Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Selfish/lazy To Stay In Bed?


Strawberry-Jam

Recommended Posts

Strawberry-Jam Enthusiast

current symptoms: intense fatigue, bleeding/sore gums, headache, blurred vision, stiff neck, muscle pains, emotional.

I've been sleeping or otherwise in bed on my laptop for three days now. I have no idea what "got" me but i think it was the gluten-free soup and bread at the little crumby cafe I risked eating at in Oxford. I didn't trust them with CC to save my life but was hungry and with company so took the risk since the ingredients themselves were all fine. . .

I want to cycle for 30 days straight in about eight days. (been planning for months.) haven't trained properly at all and this is cutting in to my preparation time. I also have to clean up this flat and get ready for the trip (if I don't postpone it, which I might)

... plus I have art I promised to make for people, writing to do, but my head hurts at an unable to think kind of level

every day I spend in bed without exercising or accomplishing anything makes me feel like a fattening lazy slob worthless human being and I'm lonely and want to shout and scream that gluten is poison and the world is dying.

luckily, no reflux, which was usually my major symptom?? in fact, nothing gastrointestinal at all except mild constipation and gas at first which is gone now. bit weird. but I know I'm not sick with a virus or something because no flu symptoms, no fever. congestion at levels it's been at for weeks.

seems like my autoimmune symptoms change every week (well every time i get sick it's different)

how do you ever know what's going on, what got you, how paranoid you have to be and when you can relax and when will i ever stop wanting to throw up when i think of food? when will i stop wanting to scream and kick donut stands over in the grocery store? throw bread down the aisles in rage? (actually did this once when they put gluten bread in the gluten free section, I threw it at the regular bread and stormed off)

HOW LONG DOES IT LAST. oh man I'm not going to have D for a week again like i did last time am i? that reaction was delayed by like 7 days it seemed. this reaction started after 1 day if my calculations are correct (imcac). guess i will know over the weekend

god this poetry is vile is it not


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

mmm, yes, selfish. You should be out at the mall, screaming at people to stop poisoning the world, dropping bloody tissues, and groaning to make your point. This is your supreme chance to truly make the world understand how awful it is to be glutened and you're wasting it by lounging about in bed writing bad poetry.

Or just accept that you are healing your body, which is really hard work. Realize that every minute you give yourself to recover means that much more energy for your trip.

And next time bring a friend with a video camera when you go bread shopping. :)

Skylark Collaborator

Ugh, sounds like depression is a big gluten symptom for you. Forgive yourself for being sick and needing rest! I hope you feel better soon.

MitziG Enthusiast

Well, my two kids have been fending for/ feeding themselves for 48 hours, the laundry is piled up, the dishes piled up and the place looks disgusting- all because I was starving and took a chance on a protein bar that was gluten free- but processed on equipment with wheat....ok...confession: I ate TWO of them.

Getting out of bed and being mom isn't an option. So...yes, I too feel guilty and lazy. But oh well, nothing you can do.

Hope you feel better in time for your trip!

ravenwoodglass Mentor

So sorry you are feeling so badly right now. It sounds like you have a lot on your plate and getting glutened isn't helping you to accomplish all you want or need to do. You are not selfish or lazy. You have an autoimmune disease that you are fighting. Do what you can and forgive yourself for what you can't.

If you haven't been able to train for the 30 straight days of bike riding don't beat yourself up if you need to put off the trip. Putting it off is better than pushing a still healing body beyond it's physical limits.

I do hope you get over being glutened soon. Do what you feel you can do, spend a bit of time outside if you can and keep in mind that this will pass and you will feel better before too long.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.