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Untreated Celiac, Can Affect The Brain And Lifespan


cmoore

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cmoore Apprentice

This is from "Latitudes OnLine" Open Original Shared Link

When someone has a neurological problem, it


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melikamaui Explorer

Thanks for posting this! I sent it to several relatives who still need to get tested.

Bubba's Mom Enthusiast

I've seen this topic written up before, and yet Dr.s seem to be unaware of the gluten-neurological connection?

I was at Mayo Clinic MN 3 weeks ago. I saw a Neurologist for my ataxia, brain fog, cognitive impairment, speech and writing dificulty, short term memory loss, and inabilty to muli-task after inhaling wheat flour several weeks earlier. I was told that there needs to be more study in this area. The connection between gluten and these symptoms have been documented, but they aren't sure why they happen.

I think the consideration of gluten as a cause for neurological sypmtoms may be a while in coming, unfortunately?

Takala Enthusiast

I think the consideration of gluten as a cause for neurological sypmtoms may be a while in coming, unfortunately?

Not if we people with the actual brain damage visible on a scan keeping talking about it. See this thread from April 2012:

beachbirdie Contributor

This is from "Latitudes OnLine" Open Original Shared Link

When someone has a neurological problem, it

IrishHeart Veteran

Thanks for posting this article.

There is much written about gluten and neurological symptoms.

I had many of those symptoms myself. I saw 4 Neuros, one of them telling me flat out the burning parasthesia, neuropathy,muscle pain, weakness and loss of mass, ataxia and cognitive issues were "not a neurological problem" because my Brain MRI and EMGs were "normal" :blink:

If one of them had been celiac-savvy, (and by that, I mean if one of them read a current medical journal once and a while, I might have been DXed a LOT sooner.

Look here:

Open Original Shared Link

squirmingitch Veteran

Thanks cmoore & everyone who posted on this thread. Great info.!


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gifree Apprentice

Yeah, it's definitely disturbing how unaware the medical establishment is of celiac disease...so asking a random practitioner about celiac/cognitive connections is a reach. I was at an event not too long ago hosted by a local GI practice and the presenting GI showed the audience brain images that contained celiac-attributed white matter. He spoke specifically about ataxia and although I asked him if the white matter could be associated with cognitive deficits or other neurological conditions, he didn't really answer my question; not sure if he didn't know or didn't want to scare the audience. I have no doubt that current and future research will produce a full range of cognitive and neurological connections. In fact, I recall reading a while back about celiac cases where plaque and calcium had broken through the blood brain barrier, causing disruptive building, blocking neuronal connections, etc.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
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