Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Curious, Sleep Issues - How Long After Gluten?


benj

Recommended Posts

benj Newbie

I discovered I was gluten sensitive in January. I've been gluten free for just over 5 months now.

I lost 35lb within the first 3 months. My joint pain vanished after 48 hours and has never returned. I used to take advil frequently for minor headaches but found I didn't need to any more.... I also had significant problems sleeping for the last 10 years of my life, probably averaging 7-10 nights per month and I noticed that completely went away. In 4 months I had 2 difficult nights and both of them had legitimate reasons behind them.

So I'm curious. Last week I had 3 troubled nights in a row. There was some reason behind 2 of the 3 (lightning with a scared child and pets) but the 3rd night I was awake at 3am for no reason at all. Interestingly some short time before that was also my first definite mistake with gluten. I ate 3 Twizzlers before reading the package to find bleached white flour at the top of the list.

I did not think too much of it at the time and I do not remember exactly when I ate them or when I started having this recent trouble sleeping but they must have been close. SO... I'm wondering if anyone has any idea if my gluten poisoning and sleep issue are related? Does gluten effects on the brain linger longer than other issues like joint pain? Could 3 Twizzlers give me sleeping issues for 3 days?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Gluten can cause ANY of your symptoms to return.

How long they last varies from person to person.

Yep, Twizzlers are a no no!!

I used love those.... :( In fact, when I was very ill (and before I knew I had celiac disease) I used have hubs get me bags and bags of those. Sometimes, it was all I could choke down. Those and sun chips. Little did I know those were keeping me awake all night and causing everything else, too.... :rolleyes:

Like you, I suffered from wicked insomnia for years. It is good to get sleep again, isn't it?

Sorry you got "hit". It will pass.

You are very fortunate your gluten-related symptoms resolved so quickly! Joint pain vanishing in 48 hours?---never happens that fast---not that I have heard anyway. :)

benj Newbie

You are very fortunate your gluten-related symptoms resolved so quickly! Joint pain vanishing in 48 hours?---never happens that fast---not that I have heard anyway. :)

Really? The joint pain was the main reason I decided to try gluten free. I had constant sharp pain in my knee for 4-5 weeks before seeing a doctor who looked at it for 30 seconds and told me I had arthritis... "you're kinda young for arthritis" he said, then told me all I could do was take Advil 4 times a day for the rest of my life.

I then researched gluten free diet for about a week and prepared myself. It was the holiday season so I waited until Jan 1st (seemed appropriate). Jan 2nd my knee felt significantly better and on the 3rd there was no pain at all, and none since. The weight loss and sleep was a bonus I was not expecting.

You know what really surprised me however? 3 months into the diet I was visiting my father and talking about it. He said to me "well that makes sense because you always had trouble with wheat when you were little." I had forgotten all about that but it was true! I felt sick after eating certain pancake mixes, dark wheat bread and certain cereals like wheat checks and wheaties.... even to this day I avoided them but never put two and two together.

IrishHeart Veteran

I look back and my whole life makes sense. Every single problem is related to the celiac/gluten. I had to stop being angry about what happened to me and thinking "wish I had known sooner". I was very ill from celiac disease for many years and was slowly dying, but I'm getting better now.

I am so glad you are feeling better off gluten!

and oh, geesh....where are my manners? Welcome to the forum!! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.