Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Periods


jdizzle

Recommended Posts

jdizzle Apprentice

My periods seem to be way worse since I quit gluten. Or at least I think that's the connection.

The pain 'down there' has actually lessened, but I have a whole bunch of new horrible symptoms. I used to get one or two rough days, then plain sailing.

Now I get the full deal for 8 days, with lasting crunchy headache no painkiller will touch, I get feverish and sweaty, depressed, sleepless. I have PMS symptoms 7 days before, then I'm 'on' for 8 days, I'm basically unwell half the month.

Has this happened to anyone else after quitting gluten? it's the only change that coincides with this in my mind.

I heard they improved after quitting! Quite the contrary for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

My periods seem to be way worse since I quit gluten. Or at least I think that's the connection.

The pain 'down there' has actually lessened, but I have a whole bunch of new horrible symptoms. I used to get one or two rough days, then plain sailing.

Now I get the full deal for 8 days, with lasting crunchy headache no painkiller will touch, I get feverish and sweaty, depressed, sleepless. I have PMS symptoms 7 days before, then I'm 'on' for 8 days, I'm basically unwell half the month.

Has this happened to anyone else after quitting gluten? it's the only change that coincides with this in my mind.

I heard they improved after quitting! Quite the contrary for me!

[/quote

Yeah that sounds pretty rough. I know i was anemic and when i went gluten free my period got twice as long...bummer. Anyway, i would totally not hesitate to speak with my physician or gynecologist. Also I would probably keep a diet journal to determine if it is caused by any of your diet changes or alternative foods and drinks you are now eating? How long were you gluten free? Are you using alternatives that your body just does not like? Have you changed any supplements or medicines?

Many things can effect that as im sure you know. As bad as your symptoms are I would say dont settle for torture. You're totally right thats not something that should be accepted as normal or something to just live with.

Adalaide Mentor

After going gluten free my periods have stopped being regular. Until I changed my diet I could predict the timing within hours every month. Now it's every 2 1/2 to 5 weeks which is driving me up a wall. They're still as awful as they always were but nowhere as bad as yours. I don't really have any advice, just a sympathetic shoulder to cry on and to let you know you aren't alone on this one.

sharilee Rookie

My periods seem to be way worse since I quit gluten. Or at least I think that's the connection.

The pain 'down there' has actually lessened, but I have a whole bunch of new horrible symptoms. I used to get one or two rough days, then plain sailing.

Now I get the full deal for 8 days, with lasting crunchy headache no painkiller will touch, I get feverish and sweaty, depressed, sleepless. I have PMS symptoms 7 days before, then I'm 'on' for 8 days, I'm basically unwell half the month.

Has this happened to anyone else after quitting gluten? it's the only change that coincides with this in my mind.

I heard they improved after quitting! Quite the contrary for me!

Both PMS and my periods got worse after quitting gluten. I haven't had gluten since late February 2012. Since then my periods are heavier, PMS is worse and lasts longer. I also noticed that during my period I am unable to tolerate soy and lactose which I can tolerate when I am not having my period. My doctor said it would get better with time as my body heals and my PMS and periods will get better.

Strawberry-Jam Enthusiast

Opposite for me. i used to have pains so bad i couldn't walk, and they'd start 3 days before my period did and stop 3 days after. so i was super irregular, but i always knew before my period came when it was due because my back would hurt like crazy for 3 days beforehand. now i'm super irregular still but i just start bleeding and i don't even notice until it starts. my periods are also a lot shorter, it seems.

although i'm pretty sure my period always gives me D. every time.

EDIT

try eliminating soy if you haven't already. soy has estrogen-like compounds in it which mess with hormones etc. whenever I eat soy, I become self-harmingly depressed within hours. I can't imagine what it would do for things like PMS or period-related symptoms.

sharilee Rookie

Opposite for me. i used to have pains so bad i couldn't walk, and they'd start 3 days before my period did and stop 3 days after. so i was super irregular, but i always knew before my period came when it was due because my back would hurt like crazy for 3 days beforehand. now i'm super irregular still but i just start bleeding and i don't even notice until it starts. my periods are also a lot shorter, it seems.

although i'm pretty sure my period always gives me D. every time.

