, it is awaiting moderation.

The other new member, Pro, I thought might prefer his own thread. Heh, silly me, just checked through his PROfile & he'd already started one.

Not many people look at the introduction threads, so I am making one in this coping section. It is more in depth than my original post. Should be approved before too long. Very punny joke by the way :P

Sorry if I jacked your thread blossom. I hope you are feeling better now! :D

scaredblossom Rookie

Not a prob Pro :D The only prob I have with the whole foods thing is while at work....hard to get a good lunch put together! I have always had issues with dairy so just eating plain cheese is a no go, yogart would probably work though! Nuts have always made my stomach hurt and popcorn kernels! I hate hate hate veggies...the only raw veggie I'll eat is very crisp lettuce! Cooked veggies are limited to green beans with potatoes cooked in bacon grease mmmmm or corn on the cob (only in moderation though, kernel thing) :huh: So now what??? I took fresh fruit last night, some plain chips, and beef jerky and no headaches and sugar didn't do bad! Before eating it was 79 but an hr out it was 112 and two hrs out 149, three hours it was 102! It's so hard not to order takeout or eat junk from the vending machine (can't see the labels though so not a safe bet) I have never been one to pack my lunch!

Oh yeah I have been stressing big time over waiting on my blood work! I guess I previously ha failed to mention family history; my sister has been dx with Lupus and Colitis and urinary issues (including stones), my mother has Crohns and Colitis breast cancer twice and a slew of heart conditions, dad has DM and HTN, Paternal Grandmother died from breast cancer, and Paternal Grandfather bone cancer I think, Maternal Uncle died of cirohsis of the liver. I have wondered if I might have Lupus but idk, when I was younger I had severe sensitivity to the cold! I would get hives and blisters all over my body if I got too cold and my hands an feet would swell to the point they felt like they would pop! When i was diagnosed hypoglycemic the Dr said I react differently to sugar, almost like i'm allergic to it! I will spike up then crash hard and lower than most!! I just wish I knew what was going on in my body!! I'm only 34 and most of the time I feel in my 80's!! :(

scaredblossom Rookie

OMG YOU'RE KIDDING ME RIGHT!!!! Excuse the truthfulness, I have diarrhea so bad it's like a faucet being turned on and and vomiting again, WTHECK is wrong with me?????

ravenwoodglass Mentor

I don't have a lot of time so a couple brief lunch ideas. How about a hard boiled egg and some fruit, cold baked chicken and fruit, some gluten-free lunch meat rolled with a piece of lettuce or left overs from dinner the night before as a couple examples.

Maybe start a thread asking for lunch ideas as many of us do have to deal with this.


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scaredblossom Rookie

Well figured out what it is, didn't even think to check for a warning label on the beef jerky, I only checked ingredients and it was ok but at the very bottom it said contains wheat products and soy!! Been sick all day at work and kept eating it cause I'm starved!! I have ate everything I brought with me but applesauce and chips and what's left of the jerky...God I feel dumb!!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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