Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cannot Cope Anymore, Physically Or Mentally.

charlotte-hall

Recommended Posts

charlotte-hall Apprentice
charlotte-hall
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

You haven't mentioned much about your lifestyle.. like what do you usually eat, what precautions have you taken to make sure you're completely gluten-free.

The way you're feeling now is directly related to your health situation, believe me! Depression and feelings of hopelessness are caused by whatever is making you feel ill. We'll need more details to be able to find out what is making you feel ill though :-)

cahill Collaborator
cahill
Posted

6 months of feeling ill, every single day. Nausea, tiredness, swollen throat, stomach pain, generally feeling rubbish. Missing loads of school and exams..

It's starting to effect me a lot now, I just feel like there's is no point in life anymore..just getting up to feel ill.

After 4 months gluten free still have a TTG level of 229 (normal is under 10)

No hope left anymore, starting to get depressed, and scared..I have massive emetophobia so feeling nauseous 24/7 is not a good thing at all!

Went to A&E, hospital said they couldnt do anything so got sent home..

Just really cannot cope.

You are 14 years old,, are your parents gluten free??

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm 15, but no my house isn't gluten free

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

Maggie Mermaid Apprentice
Maggie Mermaid
Posted

I usually eat toast on a morning, with butter from my own butter, no cross contamination there, and with my own toaster. Gluten free bread obviously. Then usually at school, a sandwhich, yet again with gluten-free bread and my own butter and usually cheese or chicken. Then for tea..meat and vegetables, keeping it simple.

How about giving up any type of bread-like product for a weekend and see how you feel? For breakfast, you could have eggs or fruit with yogurt.

Sounds like some hidden cross-contamination somewhere. Maybe toothpaste, mouthwash, or lip balm/lipstick products are not 100% gluten-free?

kareng Grand Master
kareng
Posted

I'm Curious.... what do your parents say about this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I'm Curious.... what do your parents say about this?

Just struggling what to do, there seems to be no answer

kareng Grand Master
kareng
Posted

Just struggling what to do, there seems to be no answer

I meant, are they OK with the gluten-free thing? Do they keep any gluten in one place, away from your foods? Use separate colanders for your gluten-free pasta or fruit? No one in the house thinks its stupid and puts flour in your food? Have they checked any medications you take for gluten? No oats?

I'm trying to think of the things that have happened to others.

charlotte-hall Apprentice
charlotte-hall
Posted
  • Author

I have oats cut out totally, I have seperate pans and my own cutlery etc. And no, they all realise the seriousness so I dont think someone doing it on purpose would be the case

MitziG Enthusiast
MitziG
Posted

I am so sorry you are going through that. My daughter is 13 and has similar issues, and like you, major phobia of vomiting, which unfortunately, she does a lot. I would reccomend an elimination diet for now. Stick with very bland things- rice, chicken, fruit and veggies. Avoid dairy 100%. This can allow your gut to heal, and then you can try adding back one thing at a time. I promise you, this can get better!

As for the nausea, get some Braggs apple cider vinegar. Put a teaspoon in a glass of water and drink when your stomach hurts. It gives almost instant relief and really helps when my daughter is throwing up.

I know it is hard not to be discouraged, but it really will get better. Hang in there!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    2. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

      There are eight essential B vitamins. They are all water soluble. Any excess of B vitamins is easily excreted by the kidneys. Thiamine is Vitamin B 1. Thiamine is safe and nontoxic even in high doses. Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily. The form of Thiamine in the supplements you mentioned is...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    5. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,747
    • Most Online (within 30 mins)
      7,748
    hampiebee
    Newest Member
    hampiebee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.