Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Wk. Gluten-Free: Lack Of Appetite Normal?


heathenly

Recommended Posts

heathenly Apprentice

I'm one week off gluten (again) after my brief gluten challenge, and I am just NOT hungry. I've been forcing myself to eat a couple of small meals each day because my stomach rumbles and I can tell my body is hungry, but the thought of food usually makes me feel slightly gross. I'm making delicious homemade mostly whole-foods meals, but nothing really tastes amazing, and after I eat I feel like I could have just as happily NOT eaten. Also, it's been a week, and the bloating is just now abating. Is this normal; my gi tract just trying to heal? Or does the loss of appetite stay?

I'm not complaining too much... after all, I have 15 pounds of gluten weight to lose, and a closet full of clothes that I miss wearing... (also miss having cheekbones and one chin)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heathenly Apprentice

I should stop lying. I never had cheekbones.

LauraB0927 Apprentice

I'm one week off gluten (again) after my brief gluten challenge, and I am just NOT hungry. I've been forcing myself to eat a couple of small meals each day because my stomach rumbles and I can tell my body is hungry, but the thought of food usually makes me feel slightly gross. I'm making delicious homemade mostly whole-foods meals, but nothing really tastes amazing, and after I eat I feel like I could have just as happily NOT eaten. Also, it's been a week, and the bloating is just now abating. Is this normal; my gi tract just trying to heal? Or does the loss of appetite stay?

I'm not complaining too much... after all, I have 15 pounds of gluten weight to lose, and a closet full of clothes that I miss wearing... (also miss having cheekbones and one chin)

It sounds like your body might be trying to heal again, but as you know its important to get nutrients. I've been drinking homemade beef and chicken broth and my nutritionist says that its a great way to heal the GI tract while still getting some nutrients. Its really helped me with my bloating too. Maybe this could be helpful to you?

heathenly Apprentice

That sounds like something I can handle! I have to stop waiting until I get shaky before I eat something...

nvsmom Community Regular

I should stop lying. I never had cheekbones.

:P:lol: LOL

My appetite is less off gluten that it was prior to diagnosis. I have been mostly gluten-free for for a month (with a few accidents) and I find I'm not nearly a hungry as I was before. I used to get the shakes evry couple of hours if I didn't eat and it was hard to feel full. Now I actually forget to eat for 4 or so hours and I still feel fine.

I'm going with it! LOL I'm down about 6-8 lbs this month and without that bloating, I feel almost slim... almost next to slim... well, I look better. LOL

I think it can't be too unusal to lose your appetite... hope it's not anyways.

justlisa Apprentice

I should stop lying. I never had cheekbones.

Lmbo... LOVE this! Made me smile... :)

justlisa Apprentice

Btw, I don't have the same appetite, either. I attribute it, mostly, to the healthier, whole foods that comprise my diet.

I do want to ask, though...what's your state of mind? Emotions? Are you grappling with melancholy, depression, etc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heathenly Apprentice

Nope. Feel great. Just waiting for that increased energy that I had last time I went gluten-free.

peacefirst Rookie

I'm one week off gluten (again) after my brief gluten challenge, and I am just NOT hungry. I've been forcing myself to eat a couple of small meals each day because my stomach rumbles and I can tell my body is hungry, but the thought of food usually makes me feel slightly gross. I'm making delicious homemade mostly whole-foods meals, but nothing really tastes amazing, and after I eat I feel like I could have just as happily NOT eaten. Also, it's been a week, and the bloating is just now abating. Is this normal; my gi tract just trying to heal? Or does the loss of appetite stay?

I'm not complaining too much... after all, I have 15 pounds of gluten weight to lose, and a closet full of clothes that I miss wearing... (also miss having cheekbones and one chin)

I would just trust my body and maybe even juice fast for a bit. Healing takes lots of enegry and digesting food takes so much, that not eating actually helps, and juices(freshly made, not from the bottle)nourish you pretty well in terms of micronutrients.

justlisa Apprentice

Nope. Feel great. Just waiting for that increased energy that I had last time I went gluten-free.

That's good to hear! Then, perhaps just some time gluten-free will do the trick... :)

  • 9 months later...
order Newbie

I'm one week off gluten (again) after my brief gluten challenge, and I am just NOT hungry. I've been forcing myself to eat a couple of small meals each day because my stomach rumbles and I can tell my body is hungry, but the thought of food usually makes me feel slightly gross. I'm making delicious homemade mostly whole-foods meals, but nothing really tastes amazing, and after I eat I feel like I could have just as happily NOT eaten. Also, it's been a week, and the bloating is just now abating. Is this normal; my gi tract just trying to heal? Or does the loss of appetite stay?

I'm not complaining too much... after all, I have 15 pounds of gluten weight to lose, and a closet full of clothes that I miss wearing... (also miss having cheekbones and one chin)

 

I am not jungry at all either, and I have the exact same thing. I'm allergic to wheat, an 10 days ago, I removed it from my diet. Ever since,... I force myself to eat, but I really don't have an appetite. I guess this is pretty normal then. I have no idea if we'll ever be hungry again though! Only time will tell.

pricklypear1971 Community Regular

You'll get hungry.

Yes, it's normal to through stages like this when withdrawing a food your body doesn't like.

Equally normal to be ravenous.

eers03 Explorer

Sometimes when I know I need to down something but really don't have an appetite, I will throw a vanilla yogurt, a banana, some frozen pineapple, and frozen strawberries in the blender with a little milk for a smoothie.  The probiotic is helpful with staying regular, the calcium from the milk is helpful, and the fruit just tastes amazing.  

 

It took me awhile to get my appetite up.  A long time...  Finally did though...  Now, there are some varying theories regarding dairy products early on in your diagnosis.  I still used them.  Couldn't tell you if it helped or hindered but as long as I wasn't reacting adversely it was one more food group I could eat.  Additionally, my nutritionist at Mayo Clinic was fine with my consumption of dairy.  Have a smoothie!

 

Good luck.

DerpTyler Newbie

iv been gluten free for about 8 years and i found my appetite to increase significantly when i went gluten-free, weird

glutenfree7562 Newbie

I completely lost my appetite about 3 months before I was diagnosed. Now I've been gluten free for 2 months and it has yet to return. I'm 17 and this whole thing is making me loose a tone of weight and i dont need too. I used to eat all day everyday and now I force myself to eat, and I try to make myself eat a lot so I can gain some weight back. I'm just never hungry.

slickdaddy0077 Newbie

I am 10 days into a gluten free diet and I have noticed that I don't feel like munching constantly. 2 good healthy portions of a meal, 1 around 11am and the other around 5pm and i'm full. Have lost 75% of the bloated belly and 5 lbs. I'm not sure what this means but I'm not near as hungry as I was 10 days ago.  Good luck and let us know.

slickdaddy0077 Newbie

I too don't have much of an appetite and am less than 2 weeks into my gluten-free diet. When I do eat, I'm full with a lesser amount of food and for a longer duration. I eat at about 11:00am and then again at 6:00pm. No munches anymore either. Not sure if this will continue or balance out. I have about 5 lbs to lose so this should be a good thing?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.