Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newby From Uk

flowerqueen

Recommended Posts

flowerqueen Community Regular
flowerqueen
Posted

Hi everyone! I was diagnosed as Coeliac in November last year by having biopsies at hospital after a L--O--N--G drawn out and exasperating time. I also have Diabetes, and an under-active thyroid, nerve pain due to spine degeneration, IBS and dairy intolerant. I have managed quite well since going gluten free, but recently my internal 'shakiness' and muscle weakness have returned. (last time the doctor I saw said it was due to very low ferritin levels and given iron to take). I went to see a different doctor this morning who said that low ferritin levels should not have caused this shakiness and asked if I suffered from anxiety :angry: I felt patronised as I know this isn't what caused the problem. She has arranged for me to have blood tests on Wednesday to re-check thyroid, ferritin and vitamin D levels etc.

What I would like to know ... is it normal to have these 'blips' in the first year of being diagnosed? Also have others had problem with muscle weakness? I am very careful what I eat (in UK they do not think inhaling wheat dust or using lipstick products containing wheat should cause a problem, and finding alternatives is very difficult). I feel medicine is more advanced in this field in USA and wondered what others' on the forum's views are?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,797
    • Most Online (within 30 mins)
      7,748
    Sandra LC
    Newest Member
    Sandra LC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      My journey is it gluten or fiber?

      By olivia11 · Posted

      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      Build muscle back feeling weak?

      By Rogol72 · Posted

      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
    • Scott Adams
      What apps or tech tools help you manage celiac disease?

      By Scott Adams · Posted

      I am just sharing this newly launched app:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.