Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Catch Celiac Disease Early Enough?


Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast

I have always had a weak stomach. Whenever I would have diarrhea, I would just say it was my nerves. I used to get so sick after eating Pizza Hut, that I just ate thin crust cheese and for about two years, I have not had any pizza. I would get these bouts so bad that I wasn't able to breath and would have asthma attacks. It would literally feel like my lungs were itching. Two of my sisters have the same problem.

Last June, I found out I was anemic. Shortly after that, the DH showed up. I really didn't start having any gastrointestinal problems until the end of February. I was bad then, but it went away. Started up again at the beginning of April and that is when it got really bad. Now I find out that I am hypothyroid and Vitamin D deficient. I was put on 50,000u for 12 weeks? My B12 was above normal.

I have cut out gluten completely now, but I also believe I am intolerant to soy. I had tuna in the pouch on Udi's sandwich bread and was sick within an hour of eating it and that is probably because of the vegetable broth it is in.

I guess I will have to continue living off of Rice Chex, eggs, and tilapia. Last night I had tilapia, half of a baked potato, and some sauteed cauliflower. Pretty sure the cauliflower has given me indigestion this morning.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MitziG Enthusiast

I am a little confused as to the title of your post as it doesn't seem to relate to the text?

I do know you are new to the gluten-free diet, and can reassure you that in the beginning, it seems like all systems just go "haywire" it is pretty common to feel worse before you feel good. Stick with your bland diet for a few months, then start adding in the things that bothered you before. Once your gut heals enough you may stop reacting to them.

Mnicole1981 Enthusiast

I guess I forgot to include the question. Is it possible that I caught it early enough to not have any extensive damage? If that makes sense... everything just seemed kind of gradual. I got my asthma diagnosis at 14, GERD/hiatal hernia at 22, anemia at 30, but before this year, I had never been at the point where I was scared to eat and feeling as bad as I felt.

Takala Enthusiast

Yes, of course, there are people who are older than you who have gotten much better. :D

You may have to continuously keep re- tweaking "the diet" in the beginning, to get the hang of what works with your individual needs.

I can't eat commercial cereals in the am anymore, and be worth a darn. I can, however, eat real foods and feel much better. This means fruit, nuts, coconut milk, cheese, yogurt, eggs, vegetables, anything not very high carb. In the beginning, I avoided all dairy. I went thru a phase where I tried the new gluten free cereals just for nostalgia's sake, but after the initial thrill, I got over it. Reactions to soy are common. I don't do well with flax, and I've learned the hard way not to eat gluten free commercially baked goods with the stuff in it, last Thanksgiving week was my last slip up on that, and I think it may have permanently cured me of the "oh, just one piece won't matter" attitude. :blink::ph34r:

You may have to shop around at the fancy health food stores to find tuna that does not have **** garbage in it, or just get some frozen, and bake it up for the week. Be sure to rinse off all meat, fish, and chicken with cold water before cooking it, especially if it is out of the butcher case. You may want to try "wild caught" fish, as tilapia is farm raised and will have been fed grains and probably soy.

Try eating the cauliflower with pure apple cider vinegar and olive oil. Maybe some tumeric to aid digestion. (not my favorite vegetable, but whatever you want to try.... you could steam it, then add coconut milk and curry spice, also, or some yogurt ) You can also put cinnamon on broccoli, and it is surprisingly good that way.

pricklypear1971 Community Regular

You've got a lot going on.

Give yourself time, lots of time.

Eat as fresh as you can, as much as you can. If something bothers you don't immediately assume its a new intolerance. In the beginning, it's just weird.

I've been through stages where sugar bothered me, fat bothered me, heck - THE SUNRISE bothered me.

Your thyroid can be affecting things tremendously. I assume you are now supplementing?

Keep a food and symptom diary. It helps tremendously. If a single food bothers you don't eat it. The diary will help you pinpoint a pattern.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.