Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Having Reactions Like Gluten In The Morning And Miday And Don't Know Where To Turn.


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

Today I ate a protein shake and gluten-free o's. As soon as I had to go to the store with my kids, I had to go again. I had to go again at the store, barely making it. At first I feel nautious and then I have to poop. I just took 2 imodium. I haven't had gluten. I just don't know. I had an Amys tv dinner last night and cottage cheese. I also had some coconut died. Should I try to find a diatitian to help me? I'm not sure it would be covered by our insurance. I just hate feeling anxiety like I'm going to get sick in the car. It is the worst. Should I try a certain diet, Palio or I have no idea. I'd love ideas of what to aliminate. The protein shake was soy and diary. Do some people have more trouble with soy than diary? I also ate a big salad yesterday. Was that too much? I would love your thoughts. Thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

There are folks that do react to Amy's because of CC issues. If your new to the diet you should be going with more whole foods and less processed.

Soy and dairy are also things that some of us have issues with.

You may want to go with more whole foods and keep a symptom and food log. Reactions can be delayed so it is helpful in seeing a pattern.

I hope you feel better soon.

mommyto2kids Collaborator

No I've been on the diet for a year. Most of the time I'm ok. This last week I've had some symptoms and today was pretty bad. I also had a gluten-free donut last night. Sometimes I react to them, such a bummer because they are so good. I will try to start writing things down. But who could help me with it from there?

dilettantesteph Collaborator

I figured it out by keeping a food diary. I kept track of not only what I ate, but what brands they were. Some celiacs are sensitive to lower levels of gluten than others. Some of us have problems with cc from shared facilities and some of us don't. Some of us have other food intolerances. A food/symptom journal was invaluable for me. I wish you the best with figuring it all out. We are all different, though there are some commonalities and finding people who react like you do can be very helpful. It can also be helpful to keep track of amounts eaten, cc is additive.

Juliebove Rising Star

My first thought would be the Amy's. But... You could also have a food allergy or intolerance. I am intolerant to several foods. Just a slight amount of egg or dairy will give me symptoms like you describe. Before you do anything else, you might want to keep a food diary. Just buy yourself a cheap notebook and write down everything that you eat. Then if you have a reaction, write that down and the time as well. My reactions are much delayed. So they often occur about 16 hours after I eat the offending food.

tom Contributor

No I've been on the diet for a year. Most of the time I'm ok. This last week I've had some symptoms and today was pretty bad. I also had a gluten-free donut last night. Sometimes I react to them, such a bummer because they are so good. I will try to start writing things down. But who could help me with it from there?

I too found out a lot w/ a food/symptom diary. It helps to be eating more simply, or you may only narrow down the issue to "one or more ingreds in this 3 inch list".

So, gluten-free for a year and mostly ok is a pretty good scenario for the diary to be helpful.

Was that the 1st time you tried the protein shake or that particular type of Amy's dinner?

Btw, if you use a smartphone, it's pretty handy for the diary when wondering what happened last time Product/Food X was eaten. Cntl-F search "food x" and Bam, I'm reading it.

Also, if this week is the worst of a whole gluten-free year, did a neighbor just get a hay delivery? Or if you have a pet, made a change in petfood? Or something else change besides ingestibles? Worth thinking about if this week worst in a yr.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.