Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ugh ... This Time It Was Milk That Got Me

llama3

By llama3
in Coping with Celiac Disease

Recommended Posts

llama3 Apprentice
llama3
Posted

I haven't been around here for a while because I've been feeling SO much better after completely cutting out gluten. So yesterday I got overly optimistic. I've been eating yogurt with no problem (but no other dairy), and I thought I would try some goat milk (which is supposed to be easier to digest - maybe that's a myth) and see if I tolerated it. I did NOT. 36 hours later I still feel really really miserable, though at least the diarrhea has stopped. My glutening symptoms are more neurological although there is some GI stuff too. I just can't believe how much my stomach hurts right now.

Somebody tell me how to make it better. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Chris Anne Newbie
Chris Anne
Posted

I haven't been around here for a while because I've been feeling SO much better after completely cutting out gluten. So yesterday I got overly optimistic. I've been eating yogurt with no problem (but no other dairy), and I thought I would try some goat milk (which is supposed to be easier to digest - maybe that's a myth) and see if I tolerated it. I did NOT. 36 hours later I still feel really really miserable, though at least the diarrhea has stopped. My glutening symptoms are more neurological although there is some GI stuff too. I just can't believe how much my stomach hurts right now.

Somebody tell me how to make it better. :(

Wow! I go to my Digestive Doc next week and besides the Celiac I gotta ask him about the Dairy too. I'm on 2nd day of stomach pain and diarrhea. This is horrible. I hope the best for you.

llama3 Apprentice
llama3
Posted
  • Author

Wow! I go to my Digestive Doc next week and besides the Celiac I gotta ask him about the Dairy too. I'm on 2nd day of stomach pain and diarrhea. This is horrible. I hope the best for you.

Thanks. I don't know if it's the casein or the lactose. I hope you figure out what's going on with you.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

llama3 Apprentice
llama3
Posted
  • Author

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

I sometimes make smoothies with straight coconut milk with no additives. Doesn't "So Delicious" have additives in it?

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

Hi! Have you ever tried coconut milk? I think it's really delicious, and it's opaque white so it really looks like milk. The taste is very mild, and doesn't taste like coconut at all. My favorite brand is "So Delicious" (original flavor). Makes great smoothies too. It probably works great in recipes too, but I haven't had a chance to try that yet.

It tastes great in desserts (especially with vanilla). It is also delicious in chowder. I reduced it on the stovetop and then add it last to simmer.

GFinDC Veteran
GFinDC
Posted

HI,

If you have a reaction to eating hard cheese like cheddar it is probably a casein issue. Most of the lactose is gone in hard cheeses. You can always take a couple lactaid pills when you eat the cheese just to be sure it is not lactose sugar. The lactaid digests the lactose, so if there was any trace of lactose left that would get rid of it. So you would be left with a chunk of casein to digest. You might need to do this test for 3 to 5 days in a row to see a solid reaction. This of course won't worlk if you are eating any other dairy during the time. Other dairy would muddy the waters and invalidate the test. Make sure the lactaid pills are gluten-free first though. It's an easy-peasy test really.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 3 weeks later...
FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I sometimes make smoothies with straight coconut milk with no additives. Doesn't "So Delicious" have additives in it?

Any "additives" in "So Delicious" are vegetable or mineral based, natural and gluten free. They are all on the safe list on this site. I don't think there are any problems with it. Anyone have any other ideas about the different coconut milks? Do the additives make it no longer a whole food, and instead a processed food? Very curious about this. I'm interested in the digestibility of it for one thing. Bought some straight coconut milk in a can from Trader Joe's but haven't tried it yet. Hope it tastes as good.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Additive free coconut milk in a can does taste just as good as the ones with additives! I didn't even know Trader Joe's carried the canned type. It's even thicker and creamier too which makes it great used straight in recipes in place of cream, I imagine, or with water added for drinking. You learn something new every day!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    2. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    3. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    4. Scott Adams
      - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating...
    5. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748
    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Doctors and Celiac.com

      By Scott Adams · Posted

      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.