EDIT

try eliminating soy if you haven't already. soy has estrogen-like compounds in it which mess with hormones etc. whenever I eat soy, I become self-harmingly depressed within hours. I can't imagine what it would do for things like PMS or period-related symptoms.

I did not know that about soy. It would explain why I have so much trouble with it during PMS and my period.

WinterSong Community Regular

Since going gluten-free, mine have gotten much shorter and lighter (to the point where I actually got a little worried). But I'm on a birth control that is supposed to lighten your periods, so maybe now that I'm accepting more nutrients the birth control is working more effectively??? :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ninja Contributor

Since going gluten-free, mine have gotten much shorter and lighter (to the point where I actually got a little worried). But I'm on a birth control that is supposed to lighten your periods, so maybe now that I'm accepting more nutrients the birth control is working more effectively??? :huh:

I had this happen too! Not right away, but a few months after going gluten-free. I would still get bad cramps beforehand, which totally disappeared after eliminating gluten, along with a lighter period. Maybe it has something to do with the inflammation messing with the hormones??

jdizzle Apprentice

That soy thing is really interesting to me, I feel totally sick right now even though I'm nearing the end of my period, in fact I feel sick most of the time, in my gut I mean, and I can never figure out what I've done wrong or what I've eaten that's bad. I felt okay for a while til I started eating this tuna again, and I noticed that it contains soy.

I'm worried cos it seems like everything makes me feel bad in some way, fruit makes my upper abdomen hurt, fatty food or spicy food makes me 'evacuate rapidly', lactose has all the gross effects associated with intolerance, I just ate celery with peanut butter and now feel I could throw up.

How can I be allergic to everything?!

I've been gluten free since february, so the worst symptoms are gone, like dragging abdominal pain, but I still just feel gross and tired nearly all the time.

Ninja Contributor

It takes a long time for the body to heal from all the damage and inflammation gluten/Celiac has caused. It's like a giant wound

Strawberry-Jam Enthusiast

That soy thing is really interesting to me, I feel totally sick right now even though I'm nearing the end of my period, in fact I feel sick most of the time, in my gut I mean, and I can never figure out what I've done wrong or what I've eaten that's bad. I felt okay for a while til I started eating this tuna again, and I noticed that it contains soy.

I'm worried cos it seems like everything makes me feel bad in some way, fruit makes my upper abdomen hurt, fatty food or spicy food makes me 'evacuate rapidly', lactose has all the gross effects associated with intolerance, I just ate celery with peanut butter and now feel I could throw up.

How can I be allergic to everything?!

I've been gluten free since february, so the worst symptoms are gone, like dragging abdominal pain, but I still just feel gross and tired nearly all the time.

man, that sucks. i would suggest an elimination diet for that kind of problem.

but whatever you do, give up the soy for a few months. soy is evil.

dani nero Community Regular

I didn't get periods at all when I was on gluten, and get them regularly with slightly less bleeding now that I'm gluten-free. The only thing I notice about my periods is that they are more painful if I had been glutened somewhere around their time. Sorry that I can't help any more :-( Hope you figure it out!

jdizzle Apprentice

I have an update in case it means anything to anyone who can possibly advise me.

I just noticed an itchy rash on my neck. All I've eaten today is peanut butter and jam on bread, the bread is gluten, dairy and soy free. Then dairy and gluten free chocolates. And lunch was just butterbeans, cos I felt so sick by then I wanted something plain.

Any clue what could have caused the rash?? It may an important piece to the puzzle!

Adalaide Mentor

If you are sharing peanut butter or jam with someone who is a gluten eater, or if they are leftover from your gluten filled days it is quite possible they have crumbs in them. I for one can not resist the temptation to double dip.

dani nero Community Regular

The rash on your neck can be DH (Dermatitis Herpetiformis). You could have been glutened from cross-contamination as Adalaide stated. Do you know though how soon your reactions start by the way? For some it's the same day, and for others it's the day after. I used to react after two days but not it's less. So it could have been something you've eaten yesterday too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.