Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Catch Celiac Disease Early Enough?


Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast

I have always had a weak stomach. Whenever I would have diarrhea, I would just say it was my nerves. I used to get so sick after eating Pizza Hut, that I just ate thin crust cheese and for about two years, I have not had any pizza. I would get these bouts so bad that I wasn't able to breath and would have asthma attacks. It would literally feel like my lungs were itching. Two of my sisters have the same problem.

Last June, I found out I was anemic. Shortly after that, the DH showed up. I really didn't start having any gastrointestinal problems until the end of February. I was bad then, but it went away. Started up again at the beginning of April and that is when it got really bad. Now I find out that I am hypothyroid and Vitamin D deficient. I was put on 50,000u for 12 weeks? My B12 was above normal.

I have cut out gluten completely now, but I also believe I am intolerant to soy. I had tuna in the pouch on Udi's sandwich bread and was sick within an hour of eating it and that is probably because of the vegetable broth it is in.

I guess I will have to continue living off of Rice Chex, eggs, and tilapia. Last night I had tilapia, half of a baked potato, and some sauteed cauliflower. Pretty sure the cauliflower has given me indigestion this morning.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MitziG Enthusiast

I am a little confused as to the title of your post as it doesn't seem to relate to the text?

I do know you are new to the gluten-free diet, and can reassure you that in the beginning, it seems like all systems just go "haywire" it is pretty common to feel worse before you feel good. Stick with your bland diet for a few months, then start adding in the things that bothered you before. Once your gut heals enough you may stop reacting to them.

Mnicole1981 Enthusiast

I guess I forgot to include the question. Is it possible that I caught it early enough to not have any extensive damage? If that makes sense... everything just seemed kind of gradual. I got my asthma diagnosis at 14, GERD/hiatal hernia at 22, anemia at 30, but before this year, I had never been at the point where I was scared to eat and feeling as bad as I felt.

Takala Enthusiast

Yes, of course, there are people who are older than you who have gotten much better. :D

You may have to continuously keep re- tweaking "the diet" in the beginning, to get the hang of what works with your individual needs.

I can't eat commercial cereals in the am anymore, and be worth a darn. I can, however, eat real foods and feel much better. This means fruit, nuts, coconut milk, cheese, yogurt, eggs, vegetables, anything not very high carb. In the beginning, I avoided all dairy. I went thru a phase where I tried the new gluten free cereals just for nostalgia's sake, but after the initial thrill, I got over it. Reactions to soy are common. I don't do well with flax, and I've learned the hard way not to eat gluten free commercially baked goods with the stuff in it, last Thanksgiving week was my last slip up on that, and I think it may have permanently cured me of the "oh, just one piece won't matter" attitude. :blink::ph34r:

You may have to shop around at the fancy health food stores to find tuna that does not have **** garbage in it, or just get some frozen, and bake it up for the week. Be sure to rinse off all meat, fish, and chicken with cold water before cooking it, especially if it is out of the butcher case. You may want to try "wild caught" fish, as tilapia is farm raised and will have been fed grains and probably soy.

Try eating the cauliflower with pure apple cider vinegar and olive oil. Maybe some tumeric to aid digestion. (not my favorite vegetable, but whatever you want to try.... you could steam it, then add coconut milk and curry spice, also, or some yogurt ) You can also put cinnamon on broccoli, and it is surprisingly good that way.

pricklypear1971 Community Regular

You've got a lot going on.

Give yourself time, lots of time.

Eat as fresh as you can, as much as you can. If something bothers you don't immediately assume its a new intolerance. In the beginning, it's just weird.

I've been through stages where sugar bothered me, fat bothered me, heck - THE SUNRISE bothered me.

Your thyroid can be affecting things tremendously. I assume you are now supplementing?

Keep a food and symptom diary. It helps tremendously. If a single food bothers you don't eat it. The diary will help you pinpoint a pattern.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.