Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bacterial Overgrowth - Anyone Familiar With This?


Sunny1008

Recommended Posts

Sunny1008 Rookie

Hi everyone,

I have been on a gluten-free diet for a month now, and my symptoms are not that much better. I have been reading about SIBO (small intestinal bacterial overgrowth) and am wondering if I have it. (Asked the doctor for a test and waiting to hear back from him.)

Symptoms are:

Nausea

Gagging

Extreme bloating (looks like I'm pregnant)

Stomach pain and cramps

Constipation

Multiple food intolerances

Does anyone have any experience with SIBO?

Thanks!

Sunny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

My doctor tested me for this at the same time as celiac. Happily it was negative so I'm unable to help.

I hope you are feeling better soon.

Sunny1008 Rookie

My doctor tested me for this at the same time as celiac. Happily it was negative so I'm unable to help.

I hope you are feeling better soon.

Darn! But thanks anyway, nvsmom.

lovegrov Collaborator

I once heard a celiac doctor in the Atlanta area (Cynthia Rudert) who generally put her new patients on probiotics because bacterial overgrowth is frequently found with untreated celiac. It can also be difficult to detect and diagnose (sound familiar?). According to her, the probiotics can't hurt and might help. This was 10 years ago. Can't say if she's changed her treatment since then.

richard

Sunny1008 Rookie

I once heard a celiac doctor in the Atlanta area (Cynthia Rudert) who generally put her new patients on probiotics because bacterial overgrowth is frequently found with untreated celiac. It can also be difficult to detect and diagnose (sound familiar?). According to her, the probiotics can't hurt and might help. This was 10 years ago. Can't say if she's changed her treatment since then.

richard

Richard,

I tried some probiotics a couple weeks ago (the pearls), and they made me very, very nauseous, so I had to stop taking them. I don't know why...maybe they were too strong, or I wasn't taking the right kind??? Very frustrating though.

Sunny

beachbirdie Contributor

Richard,

I tried some probiotics a couple weeks ago (the pearls), and they made me very, very nauseous, so I had to stop taking them. I don't know why...maybe they were too strong, or I wasn't taking the right kind??? Very frustrating though.

Sunny

If you have a poor balance of flora in your intestine, you might not be able to tolerate a full dose of probiotics at first. You also might need to avoid dairy based ones, as well as avoiding ones with "pre-biotics" also called "FOS" which stands for fructo-oligosaccharides. Inulin is sometimes added as a pre-biotic, and could present problems as well.

If you suspect a bacteria problem, I would definitely recommend the Open Original Shared Link or the Open Original Shared Link diet. Many people have found relief with those. They are not easy at first, there are a lot of restrictions, but once you learn which foods are "safe" it isn't so bad! And, you don't necessarily have to follow the time-table they lay out, where you add foods back into your diet little by little. You could probably jump into the full "legal" diet and be fine, and figure out whether it is helping you or not. You would want to give it a little time, a couple of weeks to a month.

Look for a probiotic without FOS or inulin, and take only tiny amounts. If it is a powder in a capsule, break it open and use only part of it. Work your way up slowly to bigger doses.

If you have bacteria overgrowth, you need to deprive the bad bacteria of the compounds which feed them. The two diets I mentioned do that.

Sunny1008 Rookie

If you have a poor balance of flora in your intestine, you might not be able to tolerate a full dose of probiotics at first. You also might need to avoid dairy based ones, as well as avoiding ones with "pre-biotics" also called "FOS" which stands for fructo-oligosaccharides. Inulin is sometimes added as a pre-biotic, and could present problems as well.

If you suspect a bacteria problem, I would definitely recommend the Open Original Shared Link or the Open Original Shared Link diet. Many people have found relief with those. They are not easy at first, there are a lot of restrictions, but once you learn which foods are "safe" it isn't so bad! And, you don't necessarily have to follow the time-table they lay out, where you add foods back into your diet little by little. You could probably jump into the full "legal" diet and be fine, and figure out whether it is helping you or not. You would want to give it a little time, a couple of weeks to a month.

Look for a probiotic without FOS or inulin, and take only tiny amounts. If it is a powder in a capsule, break it open and use only part of it. Work your way up slowly to bigger doses.

If you have bacteria overgrowth, you need to deprive the bad bacteria of the compounds which feed them. The two diets I mentioned do that.

Hi beachbirdie,

Thanks for the info! I am trying the "Leaky Gut Diet" which is very similar to the SCD and GAPS diets. It is basically a lot of whole, unprocessed, low-inflammatory foods, which deprive the bad bacteria and allow the gut a chance to heal. So far, it has been really challenging for me b/c I am used to eating kind of a lot of processed crap. So I am really having to work hard at changing my habits.

Sunny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

Hi beachbirdie,

Thanks for the info! I am trying the "Leaky Gut Diet" which is very similar to the SCD and GAPS diets. It is basically a lot of whole, unprocessed, low-inflammatory foods, which deprive the bad bacteria and allow the gut a chance to heal. So far, it has been really challenging for me b/c I am used to eating kind of a lot of processed crap. So I am really having to work hard at changing my habits.

