Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does This Mean?


roxieb73

Recommended Posts

roxieb73 Contributor

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

roxieb73 Contributor

What else was on the result sheet besides what you posted? Either before or after? They did not give any result.

It just said negative

MitziG Enthusiast

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

roxieb73 Contributor

Well you didn't get a full celiac panel if they only checked endomysial antibodies. They should also do ttg IGA,, ttg IGG, total IGA and Deamidated Gluten Peptides. I would go back to the doctor and insist on the full panel- one test, albeit a specific one, is not enough to rule out Celiac.

I will do it than k you Mitzi! I won't have to argue with him. He already thinks we got a false negative. My doctor is pretty convinced Celiac is what my problem is.

Sieben Rookie

Are false negatives that common on the endomysial IGA test?

beachbirdie Contributor

ENDOMYSIAL ANTIBODY SCR (IGA) W/REFL TO TITER

Does it mean they found the antibody even if the test is negative? If so how can a test be negative if the antibody is present? I was under the impression the only place you see this is with Celiac. Ughhh

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



roxieb73 Contributor

The test is negative. When it says "reflex to titer" it means they will perform dilutions to find out how strongly positive it is, if they find antibodies. If it is negative (they don't find antibodies), they will not perform the dilutions.

They did not do complete testing. You should have the complete panel mentioned by others. Many people with celiac, those who are not sero-negative, will only test positive on one of the tests. Though anti-EMA is supposed to be one of the best indicators of tissue damage, that can be negative in people with celiac. Hope that makes sense!

The negative EMA test doesn't rule out celiac. Thankfully your doc is on board and will test further.

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

ravenwoodglass Mentor

Now it makes sense thank you! I have already had blood drawn for HLA typing and if they come back positive then will have a biposy and repeat antibody tests. I am currently eating gluten in preparation for that. If it is negative then all this testing will come to an end.

Once all your testing is done do try the diet no matter what the gene and other tests show. Gene tests are only a small part of the picture as folks can have the associated genes and not have celiac and people can have celiac and not have one of the two most commonly associated genes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,270
    • Most Online (within 30 mins)
      7,748

    David Kutos
    Newest Member
    David Kutos
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...