Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New, Lots Of Symptoms Past And Present Please Help


Medcoder03

Recommended Posts

Medcoder03 Rookie

Hello,

I am so glad that this forum exists.

Well I in my 40's and I think I have narrowed down that I have gluten sensitiviy or mild celiac.

Here are my past symptoms.

Carpel tunnel yr 2000 had surgery still numbness in both arms...not any better

miscarriages one 2000, two 2001

ovarian failure age 34

adhd or anxiety most of my life

Gerd most of my life

heartburn most of my life

get gas from about anything...

When I did weight watchers I felt the best - this is when I ate real food and not their processed stuff.

Current issue.

I just got bell's palsy this past December and I still have it so I asked for an MRI to see if I had anything else going on...

Oh by the way in October I had the flu mist placed in my nose because I had to have this or the flu shot for work. I think the flu mist caused me to have bell's but I can't confirm this though.

I have also went to my friends church, Seventh Day advantist and they cook with lots of grains...well I fell so ill a couple hours after I leave there...

I also had an MRI and my Ears nose and throat doctor said that my MRI was abnormal. There were white spots so I am being referred to a Neuro...so he mentioned MS and he also said that it could be nothing at all...I looked up white spots and I came across Celiac.

Well so I am leaning towards Celiac...

Any thoughts!!

All thoughts would be appreciated.

Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

you did get answers to the MRI white spots on your other thread.

Medcoder03 Rookie

Hello again,

I forgot to add that I was diagnosed with Hyperthyroidism in 2004 so I have that working againist me too.

thanks again.

Medcoder03 Rookie

Hello sorry.

I got results from the Ears nose and throat doctor. He just said that my ears nose and throat areas looks fine but he referred me to the Neuro because of my abnormal mri and white spots...he did say that this could mean MS and that is all he said...

I had the test done in the beginning of June. ENT doctor gave me the white spot results 2nd week of June and my neuro appointment is July 25th.

I guess if I did have MS or anything else life threatening I would sure hope that they would get me in right away.

Since I did go to the stroke unit and they said it was Bell's I am wondering if the white spots could have been mini strokes??

Well we will see in 10 days ....

thanks

IrishHeart Veteran

Hon, yes.....some of your symptoms are very suggestive of Celiac or non-celiac gluten intolerance.

MS is very difficult to DX. It took my dear friend, Suze 2 years to get a firm DX. Celiac is called the "great mimic" because it has symptoms that are very much like other AI diseases. They overlap and so, it is essential that you get a proper diagnosis.

As you learned from the other thread, white matter lesions appear with celiac, too.

I have many neurological symptoms from celiac disease that 4 different Neuros did NOT find clinically "significant" :rolleyes: and I remained unDXed for many years. I suffered nerve burning pain, ataxia, paresthesia, cognitive issues and more. It was horrible.

Have the neurologist do a full celiac panel.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

    4. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

    5. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,757
    • Most Online (within 30 mins)
      7,748

    Desert Amethyst
    Newest Member
    Desert Amethyst
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Oliverg
      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.