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Becoming Skeptical


JonsLoveBugg

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JonsLoveBugg Newbie

Hi everybody!

I've been gluten free for about 2 years now after being sick for about 3 years before that and of course Jo doctor could figure out why.. I had two celiac disease tests done; both came back negative. But after being gluten free I have felt so much better! No more symptoms at all so I feel a gluten free lifestyle was the key.

However, I have been glutened accidentally before a few times and I feel awful and there are sometimes where my husband gives me the "uh oh..." look after we eat something and then decide to read the labels. But I won't get sick...

So I'm wondering if this happens to other people or am I not really gluten intolerant..? Although all of my stomach issues went away almost instantly after I cut gluten from my diet..

Thanks!

Natalie


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pianoland Rookie

If you're feeling good, then I would stick with it! Maybe you aren't sensitive to trace amounts. I think most people with an intolerance don't have issues with cross-contam or small amounts of gluten like people with celiac would.

  • 4 weeks later...
IndiaEileen Newbie

That happens to me. It randomly striked me three days after eating a couple onion rings off my boyfriends plate that It had a wheat flour batter. "Well, did you get sick?"

"Uhm...no I didn't, no."

I really think it might be your body's immune system taking one for the team. It's totally worth it to stay off the gluten's, if not for the reason you know you'll feel good but because you're supporting the lifestyle and people just might take the hint.

Fight the good fight!

MitziG Enthusiast

Yup, reactions can be random. It happens to me and I have biopsy confirmed celiac. You know how sick you were before, don't second guess yourself now!

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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