Sunny

It is definitely a major life-change! I hope that soon you will be able to feel well enough to say "it's worth it!" :)

We have several variations of this saying at my house, but my family and I like to remind each other that "nothing tastes as good as being pain-free feels!"

Bubba's Mom Enthusiast

I was DXed with Celiac just over a year ago. When I went gluten-free I immediately felt better, but then started reacting to additional foods.

I went to Mayo Clinic 3 times for additional testing. My hydrogen breath test for SIBO came back with high hydrogen and methane. I was told I most likely have a severe bacterial overgrowth.

The bad bacteria feed on what you're eating and emit toxins, which cause you to get a reaction. They will also prevent you from healing. Your reactions can also change in intensity as the various types of bacteria shift in numbers.

Initially I went on antibiotics, but didn't notice a change. I went off them and now take probiotics..3 different brands for a mix of good bacteria, and went on digestive enzymes too.

Culturelle dairy free is a good one, and I also take Power dophilus, and Nature's Bounty advanced 10.

It takes time to kill off the bad bacteria and replace it with good. I'm also incorporating coconut oil into my diet to help fight against yeast.

It's best to start slow with the probiotics. They can cause a die-off of bacteria, which will make you feel sick. Maybe start with the dairy free Culturelle? maybe even 1/2 of tablet/capsule of whichever brand you try?

If your Dr. recommends antibiotics, it's good to take the probiotics too..if not during, then certainly after taking the RX. You want to build a healthy flora in there, which takes time. Following one of the sugar/simple carb, grain restricting diets help too.

Sunny1008 Rookie

It is definitely a major life-change! I hope that soon you will be able to feel well enough to say "it's worth it!" :)

We have several variations of this saying at my house, but my family and I like to remind each other that "nothing tastes as good as being pain-free feels!"

beachbirdie,

I have been saying that A LOT lately to myself - "Nothing tastes as good as feeling WELL feels!!" :D

Sunny1008 Rookie

I was DXed with Celiac just over a year ago. When I went gluten-free I immediately felt better, but then started reacting to additional foods.

I went to Mayo Clinic 3 times for additional testing. My hydrogen breath test for SIBO came back with high hydrogen and methane. I was told I most likely have a severe bacterial overgrowth.

The bad bacteria feed on what you're eating and emit toxins, which cause you to get a reaction. They will also prevent you from healing. Your reactions can also change in intensity as the various types of bacteria shift in numbers.

Initially I went on antibiotics, but didn't notice a change. I went off them and now take probiotics..3 different brands for a mix of good bacteria, and went on digestive enzymes too.

Culturelle dairy free is a good one, and I also take Power dophilus, and Nature's Bounty advanced 10.

It takes time to kill off the bad bacteria and replace it with good. I'm also incorporating coconut oil into my diet to help fight against yeast.

It's best to start slow with the probiotics. They can cause a die-off of bacteria, which will make you feel sick. Maybe start with the dairy free Culturelle? maybe even 1/2 of tablet/capsule of whichever brand you try?

If your Dr. recommends antibiotics, it's good to take the probiotics too..if not during, then certainly after taking the RX. You want to build a healthy flora in there, which takes time. Following one of the sugar/simple carb, grain restricting diets help too.

Hi Bubba's Mom,

Thanks for all the info. I don't know for sure if I have bacterial overgrowth, but I suspect it. I am having the hydrogen breath test tomorrow to find out. I have been reading about it, and it sounds like it is really hard for your gut to heal when you have overgrowth, which could explain a lot of the problems I've been having.

Also, thanks for the info on the probiotics. I will try the Culturelle and start out very slowly. I'm pretty sure when I tried the other probiotic pearls, it was too much for me and I got die-off nausea. Now I know to watch out for that.

Thanks!

Sunny

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,025
    • Most Online (within 30 mins)
      7,748

    kdking61
    Newest Member
    kdking61
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Diana Swales
      After years of living with Celiac Disease, learning through every bump and breakthrough, and guiding others through the gluten-free maze — I've officially qualified as a **Nutrition Coach** with Precision Nutrition. Now I’m ready to take this journey deeper… but I need your help. To complete my final certification hours, I’m offering **a limited number of FREE spots** (yes, completely free!) to work with me over the next few weeks. I’m looking for **5 people** who: Are newly diagnosed with Celiac Disease or gluten-intolerant Feel overwhelmed, confused, or frustrated with food Want support from someone who truly understands Are ready to build confidence and calm in their daily eating We’ll work together on what matters to *you*: Your food choices Your mindset Your kitchen habits Your ability to speak up for your needs This isn’t just about avoiding gluten — it’s about reclaiming ease, joy, and nourishment. If you're interested, comment below or DM me the word **"Ready"** and I’ll send you the info to get started. Let’s make food feel safe again. With care, **Diana**
    • Dora77
      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
×
×
  • Create New...