Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Validation


KMMO320

Recommended Posts

KMMO320 Contributor

Well, I kept my appointment with the Celiac Center in Boston. They are doubtful that I have celiac, which is good, but the dr suspects I have an intolerance/sensitivity to gluten and possibly a wheat allergy and suggested to start the gluten-free asap. This was after my original GI said there was absolutley no reason to go gluten-free and she did NOT reccomend it.

So, I drove an hour and a half, paid for parking and a copy, and got stuck in traffic coming home for 3 hours but its all worth it to get the validation of what I already knew. lol.

Now I feel at peace and can go on being gluten-free knowing I am not "crazy" (my own words, not anyone elses)

They did a bunch more blood tests and checked all my vitamin levels, which the original GI did not. SO all in all, I am pleased :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tom Contributor

Boo! Original GI :angry:

Yay! New Doc! ;)

nvsmom Community Regular

Ditto Tom! :) I found it easier to embrace the gluten-free diet once I knew one way or the other too. I hope your switch to gluten-free goes smoothly.

KMMO320 Contributor

Thanks! I think thats what I was looking for. It was very expensive day just to hear what I already knew though. Lol

Gemini Experienced

Thanks! I think thats what I was looking for. It was very expensive day just to hear what I already knew though. Lol

And knowing Boston traffic very well, and the pleasures of parking, I congratulate your diagnosis! That was hard earned! :D

KMMO320 Contributor

Haha I was stupid, wasnt thinking..I live an hour south of Boston...I should.have parked at the T station in Braintree and.gone by train, and after the appointment I could have mwt up with my sister who works at the Museum of Science and driven home with her when she got out, and at.least enjoyed a little free museum time until then. Silly me.

WitsEnd Rookie

Good for you! May have been a hassle but it's nice to get validation. I was so pleased when I found a Dr who actually listened to me, even though like you he told me what I already knew.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

It was nice.to have a dr who believed.in intolerance!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.