Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Esophagogastroduodenoscopy

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

Any tips? I know with my double DQ1 status chances that it is shows anything are slim but I have other reasons to have it done like vomiting blood. So wish me luck.

Roxie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

You have all the luck I can throw your way. I hope it solves some of your issues. Be well.

MitziG Enthusiast
MitziG
Posted

EGD is a piece of cake. (Gluten free cake cuz if it was real cake it would be enjoyable!)

But it is no big deal- be over before you know it. I didn't even have a sore throat after. I did have a lot of belly pain for a few days though (irritated duodenum I was told when I went to the ER)

Make sure to confirm the number of biopsy samples the GI will take before you go under! Bare minimum of 4- 8-16 is recommended. Most only do 1 or 2, and a few think they can just "look around" and rule out celiac. (Mine was one of those. I grudgingly got him to agree to take 4 samples IN the OR! He told me he cud dx celiac by looking! As it turned out, in my case he cud. But when he did my daughters, he was shocked because her intestines looked perfect, but the biopsies I forced him to do showed celiac. Ha! Vindication!)

Anyway...just don't be afraid to be firm about what he is going to do. You would be shocked how many people go under for a celiac check and the doc ends up not doing it cuz he thinks he finds out "the real probblem" this happened to both my nieces and a good friend! So they had surgery for nothing and ended up on PPI's because the doc dx barretts esophagus in all of them. Duh! Celiac can cause Barretts!

Anyway...hope yours goes very well and they get to the bottom of your problem!

Cara in Boston Enthusiast
Cara in Boston
Posted

Bring someone with you to talk to the doctor when you are done.

I was a babbling idiot after the sedative wore off so I have no idea what I said to the doctor and not really sure what he told me . . . I had to call back the next day to get information/instructions, etc.

Cara

squirmingitch Veteran
squirmingitch
Posted

And Roxie, between now & then gorge yourself on all the gluteny things you love the best. Make a total pig of yourself! Maybe it will make you so sick of those food items that when you go gluten-free you'll never miss them & will in fact gag at the very thought of them.smile.gif

A little psychological warfare never hurt anyone.laugh.giflaugh.giflaugh.gif

roxieb73 Contributor
roxieb73
Posted
  • Author

You have all the luck I can throw your way. I hope it solves some of your issues. Be well.

Me too thank you so much! :D

roxieb73 Contributor
roxieb73
Posted
  • Author

EGD is a piece of cake. (Gluten free cake cuz if it was real cake it would be enjoyable!)

But it is no big deal- be over before you know it. I didn't even have a sore throat after. I did have a lot of belly pain for a few days though (irritated duodenum I was told when I went to the ER)

Make sure to confirm the number of biopsy samples the GI will take before you go under! Bare minimum of 4- 8-16 is recommended. Most only do 1 or 2, and a few think they can just "look around" and rule out celiac. (Mine was one of those. I grudgingly got him to agree to take 4 samples IN the OR! He told me he cud dx celiac by looking! As it turned out, in my case he cud. But when he did my daughters, he was shocked because her intestines looked perfect, but the biopsies I forced him to do showed celiac. Ha! Vindication!)

Anyway...just don't be afraid to be firm about what he is going to do. You would be shocked how many people go under for a celiac check and the doc ends up not doing it cuz he thinks he finds out "the real probblem" this happened to both my nieces and a good friend! So they had surgery for nothing and ended up on PPI's because the doc dx barretts esophagus in all of them. Duh! Celiac can cause Barretts!

Anyway...hope yours goes very well and they get to the bottom of your problem!

That is great advice. Thank you for sharing your story too. I really don't expect the biopsies to turn up anything. From what I have read it is VERY RARE for a DQ1 to have villi damage.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


roxieb73 Contributor
roxieb73
Posted
  • Author

Bring someone with you to talk to the doctor when you are done.

I was a babbling idiot after the sedative wore off so I have no idea what I said to the doctor and not really sure what he told me . . . I had to call back the next day to get information/instructions, etc.

Cara

Hahaha :D Thanks Cara got it covered my mom is a nurse and she is taking me. ;)

roxieb73 Contributor
roxieb73
Posted
  • Author

And Roxie, between now & then gorge yourself on all the gluteny things you love the best. Make a total pig of yourself! Maybe it will make you so sick of those food items that when you go gluten-free you'll never miss them & will in fact gag at the very thought of them.smile.gif

A little psychological warfare never hurt anyone.laugh.giflaugh.giflaugh.gif

This I will definately do! :P Going to say my goodbyes to my favorite Lo Mein tonight. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    2. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    3. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    4. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    5. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748
    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.