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Anyone In Cleveland?


NickMcKinnis

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NickMcKinnis Rookie

I am still pretty new to this site, and was wondering who might be in the cleveland area.


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mamaw Community Regular

Hi

I'm not fromCleveland but seem to be in that area some... They have a great gluten-free support group...

NickMcKinnis Rookie

Hi

I'm not fromCleveland but seem to be in that area some... They have a great gluten-free support group...

I have heard that there was a support group but I don't know much about it. Do you by chance know where I could find out more info about it?

Thank you!

mamaw Community Regular

Open Original Shared Link

They also are having a vendor fair September 9th...Also make a trip to Tommy's in Ridgeville for the gluten-free buffet!!!!

In Canton another short trip is the Raisin Rack that has a large large selection of gluten-free......Denise the gluten-free manager runs a gluten intolerance group there... She is a friend of mine...

Cindy Kollar Klass I believe runs the Cleveland Group, also a buddy of mine!!!

hth

NickMcKinnis Rookie

Thanks for taking the time to give me that information, I will be sure to check into it.=)

mamaw Community Regular

welcome....

StephanieL Enthusiast

Open Original Shared Link

This is another group in the area.

Welcome!


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  • 2 weeks later...
sharilee Rookie

I am still pretty new to this site, and was wondering who might be in the cleveland area.

Welcome, I am in Akron. I see others have already posted the links to the Cleveland area support groups, they are great groups.

kaitlynrose Rookie

I am from rural Northeastern Ohio. There seems to be NO celiacs in my area! I only know one, and she happens to be my younger cousin... I used to shop at the Raisin Rack, but the drive is just a bit too long. Too bad, because their selection is wonderful. Now I shop at Seven Grains in Tallmadge, and I love it. Does anyone happen to know if there is a group for teens with Celiac in our area?

  • 2 months later...
amymarie124 Newbie

Hi,

I am new to this site as well, and from the Akron area. Was wondering if there is a support group around the akron area?

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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