Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Celiac Disease Always Inherited From Birth On?


Dugudugu

Recommended Posts

Dugudugu Rookie

As my IgA and B12 were very low, being extremely tired, and despite having a negative celiac blood results, I started a gluten free diet two months ago. My patience is being challenged as I haven't seen any improvements, in fact, I am more tired than ever. But that's not why I starting a new topic.

Let say I have celiac disease or a gluten intolerance, shouldn't I have this from baby on? I cannot remember my mother having issues with me keeping the food in, or being slow in growth.

It celiac disease or gluten intolerance something you can 'just' get over the years? I am 42 yrs. Just wondering...

Thank you for any reply.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeAustinite Contributor

From the limited knowledge I have, yes it can. It may "exist" in you from birth, but symptoms and/or damage can be triggered by something that happens in your life (stress, other medical problems, pregnancy, etc.)

rosetapper23 Explorer

Speaking only about celiac disease, you can have the gene....but it needs to be triggered to cause celiac. I actually did have it from birth...but that's a long story. Most people seem to develop celiac sometime in their lifetime, but, again, it needs to be triggered by a particular event.

GottaSki Mentor

Yes, for Celiac Disease you must have a celiac gene from birth, but the disease can be triggered at anytime for a variety of reasons.

I was diagnosed at 42 but had obvious symptoms from my early 20s along with some symptoms my entire life that weren't apparent until I was diagnosed and learned about celiac.

Dugudugu Rookie

Thank you.

And gluten intolerance? Is that also from birth?

GottaSki Mentor

As far as I have read, the jury is still out with regard to a genetic link in gluten intolerance -- someone else may have better intel with regard to the genetic link to intolerance.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,735
    • Most Online (within 30 mins)
      7,748

    Patricia KUBELKA
    Newest Member
    Patricia KUBELKA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.