Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac/lactose - Breastfeed Vs. Bottle

SmileyKylie

Recommended Posts

SmileyKylie Rookie
SmileyKylie
Posted

I am a diagnosed Celiac-Lactose Intolerant. My Doctor does not have much experiece with my condition. Has anyone else received medical advise about a Celiac-Lactose Intolerants breast milk nutrients? I am debating if my nutrient levels will be inferior to formula. Since pregnancy, I have developed low levels of calcium and become Hypo-thyroid.

Or does anyone know where you could find this medical information? There is a lot of information on the web, but I haven't found any medical journals or etc on the topic.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Kellymom.com has the information you need, and cites all of their sources in their articles.

Unless you are *severely* malnourished (think famine in a third world country), your body prioritizes your baby and your milk over you. With the exception of a few things (vitamin D, for instance), milk levels do not change in any significance without serious deficiency. Not to mention it is COMMON for some nutrient levels to go down during pregnancy (as is developing hypothyroid).

Keep taking your supplements, keep eating a well rounded diet, and your milk will be absolutely, totally fine. Not to mention it will have the antibodies, probiotics, and other micronutrients that your baby cannot get anywhere else.

  • 2 weeks later...
jebby Enthusiast
jebby
Posted

I agree. There is some decent research that providing breastmilk can help delay the onset of celiac disease in children who are genetically predisposed. Make sure that you take a prenatal vitamin and vitamin D and that your thyroid levels stay stable while you are breast feeding. Good luck with your pregnancy!!

Dumpling Newbie
Dumpling
Posted

I was undiagnosed Celiac while pregnant and had an awful time. My husband started making me smoothies with extra silky tofu, fruit & calcium OJ, that got me through it!! I also received help from a homeopathic doctor/nurse/midwife long distance~ a friend of a friend kind of thing. She had me eating rice noodles with broth & ginger to settle my stomach. In the end I gained only 7 pounds and had a low birth weight baby. That was almost 21 years ago :D! He was difficult to breastfeed, but I perused and I do not regret it at all. He is a healthy college man now (I can't believe I just called my baby, a man :o ) He is a little slower on physical growth, but doing very well otherwise!! My other pregnancies were better because I learned how to eat and demand better care for myself. You may want to call around and look for a doctor who has experience with celiacs. I wish I knew then, what I know now. Lots of luck & happiness to you!!

  • 1 month later...
SGWhiskers Collaborator
SGWhiskers
Posted

And remember all the antibodies and bonding hormones that breast milk has that are not in formula.

come dance with me Enthusiast
come dance with me
Posted

Even in Third World countries, it's better to breastfeed than not. Bubs get all they need from it. My daughter showed no symptoms of coeliac disease until about 7, and was breastfed until she was 3, so I'm really glad she had that to start with.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748
    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.