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Gluten Free Girls

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Gluten Free Girls Apprentice

Myself, and our two daughters have Celiac Disease. Our girls are 13 and 7. We're one year into this wild ride and we have yet to meet anyone else with this disease. I want to start a support group of sorts, so that my girls can meet other kids with Celiac Disease and I would love to meet other parents as well. We joined the Atlanta ROCK group but we've found that they don't have frequent events. Are we the only Celiacs in the Atlanta area? We would love to meet some Celiac folks like us!


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MitziG Enthusiast

Well, I am in Iowa, mot GA, but I know my 13 yo daughter would love a celiac pen pal! Myself and my 8 yo son are also celiacs, so there is definitely common understanding! Poor hubby is gluten free by default!

KatieL1321 Rookie

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

MaryJones2 Enthusiast

Check out the Atlanta Gluten Free Dining Club (I think that's the name) on meetup.com - they have monthly events and lots of information on where to find local products, restaurants, doctors, and gluten free events. There is also the Metro Atlanta Celiacs group which maintains lists of gluten-free friendly restaurants and knowledgeable celiac doctors among other things. They also have events as well.

melaniesilvers Rookie

We live about 45 min north of Atlanta. My son is four (not close to the ages you have) but I would love to find out where you eat and what you buy. There is also a 7 yr old girl that lives close to us that was diagnosed in April.

shauniscrazy Explorer

I am a pretty new Celiac. I was diagnoised 8 months ago. I would love to have someone to talk to I am alittle older than your daughters I am 15 years old but I still think it would be fun to have someone to talk to :)

Katie

I dont know if i am a Celiac yet or not but i am allergic to gluten and i would like to have someone to talk to so i can learn more i am 16 and live in TN.

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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