Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing The Gut In A Child


Teffer

Recommended Posts

Teffer Newbie

My oldest son is now 6, and was d'xed with a wheat and gluten allergy through the ELISA test and Celiac through suggestive blood test by an environmental doctor. We declined a biopsy because he was very young at the time and started him on a gluten free diet (he's also dairy free). His symptoms were both physical (weight loss, sudden onset bedwetting, constipation/diarrhea, low ferritin and magnesium by blood test) and behavioral (ADHD symptoms, forgetting skills and memorized things like spelling of name, etc.), and they all came about after we all got H1N1 and a dose of Tamiflu. The environmental doctor believed this was the trigger for the Celiac and told us to put him on a gluten-free diet and his body would heal. It's been nearly 3 years, and every minute contamination of gluten brings on every symptom in full force. I feel as though we're constantly preventing and making no strides forward in helping his body heal.

So far, during the 3 week period following exposure, we're doing epsom salt baths to help with magnesium and probiotics to help with the gut, but I have no idea where to go from here. He's fully vaccinated at this point, but has gotten NO antibiotics (other than a whopping huge dose during my labor and his delivery) or any other sort of pharmaceutical since the h1n1. We use organic products on face and body, and homeopathics ONLY. All of my children are also completely food dye free. I'd love to hear even disparate ideas about healing his gut.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mom2J112903 Newbie

If he is a Celiac, he will always be a Celiac and always react to gluten. Celiac disease is life long, there is no cure minus staying away from gluten.

Teffer Newbie

I know that there is no cure for Celiac, but I have read in numerous places that it is possible to heal the gut and help reduce symptoms. He is what this forum would call super sensitive, and despite our best efforts, very often sick or symptomatic. He's only 6, and I have every hope that we can do something to heal the damage.

deb445 Rookie

I find that colloidal silver and Nordic Naturals Omegas help my boys when they've

been struck down. We too, have turned to homeopathics and consume organics when at

all possible. We are a gluten and dairy free household, and have seen dramatic

improvements with all the aforementioned changes in our lifestyle. Boy, was life

different before!

Mom2J112903 Newbie

You will be able to heal the damaged Celia but upon injestion of gluten, the symptoms will return.

SPJandE Newbie

You could also try a probiotic, which helps with all kinds of tummy issues. Culturelle for Kids is dairy and gluten free (and also has no wheat, dyes, flavorings, or preservatives). It comes in powder packets that you empty into a drink. For the baby, we just empty it into a bottle. For the big boys, just put in in a bit of watered down juice.

zsweetgirl Newbie

We've been doing the paleo diet and it seems to be helping. There are also enzymes you can take if you are in a position where you might get some cross contamination. I've used them and they help with the symptoms. You take them 30-40 minutes before you eat. I use them whenever we have company, eat at a restaurant or at a friends house. The enzyme is DPPIV. I know you know this, but with Celiac even cross contamination is dangerous for your child. So the enzyme should be used for those just in case situations, but never to intentionally eat gluten. Homeopathy should also be able to help with the symptoms. I took the celiac nosode and that helped me a lot too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over

    2. - Kirita replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    3. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Recovery from gluten challenge

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    5. - trents replied to Scatterbrain's topic in Sports and Fitness
      3

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,285
    • Most Online (within 30 mins)
      7,748

    Kenny Waites
    Newest Member
    Kenny Waites
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scatterbrain
      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.