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I Don't Know If I Should Test For Celiac


AmyWrites

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AmyWrites Newbie

I've been the type with a "weak stomach" all my life. Every few weeks or so, I'd go through a day or two where I would vomit and have diarrea all day. It got better, actually felt GOOD, after a surgery I had for endometriosis, but it's back now.

I've been reading a lot about celiac, since white bread sends me running to the toilet. But frankly, I'm reading about a lot of symptoms, and mine seem not often or severe enough. I can eat pasta well enough, and the only gluten-containing food I've stopped consuming is white bread and red meats... and with some digestive enzymes my doctor gave me, I'm better. I still have, if I eat greasy food or whatnot, some bad symptoms; maybe diarrhea, sulfuric like gas,maybe nausea and stomach pains. But it's not like before. I was diagnosed with IBS some time ago but felt it wasn't accurate. I don't have any of the neurological symptoms listed here, maybe except depression and terrible sleep. I don't know if I should try to test for Celiac as my symptoms are not so severe enough. Opinions?


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roxieb73 Contributor

I look at it this way...... Celiac has so many symptoms it could be the cause and what do you have to lose? Worst that happens is you come back negative. I say go for it.

Cara in Boston Enthusiast

With a diagnosis of IBS, you should at least be tested for celiac. Symptoms can be inconsistent - they can even seem to "go away" for months or years - only to return much worse. I can't really think of a reason NOT to be tested. Just be sure you get all the right tests, or you may rule out celiac when it is actually the real problem - false negatives can just add to the confusion.

Cara

MitziG Enthusiast

You can have NO symptoms and have celiac. Also it is very common for symptoms to wax and wane as you described. Your symptoms sound very much like mine- for the 30 years prior to my diagnosis! Definitely get tested!

MitziG Enthusiast

Also, endometriosis has been strongly linked to Celiac.

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    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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