Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Complications?


karkar892

Recommended Posts

karkar892 Newbie

32 year old healthy woman, possible Celiac.

Have been off gluten for about 2 months and stomach pain resolved. However, went on a "gluten-binge" at an event about 2 weeks ago. Since then I've had (in the following order): Frequent urination, low-grade fever, abdominal and pelvic pain, fatigue, mental fog. Most of these have resolved. Had pretty severe constipation for about a week (only went twice) Last Wed I was in the ER for chest pain in the center of my chest (like a fist). Pain moderate and somewhat diffuse. Saturday I was back in ER for squeezing type pain in left chest, left upper arm, and left side of neck. Diagnosed with pre-ventricular contractions (PVCs) of unknown origin. Wearing halter monitor for 24 hours and have stress echo scheduled.

Still no diagnosis. Could this all have started from the gluten binge? Can celiac impact heart like this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Raven815 Rookie

I don't know, but I am 49 years old, just dx'd and I had triple bypass heart surgery at 42 years old. Coincidence? I wonder. I'll pray for you.

Laura :huh:

IrishHeart Veteran

Your symptoms sound like they are gluten-related. (and I had all the ones you list, including the pain in my chest)

Celiac disease is associated with MANY health problems and involves many organs: heart, thyroid, liver, kidneys, the skin. It affects the brain in ways that are many and varied. I wore a holter monitor 5 times in the last 20 years for erratic heart beat, a-fib and intense pounding, yet my EKG is always normal.

Off gluten, it is, essentially, resolved. But I still have heart palps and a sudden weakness in my body. My doc still watches me as both my parents had/have a-fib and my Dad ( a celiac if there ever was one) required an aortic heart valve transplant.

There are many Pub Med articles that show a relationship between heart disease and celiac. (just google and you will find them)

Here are the cardio symptoms listed in Recognizing Celiac Disease:

CARDIOVASCULAR SYSTEM PROBLEMS

Disorders of the heart and blood vessels.

Angina Pectoris

Aortic Vasculitis

Atherosclerosis

Cardiomegaly

Coronary Artery Disease

Easy Bruising (Ecchymosis)

Hypertension

Idiopathic Dilated Cardiomyopathy

Nosebleeds, Unexplained

I always say this to people who ask me if gluten is their problem:

If you go off gluten for a while and then reintroduce it and you have major debilitating symptoms, then yes, you may have a gluten issue.

You said you are a "healthy 32- year -old woman"

My first question is: what made you go off gluten in the first place ?

christianmom247 Explorer

Wow--I never even thought about a possible connection here! A couple days before I got my official celiac diagnosis, I had a sudden fainting/seizure spell where my blood pressure went down so low it wouldn't even register! So far they haven't been able to find a cause--my heart valve isn't the best, but not THAT bad. I also have high blood pressure even though my weight is normal and my diet very healthy, no drinking or smoking, etc.

Seems there's so much about celiac that they still don't know! :-\

Bubba's Mom Enthusiast

32 year old healthy woman, possible Celiac.

Have been off gluten for about 2 months and stomach pain resolved. However, went on a "gluten-binge" at an event about 2 weeks ago. Since then I've had (in the following order): Frequent urination, low-grade fever, abdominal and pelvic pain, fatigue, mental fog. Most of these have resolved. Had pretty severe constipation for about a week (only went twice) Last Wed I was in the ER for chest pain in the center of my chest (like a fist). Pain moderate and somewhat diffuse. Saturday I was back in ER for squeezing type pain in left chest, left upper arm, and left side of neck. Diagnosed with pre-ventricular contractions (PVCs) of unknown origin. Wearing halter monitor for 24 hours and have stress echo scheduled.

Still no diagnosis. Could this all have started from the gluten binge? Can celiac impact heart like this?

If I get a small dose of cc, one of my first symptoms is throwing PVCs. I've gotten chest pain that radiated to my jaw, arm, and back too.

Before my Dx I had a bad chest pain episode and was taken by ambulance to the ER. My blood pressure was sky high. They did a heart cath and found no blockages. My EKG looks normal unless I'm having PVCs at the time. They had no explanation for the cause of it.

My hubby, who I suspect has Celiac had a nearly fatal heart attack at the age of 50.

My cousin, who I suspect has Celiac has had open heart surgery and is currently on a heart transplant waiting list.

Now that I'm gluten-free I only get heart symptoms if accidentally getting gluten by cc.

mushroom Proficient

I just last week had an ablation procedure for atrial fibrillation which I trace back directly to food reactions. It has been my major food problem. Used to cause fainting initially. I cannot state with certainty that it is gluten; I believe it to be lectins (a different kind of protein) that I react to.

peeptoad Apprentice

I get PVCs even when I haven't been glutened... although so many things can be connected to the consumption of gluten that it wouldn't surprise me if the two were connected.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

recently learned that my blood pressure had been in 2007 as high as 180/115, My pulse was almost undetectable at times. I remember a nurse having trouble with that in my tiny second grade arm. Later symptoms included heavy periods, fluctuating weight gain and loss, water retention, intestinal irritablility, frequent urination, extreme thirst, skin numbness and temperature flushes. My blood pressure would plummet when I went from laying down to standing. In other words I was in serious trouble physically.

This condition was reversed by supplements that helped make up for nutrients I was deficient in. We did not know I had Celiac, though.

I just bought a copy of Gluteen-Free Living. There was a listing of Auto-immune diseases. "Cardiomyopathy is an inflammatory disorder of the heart=muscle." The kind assoicated with Celiac most often is congestive cardiomyopathy. The muscles of the heart swell and the heart gets weak. It states that a gluten free diet helps the heart to function better.

I expect that I will have some ineviditable consequences of living with 30 years of gluten intolerance or more. I expect to be amazed at the design of the body going forward and heal as best I can.

Lucy Lastic Newbie

If I get a small dose of cc, one of my first symptoms is throwing PVCs. I've gotten chest pain that radiated to my jaw, arm, and back too.

Before my Dx I had a bad chest pain episode and was taken by ambulance to the ER. My blood pressure was sky high. They did a heart cath and found no blockages. My EKG looks normal unless I'm having PVCs at the time. They had no explanation for the cause of it.

My hubby, who I suspect has Celiac had a nearly fatal heart attack at the age of 50.

My cousin, who I suspect has Celiac has had open heart surgery and is currently on a heart transplant waiting list.

Now that I'm gluten-free I only get heart symptoms if accidentally getting gluten by cc.

That's interesting. I didn't know what PVC was until after I read this and looked it up but I have had skipped heart beats and palpitations for the last 20 years which is the same length of time I have had IBS. They seem worse when my intestines and stomach are flared up too. Wow.

karkar892 Newbie

Update:

Blood shows potassium and magnesium right on the dot for lowest possible level of "normal" but perhaps that is low and not normal to me bc of malabsorption?

Stress echo normal. Kicked up 1000 pvcs while on halter. Still having symptoms....

mushroom Proficient

Update:

Blood shows potassium and magnesium right on the dot for lowest possible level of "normal" but perhaps that is low and not normal to me bc of malabsorption?

Stress echo normal. Kicked up 1000 pvcs while on halter. Still having symptoms....

Lowest possible level of normal is not "normal". You need to really up your electrolytes, keep a 4:1 ratio of potassium to sodium,for the sodium/potassium pump to work properly, and make sure that your magnesium is getting into the cells, not just between them. Can't stress enough how important good levels of K and Mg are. There is a test called the Exatest to check your intracellular magnesium. When I find out how to get it I will let you know - I am on its path :ph34r:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...