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First Gi Visit And... Hopeful? -Ish?

heathenly

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heathenly Apprentice
heathenly
Posted

I almost didn't go to my GI app't because I've been so fearful of not being taken seriously. But then I did, because who doesn't love specialist co-pays? I told him I was having problems with gluten, described my 1,000 symptoms, and he said, "That doesn't sound like gluten intolerance. Have you been tested for Celiac?" Hallelujah.

So I have an endoscopy scheduled for the 20th. When he told me I had to eat gluten until then, I teared up. Just Friday and Saturday back on gluten has left me a fatigued, emotional, bloated, and painful mess. He tried to make it sound like I could have fun with a last round of gluten-eating, but it really just sucks.

Oh well. Once more into the gluteny breach.

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heathenly Apprentice
heathenly
Posted
  • Author

Are these the "usual" labs?

AtT IgA

Ae IgA

anti-gliadin IgA

anti-gliadin IgG

Total serum IgA

beachbirdie Contributor
beachbirdie
Posted

Are these the "usual" labs?

AtT IgA

Ae IgA

anti-gliadin IgA

anti-gliadin IgG

Total serum IgA

Pretty much. You might want to clarify whether the anti-gliadin tests are actually the deamidated gliadin peptides. A few labs here and there are not up to speed on that one and still do an older test, anti-gliadin antibodies.

Other than that, sounds like you are on a good path.

Except...sounds like you've been off, then back on gluten. How long have you been off gluten before seeing this GI? If you've been gluten free for any length of time, the tests aren't going to be accurate, and the biopsy could be skewed as well. Two weeks isn't necessarily long enough to raise the damage they're looking for.

heathenly Apprentice
heathenly
Posted
  • Author

Except...sounds like you've been off, then back on gluten. How long have you been off gluten before seeing this GI? If you've been gluten free for any length of time, the tests aren't going to be accurate, and the biopsy could be skewed as well. Two weeks isn't necessarily long enough to raise the damage they're looking for.

I was off for about two weeks, on again since Friday. Hopefully by then there will be enough damage (sigh) to register...

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