Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introduction


Huggenkiss27

Recommended Posts

Huggenkiss27 Rookie

This looks like the place to introduce myself before I start posting all over the place and people are wondering who I am. My name is Amanda, 28, currently living in Houston, Texas. I do environmental work in the gas and oil industry. I got my undergrad in watershed science at colorado state and along with working full time I am getting my Masters at Texas A&M. I've got a great supportive boyfriend and we've got two dogs that are on grain-free diets because my golden retriever is allergic. I love outdoor activities like camping and hiking so I'm trying to figure out how I ended up in Houston :rolleyes:

I have had health "problems" for the last 15 years or so. As I'm sure most are familiar with I'd say the typical Celiac type symptoms. When I was 20 I was tested for Celiac, among other things, and was told by my awful doctor that I just had the most severe case of IBS he'd ever seen and I just had to deal with it. His suggestion was to take 2 immodium before every meal. I was heart broken and ended up gaining about 75 pounds by the time I was 23 and graduated college. After college I took a job in a very small mountain town and had a complete life style change. There was no fast food and everyone ate very healthy. I wanted to lose all the excess weight so unknowningly I went almost gluten free and I felt better. I lost 80 pounds and felt great. Then I got transferred to Houston about a year and a half ago. The lifestyle here is very very different. Lots of eating out and meeting for drinks. Slowly I started feeling awful again and spending more and more time in the bathroom plus I've put on about 20 pounds. I just wasn't feeling good either; tired, headaches, body hurts, crabby, mouth sores, and the weirdest mucous production that I don't even want to get into. Then a few months ago I started having awful stomach pains. I went to the doctor and after rounds and rounds of tests, poking, and prodings here I am- not 100% sure I have or don't have celiac but on a wheat/gluten free diet. It's been about 2 weeks now and I'm already noticing a difference in my bathroom habits and stomach pains. My boyfriend and I live together and he is VERY supportive. We're moving at the beginning of August and the new house will be gluten free. Over the weekend he went though the pantry and fridge to seperate all the gluten containing food out to make sure he eats it all so we don't have to trash it when we move.

Thanks for taking the time to read and I look forward to surfing the forums, learning a lot, asking questions, and getting to know you all here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

deltron80 Rookie

Welcome to the forums! B)

Huggenkiss27 Rookie

They did do the bloodwork and it came back negative. I went gluten free right after my endoscopy/coloscopy because I figured that was as clean as my guts will get! I get the results back from my biopsies this Thursday. Thanks for the advice on the cupboards; I didn't even think about that!

The High Park fire is awful. I grew up in the Loveland/Fort Collins area and have many friends who have also felt the effects of the fire. My brother will go out with the fire crews but right now they are so short handed that when he goes to the offices there isn't even anyone to assist him to get on a crew!

Welcome!

Glad you are finding something that helps. I hope they did the Celiac blood work before you went gluten-free?

My son will be a sophomore at CSU this year! He loves it. However, he and his friends are devastated by the High Park Fire damage. All the favorite CSU handouts for biking, hiking and camping are destroyed. Some of his friend that stayed or live nearby have gone to fight the fires. He is stuck here in Kansas City.

In your new place, vacuum out the drawers. Then wipe good with a wet paper towel. Crumbs have a way of dropping into the not quite closed drawers.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.