Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Curious, Sleep Issues - How Long After Gluten?


benj

Recommended Posts

benj Newbie

I discovered I was gluten sensitive in January. I've been gluten free for just over 5 months now.

I lost 35lb within the first 3 months. My joint pain vanished after 48 hours and has never returned. I used to take advil frequently for minor headaches but found I didn't need to any more.... I also had significant problems sleeping for the last 10 years of my life, probably averaging 7-10 nights per month and I noticed that completely went away. In 4 months I had 2 difficult nights and both of them had legitimate reasons behind them.

So I'm curious. Last week I had 3 troubled nights in a row. There was some reason behind 2 of the 3 (lightning with a scared child and pets) but the 3rd night I was awake at 3am for no reason at all. Interestingly some short time before that was also my first definite mistake with gluten. I ate 3 Twizzlers before reading the package to find bleached white flour at the top of the list.

I did not think too much of it at the time and I do not remember exactly when I ate them or when I started having this recent trouble sleeping but they must have been close. SO... I'm wondering if anyone has any idea if my gluten poisoning and sleep issue are related? Does gluten effects on the brain linger longer than other issues like joint pain? Could 3 Twizzlers give me sleeping issues for 3 days?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Gluten can cause ANY of your symptoms to return.

How long they last varies from person to person.

Yep, Twizzlers are a no no!!

I used love those.... :( In fact, when I was very ill (and before I knew I had celiac disease) I used have hubs get me bags and bags of those. Sometimes, it was all I could choke down. Those and sun chips. Little did I know those were keeping me awake all night and causing everything else, too.... :rolleyes:

Like you, I suffered from wicked insomnia for years. It is good to get sleep again, isn't it?

Sorry you got "hit". It will pass.

You are very fortunate your gluten-related symptoms resolved so quickly! Joint pain vanishing in 48 hours?---never happens that fast---not that I have heard anyway. :)

benj Newbie

You are very fortunate your gluten-related symptoms resolved so quickly! Joint pain vanishing in 48 hours?---never happens that fast---not that I have heard anyway. :)

Really? The joint pain was the main reason I decided to try gluten free. I had constant sharp pain in my knee for 4-5 weeks before seeing a doctor who looked at it for 30 seconds and told me I had arthritis... "you're kinda young for arthritis" he said, then told me all I could do was take Advil 4 times a day for the rest of my life.

I then researched gluten free diet for about a week and prepared myself. It was the holiday season so I waited until Jan 1st (seemed appropriate). Jan 2nd my knee felt significantly better and on the 3rd there was no pain at all, and none since. The weight loss and sleep was a bonus I was not expecting.

You know what really surprised me however? 3 months into the diet I was visiting my father and talking about it. He said to me "well that makes sense because you always had trouble with wheat when you were little." I had forgotten all about that but it was true! I felt sick after eating certain pancake mixes, dark wheat bread and certain cereals like wheat checks and wheaties.... even to this day I avoided them but never put two and two together.

IrishHeart Veteran

I look back and my whole life makes sense. Every single problem is related to the celiac/gluten. I had to stop being angry about what happened to me and thinking "wish I had known sooner". I was very ill from celiac disease for many years and was slowly dying, but I'm getting better now.

I am so glad you are feeling better off gluten!

and oh, geesh....where are my manners? Welcome to the forum!! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,856
    • Most Online (within 30 mins)
      7,748

    lyndats
    Newest Member
    lyndats
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.