Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can My Child Carry Medication?


SilverSlipper

Recommended Posts

SilverSlipper Contributor

My soon-to-be 11 yr old daughter has Celiac. She's great with her diet, very strict on what she eats and watches other people like a hawk if they are preparing food she will eat.

Occasionally (a few times a year) she accidentally ingests gluten. The reactions are ugly - vomiting, diarrhea and cramping so bad she literally can't straighten up.

She visits other family members often and usually carries a little purse with a gluten-free snack in it. She also carries her own hand sanitizer (since other kids touch other bottles), band aids/neosporin. She wants to carry a few of her prescription pills (hyoscyamine) with her in case she gets sick. I think it's a great idea since it allows her to treat her own symptoms rather than frantic calls to me to quickly bring her stomach medicine. Realistically, she probably won't need it. However, relatives have asked if she could bring it "just in case".

My concern is whether she could get in trouble for taking prescription meds (not in a bottle) around with her. (Not at school, but to VBS, church, other's houses, etc). Can I get a doctor's note for her to use validating her need to carry medicine? Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

For some things like school, there are procedures for perscription meds. I know Boy Scout/ Cub Scout camps have rules. You have to give them to one leader with directions about them.

For friends & relatives houses, if she knows how to take them & you can really trust that, I would send them with her. What I might do is take most of the pills out of the perscription container. Just leave one or two doses in the bottle. This tells people what they are and that they are prescribed for her. She is getting to an age where a kid with unlabeled pills will look suspicious.

The pill bottle should be enough explanation of why she needs them and the dosage.

Darn210 Enthusiast

The pharmacy can also provide you with an empty but duplicate bottle w/label. I've had to do this for the school since they required the actual bottle and I needed it for something else at the same time.

Mom2J112903 Newbie

Hymox is an IBS/IBD medication, does she have either one of those or was it rx'd because of the severe cramping that she gets when gluten is injested? My son has this rx'd but he is an IBS, most likely IBD, kiddo but can not take it since he has severe dysmotility in his intestines. Hymox stops the intestinal spasms, and it WORKS but for us it literally stops the intestinal tract...not a good thing when you hardly have any movement to begin with.

I would never let my child carry any type of medication that is not in its orginal container-anywhere.

SilverSlipper Contributor

Hymox is an IBS/IBD medication, does she have either one of those or was it rx'd because of the severe cramping that she gets when gluten is injested? My son has this rx'd but he is an IBS, most likely IBD, kiddo but can not take it since he has severe dysmotility in his intestines. Hymox stops the intestinal spasms, and it WORKS but for us it literally stops the intestinal tract...not a good thing when you hardly have any movement to begin with.

I would never let my child carry any type of medication that is not in its orginal container-anywhere.

I was told IBS basically came with a Celiac diagnosis although the comment may have been directed towards my child only. She takes it due to severe cramping that is literally crippling during a celiac reaction.

SilverSlipper Contributor

(Sorry typing on my laptop which means I'm prone to mistakes)

Karen - her carrying medication (without a label) was what bothered me. I wouldn't want anyone to see it and think she is carrying something illegal. The medication is actually fairly harmless (IMO). My other daughter takes one daily in the morning to keep tummy aches from developing (suspected IBS). So, yes, I do trust her to take it with her and not take it unless necessary.

I will probably ask the pharmacy to give her a small dose/bottlt to carry as another poster suggested. I may go ahead and ask her GI to write a small note verifying she has Celiac Disease as well.

Thanks :)

Mom2J112903 Newbie

I think your daughter sounds like an extremly responsible young lady whom I would allow to carry her own medication, provided it was in its orginal container.

I know all about the intestinal cramping. My son, whom wasn't even 7 yet, was in the ER multiple times with them. Hymox is AWESOME stuff it just stinks that it literally stops my son's intestinal tract :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.