Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymes? Probiotics? B-12?


Marie1976

Recommended Posts

Marie1976 Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PNW Rick Newbie

Hi Marie. I am in your boat. Haven't slept well for months now.

I take a b12 stress complex by Twin Labs. 3x daily

I take a refrigerated probiotic with a 15billion count. once at night

I take a quality multi. 3x daily I use Natures Way Alive Max Potency

10K UI of Vitamin D

3K IU of Vitamin C.

1K IU of Vitamin E

I'm looking at 1-2 years before my GI is healed, and it might not ever fully heal. Time will tell.

I believe celiac makes your immune system weaker, if you're very fatigued read up on chronic fatigue syndrome.

I'm moody as heck too, I believe this is due to sleep deprivation. I'm finally getting a bit over 5 hours of sleep a night, I was only getting about 3 on average at my worst.

I use aroma therapy and sound therapy for my sleep and it's helped a lot. Read up on making your bedroom sleep friendly. Read up on breathing and relaxation exercises. All of this helped me gain a couple hours of sleep a night and I'm starting to get a bit more as time goes on.

Melatonin or Tryptophan are natural sleep aids. I have melatonin at home and am going to try it this weekend.

Sleepytime tea might help too. The one i have has valerian in it and that is also a natural sleep aid.

Bubba's Mom Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Marie1976 Enthusiast

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Hmmm. Interesting. My endo did show a lot of damage apparently so duodenum damage seems like a possibility. I think I'm going to have to try some probiotics anyway since I just started taking antibiotics for this sinus infection. Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,992
    • Most Online (within 30 mins)
      7,748

    Elizabeth xxx
    Newest Member
    Elizabeth xxx
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.