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Trial Gluten Free?

JamTart

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JamTart Rookie
JamTart
Posted

All symptoms point to celiac, but I had negative bloodwork. Doc recommended one month gluten free to see if symptoms clear up, if so- then back on gluten for a few Weeks to wait for a biopsy. Any thoughts on this? I've read a lot of info saying not to go gluten free before a positive diagnosis. Losing weight by the day. Please see other posts for more detailed info. Thanks for any replies!

Doc also testing for lupus, RA, electro phosphoresus in the meantime. A high CRP value is my only abnormal bloodwork

so far.

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Mateto Enthusiast
Mateto
Posted

Well I'd say go for it, but not before you get a biopsy. I'd try and get a biopsy as soon as you can. THEN, go gluten-free and see if you feel better.

Now, you could go gluten-free first, then get a biopsy, but after being gluten-free for a month, I'd want to go back on gluten for 3 - 4 weeks before the biopsy. As you know, the biopsy will not be accurate if you're gluten free.

JamTart Rookie
JamTart
Posted
  • Author

Thanks for your reply. If I go gluten free first to see if symptoms get better, and then go back on gluten for 4 weeks prior to a biopsy do you know if the chances for a false negative are the same? Does going off gluten for this initial month make it more likely I'll have a false negative when I eventually get a biopsy?

pricklypear1971 Community Regular
pricklypear1971
Posted

Thanks for your reply. If I go gluten free first to see if symptoms get better, and then go back on gluten for 4 weeks prior to a biopsy do you know if the chances for a false negative are the same? Does going off gluten for this initial month make it more likely I'll have a false negative when I eventually get a biopsy?

It is recommended you eat a good dose of gluten for 2-3 months prior to testing.

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Should I stop eating gluten before getting tested?

Antibody tests are only accurate when a patient is on a gluten-containing diet. Those concerned about celiac disease are strongly discouraged from starting a gluten-free diet without having had a firm diagnosis. Any change in the diet, even for as little as a month, can complicate the diagnostic process.

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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

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      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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      My only proof

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    • NanceK
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