Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tongue Hurts! Possible Allergy?

mamacat

Recommended Posts

mamacat Rookie
mamacat
Posted

I have been gluten-free for around two weeks now and I've noticed my tongue has become very painful- it almost feels like there are open cuts all over it, thought I don't see any on my tongue. I'm starting a food journal to try and track possible causes, but I was wondering if anyone else out there has had a similar reaction like this, and if it was caused by another pop-up allergy or to the gluten-free diet itself. I know people find out after starting gluten-free that they have other reactions to casein, etc. I haven't eliminated dairy or oats (only eat gluten-free oats) and have tried a bunch of new certified gluten-free product which I know may have new ingredients than what I'm used to.

If anyone out there has had this kind of painful tongue sensitivity I'd love to hear if it's commonly caused by certain ingredients or if it's different for everyone. If I can narrow mine down with the food journal I will certainly post an update. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

This symptom is common in cases of Vitamin B-12 deficiency, which is a deficiency common in people with celiac. You might request a lab test from your doctor; or, alternatively, you can begin taking sublingual methyl B-12 tablets (2,000 mg twice a day) to see if the tongue issue resolves. It should go away rather quickly since the B-12 taken sublingually is instantly absorbed into your bloodstream.

harleygal726 Rookie
harleygal726
Posted

I was diagnosed last November and my tongue has been numb down the center for over 2 years and the Doctors cannot give me a reason. My vitamin B-12 is high on bloodwork. Since going gluten free it alternates between being numb and sore. It gets sore when I increase my liquid vitamins and/or sublingual B-12. Could I still be deficient?

rosetapper23 Explorer
rosetapper23
Posted

Okay, now that I'm at home, I've had a chance to look up other possibilities for sore/geographic tongues, and it appears that a number of B vitamins could be responsible. These include folic acid, B-2 (riboflavin), and B-6 (pyridoxine). You might try taking a good Vitamin B complex in addition to sublingual Vitamin B-12.

FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

Interesting. I've had geographic tongue for decades. It comes and goes but I don't know of anything that helps it heal faster. I read it's related to immunity issues. I've had food problems for about as long too. Low blood sugar issues, other food sensitivities, or so I thought. Sure makes me wonder when I first started having gluten problems, since I've only known about it for four months. A few years back I tested as having low B-12, but I take it daily now. I don't show any deficiencies at all when I'm tested now, but my tongue also looks ripply on the edges, which I thought was a sign of a B deficiency. I wonder if it's possible to have a deficiency that doesn't show up in labs. Maybe some people need more of a vitamin or mineral than the majority of people. I'm going to look into that.

harleygal726 Rookie
harleygal726
Posted

Ok thanks I will pick up some B Complex. I also wondered too if your bloodwork can be normal or high in any vitamin/mineral and still be deficient?

mommida Enthusiast
mommida
Posted

I wonder if this is when Pernicious anemia is part of the equation. The gut lining lacks the proper enzymes to absorb vitamin B12. So the condition doesn't fully resolve no matter how much B12 or Bcomplex you take(B complex vitamin can be toxic if you take too much.) I have had geographic tongue since I was in high school. (41 now)

There is not a definative cure all for fixing geographic tongue but it is strongly linked to vitamin defiency.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rosetapper23 Explorer
rosetapper23
Posted

Just would like to add that if you do take TOO MUCH Vitamin B complex, it could be a problem; however, taking a daily Vitamin B complex is safe--B vitamins are water soluble and are not stored by the body the way that fat-soluble vitamins are.

harleygal726 Rookie
harleygal726
Posted

Thanks :)

Really? Newbie
Really?
Posted

I was diagnosed with Celiacs in June of 2012. I have had issues with my tongue since April. At first they said it was yeast and treated me for that. They treated me twice for it acutally. Some days my tongue has a greenish coating on it. Some days its a whitish coating. It always burns regardless of the color. I can't remember the last time it felt normal. It hasn't improved with the gluten free diet. I was given a B12 injection and they started me on 2000 mcg of B12 a day... no improvement. My throat is sore as well and very raw and red. I'd love to know the problem and resolve it. This one amongst the many others that I thought would go away with a diagnosis. I am more sick now than I was before.

mamacat Rookie
mamacat
Posted
  • Author

If pernicious anemia were a cause of B12 deficiency, wouldn't that go away once you were on the gluten-free diet long enough to let your gut heal? I certainly haven't been on the diet long enough to tell, but I'm going to get the B12 and B-complex and see if that helps. Thank you all for the info.

Hopefully this will go away with maintaining the gluten-free diet, because it's very distracting, annoying, and painful!

  • 5 years later...
Laura Johnson Newbie
Laura Johnson
Posted
On 7/23/2012 at 9:14 AM, mamacat said:

I have been gluten-free for around two weeks now and I've noticed my tongue has become very painful- it almost feels like there are open cuts all over it, thought I don't see any on my tongue. I'm starting a food journal to try and track possible causes, but I was wondering if anyone else out there has had a similar reaction like this, and if it was caused by another pop-up allergy or to the gluten-free diet itself. I know people find out after starting gluten-free that they have other reactions to casein, etc. I haven't eliminated dairy or oats (only eat gluten-free oats) and have tried a bunch of new certified gluten-free product which I know may have new ingredients than what I'm used to.

 

If anyone out there has had this kind of painful tongue sensitivity I'd love to hear if it's commonly caused by certain ingredients or if it's different for everyone. If I can narrow mine down with the food journal I will certainly post an update. Thanks!

Yes I’m having the same issue 3 weeks into gluten-free diet!

 

On 7/24/2012 at 8:13 PM, Really? said:

I was diagnosed with Celiacs in June of 2012. I have had issues with my tongue since April. At first they said it was yeast and treated me for that. They treated me twice for it acutally. Some days my tongue has a greenish coating on it. Some days its a whitish coating. It always burns regardless of the color. I can't remember the last time it felt normal. It hasn't improved with the gluten free diet. I was given a B12 injection and they started me on 2000 mcg of B12 a day... no improvement. My throat is sore as well and very raw and red. I'd love to know the problem and resolve it. This one amongst the many others that I thought would go away with a diagnosis. I am more sick now than I was before.

I’m having the tongue issue too and am wondering if it could be a reaction to something else ? So odd

Laura Johnson Newbie
Laura Johnson
Posted
On 7/23/2012 at 7:18 PM, rosetapper23 said:

Okay, now that I'm at home, I've had a chance to look up other possibilities for sore/geographic tongues, and it appears that a number of B vitamins could be responsible. These include folic acid, B-2 (riboflavin), and B-6 (pyridoxine). You might try taking a good Vitamin B complex in addition to sublingual Vitamin B-12.

Something to think about as well is if your supplements are gluten free. With some it’s hard to tell - some may have coatings that have gluten 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.