Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Declaring It Offical.......

roxieb73

Recommended Posts

roxieb73 Contributor
roxieb73
Posted

Ok so I have been hesitant to say (even though all testing is done) that I am gluten intolerant possibly even have Celiac. Well after emailing back and forth with Dr Vikki Petersen (author of the Gluten Effect) I can offically say I have a very serious autoimmune gluten intolerance. I am double DQ1 with Lichen Planus, Iron deficeincy anemia, Severe Vit D deficeincy, Osteomalacia, RLS, GERD, PCOS, high blood pressure, high cholesterol, elevated liver enzymes, severe pitting edema, mild tricuspid regurge.

I have been Gluten Free for 2 weeks now and on vitamins. I can already see a major difference in my energy levels and my muscle weakness is starting to get better. Instead of tolerating only 3 mins on my feet I made it through a 15 min trip to CVS today! I haven't gone shopping in over a month because I can barely walk from the house to the car. Granted I still have a LONG WAY TO GO but this is a fantastic start! :D SOOOOO SOOOO Happy!

Roxie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Ok so I have been hesitant to say (even though all testing is done) that I am gluten intolerant possibly even have Celiac. Well after emailing back and forth with Dr Vikki Petersen (author of the Gluten Effect) I can offically say I have a very serious autoimmune gluten intolerance. I am double DQ1 with Lichen Planus, Iron deficeincy anemia, Severe Vit D deficeincy, Osteomalacia, RLS, GERD, PCOS, high blood pressure, high cholesterol, elevated liver enzymes, severe pitting edema, mild tricuspid regurge.

I have been Gluten Free for 2 weeks now and on vitamins. I can already see a major difference in my energy levels and my muscle weakness is starting to get better. Instead of tolerating only 3 mins on my feet I made it through a 15 min trip to CVS today! I haven't gone shopping in over a month because I can barely walk from the house to the car. Granted I still have a LONG WAY TO GO but this is a fantastic start! :D SOOOOO SOOOO Happy!

Roxie

I am very happy for you! May your healing be accomplished with great speed! :D

nvsmom Community Regular
nvsmom
Posted

Congratulations on a great start to fixing an unhealthy situation. I hope you continue to feel better. ;)

Skylark Collaborator
Skylark
Posted

I'm glad you've gotten more comfortable with your diagnosis. It's great to hear you're feeling better! B)

squirmingitch Veteran
squirmingitch
Posted

Yay Roxie! So wonderful to hear you are now comfortable with your intolerance. And I'm very happy to hear you made it out to CVS today. It's a great start. Go Roxie!smile.gif

roxieb73 Contributor
roxieb73
Posted
  • Author

Thank you everyone! I have to say I have been tempted a few times to go off track. Especially when they bring yummy goodies in to work. Then I thought about how much better I am feeling and wanting to be able to walk and play with my son and all thoughts of taking a bite go bye bye. ;) I still have a lot of work to do before my cruise next month wish me luck! :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,009
    • Most Online (within 30 mins)
      7,748
    Joseph16
    Newest Member
    Joseph16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      Chances of being coeliac

      By JoJo0611 · Posted

      Thank you all. 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      Chances of being coeliac

      By Scott Adams · Posted

      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.