Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Balance

Danijela

Recommended Posts

Danijela Contributor
Danijela
Posted

Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bluelotus Contributor
bluelotus
Posted

I used to get dizziness and ringing in my ear ..... seemed to be associated with my headaches, which, I now know, were caused by a gluten reaction. I'd like to see what others have to say as well. I hope it clears up for you!

tarnalberry Community Regular
tarnalberry
Posted

I believe that there has been a reported connection between balance issues and the central nervous system manifestations of celiac disease in some people. Others on the board have discussed this before, and I'm sure they'll have some useful information for you soon! :-)

Nantzie Collaborator
Nantzie
Posted

If it does turn out that I have celiac disease, then balance would have been my first, most obvious symptom. I had an incident of heat exhaustion and then I got mono in the same 3-4 month period, then after that, I could only stand a certain way if I didn't have someone to hang on to. I thought it was secondary to the heat exhaustion. My balance got a little better over time, but it's still pretty bad.

Nancy

nikki-uk Enthusiast
nikki-uk
Posted

Yes,my husband definitely had a problem with his balance.

After standing he would have to stand and 'sway' for a minute while he waited for the dizzyness and nausea to pass.Sometimes though it would come over him out the blue.My husband compared it to 'almost fainting'.

Now that he seems to be recovering on gluten-free diet he hasn't had any spells for ages.

Good luck with your results!

ravenwoodglass Mentor
ravenwoodglass
Posted
Hey Everyone!

I just had a celiac blood screening done on Monday I haven't received the results yet, however I was wondering if anyone else has experienced any issues with balance. I find at times (more often at night) I have a real problem with balance and find myself sort of swaying or feeling like i'm going to fall.

Has anyone else experienced this???

Thanks

Danijela

<{POST_SNAPBACK}>

Yes, It is called gluten ataxia, this was my main symptom other than constipation and learning problems as a kid. It got so bad with me that I was thought to have MS. It is also the first sign that I have gotten into something I shouldn't have. The ataxia hits within minutes of injestion, depression and DH blisters the next day then the GI symptoms the next. Being gluten-free stopped the ataxia within a very short time. I was able to give up my canadian canes within 2 months. They are now a sculpture of sorts in the corner of my bedroom. And the best part is no one thinkds I drink anymore, people (including one neuro) thought I was hiding an alcohol problem. They never believed me when I told them I didn't drink more than 2 non-alcoholic beers on a Saturday night. Of course now I know I was geting drunk effects from the gluten in the beer. I can drink half a bottle of wine and not have the same hangover and drunkenness I used to get from 2 non-alcoholic beer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

      If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what...
    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy....
    4. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    5. Scott Adams
      0

      Can Your Gut Microbiome Predict Celiac Disease Years in Advance?

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,100
    • Most Online (within 30 mins)
      7,748
    Pat Relyea
    Newest Member
    Pat Relyea
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      New issue

      By Jmartes71 · Posted

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      Insomnia help

      By trents · Posted

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.