Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ear And Jaw Pain Anyone?

GFceliacgirl

Recommended Posts

GFceliacgirl Newbie
GFceliacgirl
Posted

I need to go back to doctor about my ears and jaw. I'm a little burnt out on going to doctors. Anyone experience this along with severe neck and back spasms?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

I have had terrible neck pain for 3 years. My jaw clicks a lot too and is very painful. This all started when celiac did. I think it's all connected.

IrishHeart Veteran
IrishHeart
Posted

I'm in agony from it. Neck, back, jaw, ear.... all my joints, muscles, tendons....I am in PT rehabbing right now.

It lessens as the inflammation goes down, but I have a long way to go. I was UnDXed for years.

You may see relief sooner!

rosetapper23 Explorer
rosetapper23
Posted

Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

IrishHeart Veteran
IrishHeart
Posted

BioSil and NeoCell Super Collagen.

(bovine collagen), but it's a bit expensive.

Chelated manganese

Dr. Christopher's products

I heard you sweetie!

and I have always appreciated your advice.

I have done the Biosil; I do take the Curaphen still--great product: I also tried Hyaluronic acid, upon the advice of my MT/PT and I just ordered the NeoCell Super Collagen. I also do flaxseed oil and L-glutamine.

Little by little, I reduce the inflammation and I am not ready to jump off a cliff anymore. :)

GFreeMO Proficient
GFreeMO
Posted

Have any (or all) of you yet tried taking silica and collagen? I've had problems off and on for many years with jaw and ear pain, and I've found that the following products have helped me: BioSil and NeoCell Super Collagen. I also take a number of natural products for joint pain that seem to work well for me and a few other celiacs that I know: Dr. Christopher's Joint Formula and Complete Tissue and Bone (these are VERY inexpensive online). Before I knew I had celiac, I controlled the pain with Calorad (bovine collagen), but it's a bit expensive.

Also, I've said it before--and I'll say it again--manganese is also very important for maintaining healthy connective tissues and muscles, and we are oftentimes low in this particular mineral. Chelated manganese is cheap...and could be a cheap fix if that is what you're lacking. Everything I've listed is inexpensive, except the BioSil, so you might consider trying the chelated manganese, NeoCell Super Collagen, and Dr. Christopher's products to see if you get any relief. These are all EXCELLENT products that I've used for years, and I'm rarely in pain now (pretty much only when I get glutened).

Thank you for this info. I will check into it. I appreciate it. :)

GFceliacgirl Newbie
GFceliacgirl
Posted
  • Author

Thank you so much. Very helpful. Just diagnosed in March this year and I'm glad to have found these Boards for chat!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dcns65 Apprentice
dcns65
Posted

I suffered for 9 months with ear, jaw, shoulder and neck pain. (I am not celiac-the rest of the family is!) I was treated for ear infections, had CT scans but no one knew what was going on. I was in pain most of the day. It was the third ENT I saw that diagnosed TMJ (temporomandibular joint disorder). My jaw never had locked but I had been clenching my teeth and the muscles were tight. I saw a chiropractor that helped but the real relief came from the physical therapist. I still get occasional flare ups but have learned how to relax and the heating pad is my friend! :rolleyes: If you have been stressed it could be TMJ. Good luck!

sallyalewis Rookie
sallyalewis
Posted

I had a migraine & sinus infection for 2 years.

I had 2 root canals, and it was suggested I have a 3rd root canal.

I was waiting for the new year insurance to roll around for the 3rd, and went gluten free.

The migraine & sinus infection were almost completely gone by the end of the first week!

About 3 months into being gluten free, I realized my 3rd tooth was no longer hurting!

All 3 teeth are on the bottom. I'm wondering if I really didn't need the first 2 root canals! :blink:

LauraB0927 Apprentice
LauraB0927
Posted

7 years ago when I was in college, I had terrible TMJ where my jaw would click and become locked shut. I would be in so much pain and nothing relieved it - I was on Valium, had a mouth guard, and was going to the chiropractor which relieved some of the pain. I always struggled with sinus infections also. Hopefully it will start to go away now that I'm gluten free!!

rosetapper23 Explorer
rosetapper23
Posted

What is interesting about jaw pain (and, yes, I'm referring to TMJ pain) is that I believe it occurs when the joint is too loose rather than too tight. I came to this conclusion when I experienced horrendous TMJ pain starting in the fifth month of each of my pregnancies. This pain coincided with the my body's increased production of prolactin, which occurs when the body begins to prepare itself for giving birth. The prolactin causes the tendons and ligaments to loosen up so that tissues in the pelvis can expand to allow the baby to pass through the birth canal. During the release of the prolactin, I would also experience pain in a knee joint that had been damaged due to an earlier fall (soft tissue injury). When the TMJ pain and knee pain occurred beginning at the very same time with each pregnancy, I thought, "Okay, this is the result of increased prolactin, which is loosening my joints, including the TMJ."

Because of this "ah hah" moment, whenever I experience joint and TMJ pain, I start taking chelated manganese, because it is the nutrient that keeps our ligaments and tendons from becoming floppy or loose (just like with prolactin). It's a cheap fix if this is what is happening to you. People are oftentimes deficient in manganese, and, of course, celiacs experience deficiencies more than the general population. I hope you'll give chelated manganese a try.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Tazfromoz
      - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      14

      Shingles - Could It Be Related to Gluten/ Celiac

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until...
    2. hjayne19
      - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

      Hi all, Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was...
    3. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    5. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,073
    • Most Online (within 30 mins)
      7,748
    amaryliss
    Newest Member
    amaryliss
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Tazfromoz
      Shingles - Could It Be Related to Gluten/ Celiac

      By Tazfromoz · Posted

      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Celiac Screening

      By hjayne19 · Posted

      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.