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Enzymes? Probiotics? B-12?


Marie1976

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Marie1976 Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(


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PNW Rick Newbie

Hi Marie. I am in your boat. Haven't slept well for months now.

I take a b12 stress complex by Twin Labs. 3x daily

I take a refrigerated probiotic with a 15billion count. once at night

I take a quality multi. 3x daily I use Natures Way Alive Max Potency

10K UI of Vitamin D

3K IU of Vitamin C.

1K IU of Vitamin E

I'm looking at 1-2 years before my GI is healed, and it might not ever fully heal. Time will tell.

I believe celiac makes your immune system weaker, if you're very fatigued read up on chronic fatigue syndrome.

I'm moody as heck too, I believe this is due to sleep deprivation. I'm finally getting a bit over 5 hours of sleep a night, I was only getting about 3 on average at my worst.

I use aroma therapy and sound therapy for my sleep and it's helped a lot. Read up on making your bedroom sleep friendly. Read up on breathing and relaxation exercises. All of this helped me gain a couple hours of sleep a night and I'm starting to get a bit more as time goes on.

Melatonin or Tryptophan are natural sleep aids. I have melatonin at home and am going to try it this weekend.

Sleepytime tea might help too. The one i have has valerian in it and that is also a natural sleep aid.

Bubba's Mom Enthusiast

I posted this on another category already and someone suggested I cut out soy for a while, which I think I will do (but will be a challenge since I'm vegan and eat a lot of tofu), but in the meantime, I've been researching different things that could help me:

I read that enzymes and probiotics can help with bloating which I am still having after all this time. Anyone else get bloated and burp after eating? I wake up with a flat (well, relatively speaking, ha ha) belly and then by the end of the day on some days I look like I'm pregnant. I do eat soy yogurt right now, with acidophilus etc., but I've read that some people are getting sick ("die-off"?) after starting probiotic pills so I'm a little hesitant to try...

Which would be better to try first? Enzymes or probiotics?

I've also read that sub B-12 can help with moodiness (I'm really irritable lately). I put nutritional yeast (a vegan B vitamin supplement) in my smoothies occasionally. Is that enough? Or do I need a daily B12?

Also, I'm taking l-glutamine powder which I can't tell if it's really helping. Sometimes it seems like it is and sometimes not.

Any opinions/advice appreciated! Thank you! :)

P.S. I have had a cold for about two weeks, I am operating on a sleep deficit as I was awake all night with a sinus headache/fever. Does celiac make your immune system weaker? Why can't I kick this? :(

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Marie1976 Enthusiast

If you have damage in your duodenum, where the hormone CCK is made, you may not be digesting your food well? CCK tells your gallbladder to squeeeze bile and pancreas to release digestive enzymes when you eat. The fact that you are bloating would suggest your food is fermenting, rather than getting broken down as it should.

Taking a dgestive enzyme supplement really helps, and probiotics do too. Probiotics are the "good bacteria" that help digest food and they help your immune system too. The good bacteria is what is in yogurt, but supplements have much higher numbers. It's a good idea to supplement with a capsule to ensure you're getting a good dose. Your stomach acid *could* kill off the good guys in your yogurt.

Good bacteria crowds out "bad bacteria" and yeast that like to take over your small intestine when it isn't healthy.

Hmmm. Interesting. My endo did show a lot of damage apparently so duodenum damage seems like a possibility. I think I'm going to have to try some probiotics anyway since I just started taking antibiotics for this sinus infection. Thanks!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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