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Is Gluten From A Pill Enough?

NoDayButToday

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NoDayButToday Newbie
NoDayButToday
Posted

Hello!

New here.

Don't know too much about celiac, but do have Lyme and other health issues...

My gut (no pun intended) tells me to get tested for celiac.

I have been tested for the gene - positive. Also, I have tested positive for antibodies to gluten & dairy via DianosTechs stool testing (not sure if this is considered reliable).

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better. I recently discovered that one of my supplements that I've also been taking for these six months contains defatted wheat germ (the only time my gut felt better was when I had to stop my supplements for the stool testing - go figure!)

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Thanks!

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Lisa Mentor
Lisa
Posted

Hello!

New here.

Don't know too much about celiac, but do have Lyme and other health issues...

My gut (no pun intended) tells me to get tested for celiac.

I have been tested for the gene - positive. Also, I have tested positive for antibodies to gluten & dairy via DianosTechs stool testing (not sure if this is considered reliable).

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better. I recently discovered that one of my supplements that I've also been taking for these six months contains defatted wheat germ (the only time my gut felt better was when I had to stop my supplements for the stool testing - go figure!)

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Thanks!

Not too sure. Not sure anyone knows that answer, but here are the tests:

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

Hello and welcome!

NoDayButToday Newbie
NoDayButToday
Posted
  • Author

Thanks for the welcome & info!

I think i'm just going to try for it, since I've met my deductible and I have been consuming some gluten (even though not too much).

If it's negative, then i can decide if I want to try it again w/more gluten. If positive, voila!

kareng Grand Master
kareng
Posted

Thanks for the welcome & info!

I think i'm just going to try for it, since I've met my deductible and I have been consuming some gluten (even though not too much).

If it's negative, then i can decide if I want to try it again w/more gluten. If positive, voila!

Your insurance might not pay for the same test twice in a few months time. Especially if the first test is negative.

IrishHeart Veteran
IrishHeart
Posted

Anyway, I would like to be tested, as I have I have been gluten-free for six mos and am not feeling better.

So, my question is, if I have been consuming no gluten but these pills for the past six months, is that enough before I do the blood testing? Please say yes!

Probably not. I would gluten up before the test. IMHO

NoDayButToday Newbie
NoDayButToday
Posted
  • Author

Your insurance might not pay for the same test twice in a few months time. Especially if the first test is negative.

Hmmm that's a good point. This is a tough one. I feel like i want to take advantage of the fact that I've inadvertently been eating gluten, since i plan on going totally gluten-free asap.

NoDayButToday Newbie
NoDayButToday
Posted
  • Author

Called my dr. yesterday(whom I love, and who has Celiac himself). He told me to come in and get tested right away, so I did (through Prometheus).

From what I've read, most people think that's not enough gluten. I guess if it's positive it'll be clear, and if it's negative, I'll have to re-evaluate.

At this point, I don't think I'm up for a gluten challenge, so will probably drop the search for diagnosis if it comes back neg.

I will most def. remain gluten free. So, I guess it's not crucial to get the dx. But, I'd really like to know for sure!

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  • 2 weeks later...
NoDayButToday Newbie
NoDayButToday
Posted
  • Author

Whelp, y'all were right - it wasn't enough :(! Got the results back today - just said negative serology...

I know I'm positive genetically, via stool tests for antibodies to gliadin & casein, and feel very sensitive to gluten.

I could not handle the gluten challenge - too many other health issues to contend with.

Is it a good bet to assume celiac and be really careful? As mentioned above, I have Lyme, hypothyroid, adrenal issues...

GottaSki Mentor
GottaSki
Posted

Negative blood work does not mean that you do not have Celiac Disease. If you have the genes, the symptoms along with improved symptoms while gluten free - you have your answer -- stay gluten free.

NoDayButToday Newbie
NoDayButToday
Posted
  • Author

That's what I'm confused about...if you have the genes and symptoms, is that pretty much celiac? Or, can you have the genes and symptoms, but have it be non-celiac gluten intolerance?

My gut says celiac, but I guess I'll never know...? Do doctors ever make clinical diagnoses of celiac?

nora-n Rookie
nora-n
Posted

Lyme patients need to be gluten free anyway, so I guess you need to be glutenfree anyway.

Yes, wheat germ from a pill could be too much gluten for you. But in Europe where some countries have wheat starch, the recommendation si to consume no more than 50 mg gluten a day from wheat starch. Some tolerate way less.

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