Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does This Mean?

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

roxieb73 Contributor
roxieb73
Posted
  • Author

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

It just said negative

MitziG Enthusiast
MitziG
Posted

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

roxieb73 Contributor
roxieb73
Posted
  • Author

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

I will do it than k you Mitzi! I won't have to argue with him. He already thinks we got a false negative. My doctor is pretty convinced Celiac is what my problem is.

Sieben Rookie
Sieben
Posted

Are false negatives that common on the endomysial IGA test?

beachbirdie Contributor
beachbirdie
Posted

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted
  • Author

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

ravenwoodglass Mentor
ravenwoodglass
Posted

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

Once all your testing is done do try the diet no matter what the gene and other tests show. Gene tests are only a small part of the picture as folks can have the associated genes and not have celiac and people can have celiac and not have one of the two most commonly associated genes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,797
    • Most Online (within 30 mins)
      7,748
    Norma athey
    Newest Member
    Norma athey
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
    • Scott Adams
      New onset constant gas

      By Scott Adams · Posted

      First, I’m so sorry you’re dealing with this—constant bloating and gas can be incredibly frustrating, especially when you’ve been so diligent with your gluten-free diet. Since nothing obvious has changed in your routine, a few possibilities come to mind: 1) Cross-contamination or hidden gluten (have you introduced new brands, eaten out more, or tried processed GF foods with questionable ingredients?), 2) New food intolerances (dairy, FODMAPs, or even GF grains like corn/rice can sometimes cause issues over time), 3) Gut dysbiosis (an imbalance in gut bacteria, possibly triggered by stress, antibiotics, or diet shifts), or 4) Non-celiac triggers (like SIBO or fructose malabsorption). You may also want to take choline supplements, as this helps some people. It might help to keep a detailed food/symptom log and try an elimination diet (e.g., cutting dairy or high-FODMAP foods temporarily). Probiotics or digestive enzymes could also offer relief while you investigate.
    • Scott Adams
      Gluten free and oat free bars not sugary?

      By Scott Adams · Posted

      Finding gluten-free and oat-free bars that aren’t overly sugary can be tricky, but there are some great options out there! For your little adventurers, consider GoMacro Kids bars (many are GF/oat-free and lower in sugar), 88 Acres Seed Bars (sweetened lightly with fruit), or The Good Crisp Company’s protein bars (grain-free and not too sweet). For homemade ideas, try simple nut/seed bars with dates, almond butter, and chia—no baking needed! Packaged snacks like Chomps meat sticks, Simple Mills almond flour crackers, or seaweed snacks also work well for hikes. If they like savory, roasted chickpeas or lupini beans are protein-packed and easy to carry. Hope this helps—happy trails!
    • Scott Adams
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Scott Adams · Posted

      Using anti-inflammatories for symptom management after inadvertent gluten exposure can be a helpful short-term strategy, particularly for reducing discomfort like inflammation, pain, or swelling. However, it shouldn’t replace strict adherence to a gluten-free diet as the primary treatment for conditions like celiac disease or gluten sensitivity. While NSAIDs (e.g., ibuprofen) or natural anti-inflammatories (e.g., turmeric) may provide relief, they don’t address the underlying immune response or intestinal damage caused by gluten. Additionally, long-term or frequent use of NSAIDs carries risks, such as gastrointestinal irritation. It’s best to consult a healthcare provider to tailor an individualized plan, which may include digestive enzymes, hydration, rest, and probiotics alongside anti-inflammatories when needed. This article, and the comments below it, may be helpful:    
    • Russ H
      Confused about my results

      By Russ H · Posted

      There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives.  The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
×
×
  • Create New...