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Please Help! Good Food To Have During The Gluten.casein Withdrawals?

lifenadlight

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lifenadlight Newbie
lifenadlight
Posted

I could really do with some help :) please...

I can't find anywhere on the internet where anyone suggests helpful foods during the gluten and casein withdrawals. my boyfriend is going through the casein withrawals at the moment, only 3 days in :( so at least 3 weeks to go.... just figured out that that has been the thing doing him in, as well as gluten and wheat of course (bit of a mine field) now i cant believe i didn't realise earlier. he's been glutened over and over by phony "gluten free" products and all of that, that apparently arent actually reliable, again only just found out. i feel like its an endless cycle of doom and no end in sight, its been almost a year since the first gluten withdrawals! he's horribly depressed as well as all the other physical symptoms and i'm so worried about giving him food that'll agravate the symptoms, any help would be really appreciated. thanks in advance :)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Go with fresh whole homecooked foods. Meat and potatoes, fish, chicken, fruit and veggies etc. I am curious what gluten free foods he having problems with? For some of us stuff like soy or bean flour can be a problem leading us to think we are reacting to gluten when we really aren't.

Tell us what his favorite foods are and maybe someone can be a bit more helpful on that end.

I noticed you are new to the board. Welcome and do read as much as you can here as there is much more to the gluten free lifestyle than just food. For example you need to make sure your lipsticks etc are gluten free and if you are a gluten eater you need to brush your teeth before you kiss. There are many things that the doctors don't tell us when we are first diagnosed which can keep us ill longer.

robertwilburn35 Newbie
robertwilburn35
Posted

I can't explain everything but I do know my body reacts more or less violently to different types of gluten. I am not sure of all of them but soy dosn't usually bother me too much. Wheat and barley will have me laid up for days.

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    • trents
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      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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