Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymes? Probiotics? B-12?


Marie1976

Recommended Posts

Marie1976 Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PNW Rick Newbie

Hi Marie. I am in your boat. Haven't slept well for months now.

I take a b12 stress complex by Twin Labs. 3x daily

I take a refrigerated probiotic with a 15billion count. once at night

I take a quality multi. 3x daily I use Natures Way Alive Max Potency

10K UI of Vitamin D

3K IU of Vitamin C.

1K IU of Vitamin E

I'm looking at 1-2 years before my GI is healed, and it might not ever fully heal. Time will tell.

I believe celiac makes your immune system weaker, if you're very fatigued read up on chronic fatigue syndrome.

I'm moody as heck too, I believe this is due to sleep deprivation. I'm finally getting a bit over 5 hours of sleep a night, I was only getting about 3 on average at my worst.

I use aroma therapy and sound therapy for my sleep and it's helped a lot. Read up on making your bedroom sleep friendly. Read up on breathing and relaxation exercises. All of this helped me gain a couple hours of sleep a night and I'm starting to get a bit more as time goes on.

Melatonin or Tryptophan are natural sleep aids. I have melatonin at home and am going to try it this weekend.

Sleepytime tea might help too. The one i have has valerian in it and that is also a natural sleep aid.

Bubba's Mom Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Marie1976 Enthusiast

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Hmmm. Interesting. My endo did show a lot of damage apparently so duodenum damage seems like a possibility. I think I'm going to have to try some probiotics anyway since I just started taking antibiotics for this sinus infection. Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    3. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    4. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Fiber Supplement

    5. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,346
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
    • Trish G
      Wow, that's alot of info, Thanks!!!! I had my intake with Nutrionist where we went over basics and then will have follow up where we will talk about all the questions I've come up with (including the fiber question and so many more). I'll talk to her about the info you provided as well.  Thanks again (newbie here 😀)
    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.