Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Friends With Psoriasis


Razzle Dazzle Brazell

Recommended Posts

Razzle Dazzle Brazell Enthusiast

My head is itching and burning like I have a relaxer on it. It has become very sensitive and I have some sores. What is a good safe shampoo to use for this because I am about to go crazy as it has gotten worse everyday? Yesterday I swore I was gonna shave my once moist (before gluten challenge) and curly hair completely off and slather my head with ointment.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Wow, Razzle, I wish I could help you. I have psoriasis but it is only on my hands and feet. I use Suave shampoo which I have heard is gluten-free, but I don't know what else to tell you. Are you sure it's psoriasis and not DH?

My psoriasis has totally cleared up after going gluten-free, corn-free, and low sals. And it seems that now the corn doesn't bother it anymore either. But sals are still a big problem. Last flare-up I had was when I overdid the pistachios. Sals are cumulative, and as long as I go easy I'm OK. And of course I can't use asperin or other NSAIDs (ibuprofen like Motrin or Advil, or naproxen like Aleve.)

I'm not saying sals are your problem. We are all different. But it might be worth looking into. I know the last thing you need right now is to lose a whole and very large group of foods. But odds are it will only be temporary, and once you have cleared the sals from your system you will most likely be able to tolerate them in moderation.

The other thing that causes my psoriasis to flare is nightshades. Those are easier to give up because there aren't as many of them (although potatoes are a biggie.) Maybe try ditching them for a while first?

I hope it clears up for you soon. I hate to see you suffer like this. All I can say is, keep in mind that it takes time to figure it all out, but it WILL get better. ((((HUGS))))

Jestgar Rising Star

Have you tried just baking soda and water? Open Original Shared Link

bartfull Rising Star

I thought there was a "recipe" using baking soda. Just be sure you use a corn-free baking soda!

Razzle Dazzle Brazell Enthusiast

Wow, Razzle, I wish I could help you. I have psoriasis but it is only on my hands and feet. I use Suave shampoo which I have heard is gluten-free, but I don't know what else to tell you. Are you sure it's psoriasis and not DH?

My psoriasis has totally cleared up after going gluten-free, corn-free, and low sals. And it seems that now the corn doesn't bother it anymore either. But sals are still a big problem. Last flare-up I had was when I overdid the pistachios. Sals are cumulative, and as long as I go easy I'm OK. And of course I can't use asperin or other NSAIDs (ibuprofen like Motrin or Advil, or naproxen like Aleve.)

I'm not saying sals are your problem. We are all different. But it might be worth looking into. I know the last thing you need right now is to lose a whole and very large group of foods. But odds are it will only be temporary, and once you have cleared the sals from your system you will most likely be able to tolerate them in moderation.

The other thing that causes my psoriasis to flare is nightshades. Those are easier to give up because there aren't as many of them (although potatoes are a biggie.) Maybe try ditching them for a while first?

I hope it clears up for you soon. I hate to see you suffer like this. All I can say is, keep in mind that it takes time to figure it all out, but it WILL get better. ((((HUGS))))

I will keep sals in mind. I also had a rash on my face break out across my jaw. I think it is because I forgot and drank a ginger ale. It had erythritol in it as well as citric acid. I thought I already checked everything but I guess I forgot something. <_< I know dum. My scalp is super dry and flaky it is like the whole top layer is dried glue or something.

Thx for your input and concern bartfull it helps.

Razzle Dazzle Brazell Enthusiast

Have you tried just baking soda and water? Open Original Shared Link

I haven't. I am kind of scared to use anything unless I know it will be soothing. I can't imagine it burning worse. I seriously would shave my head then! :lol:

Roda Rising Star

I haven't. I am kind of scared to use anything unless I know it will be soothing. I can't imagine it burning worse. I seriously would shave my head then! :lol:

I get a terrible itch, dry flaky scalp and oozing sores on my head. I tried everthing to no avail. In the past I would have problems with styling products and would avoid said ones. So I thought maybe it was my shampoo and conditioner. So one day I decided to try the baking soda/water and apple cider vinegar/water on my hair.

To my suprise it did not burn and was rather soothing to me. Just don't scrub to vigorously and irritate your scalp. Gentle massaging is fine. Rinse out. If you want soft tangle free hair use the apple cider vinegar/water for a conditioner and then rinse out. I never washed my hair every day before, and I was able to go about 2-3 days before washing with this method.

I have used it for awhile now and I managed to heal up the sores on my head. I got lazy one day and didn't feel like mixing any up and used baby shampoo instead. Big mistake! Within 24 hrs my head was itching like mad and I had started to develop sores. So back to the "no poo" for me.

When I fist started I had hair down to the middle of my back and needed to use the vinegar solution. I cut my hair to just below my chin and have found with it shorter I don't need to use it as often. If I use it too much my head gets to greasy and I'll get sores from that too. You just have to play around with it for awhile to get the right balance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Razzle Dazzle Brazell Enthusiast

I get a terrible itch, dry flaky scalp and oozing sores on my head. I tried everthing to no avail. In the past I would have problems with styling products and would avoid said ones. So I thought maybe it was my shampoo and conditioner. So one day I decided to try the baking soda/water and apple cider vinegar/water on my hair.

To my suprise it did not burn and was rather soothing to me. Just don't scrub to vigorously and irritate your scalp. Gentle massaging is fine. Rinse out. If you want soft tangle free hair use the apple cider vinegar/water for a conditioner and then rinse out. I never washed my hair every day before, and I was able to go about 2-3 days before washing with this method.

I have used it for awhile now and I managed to heal up the sores on my head. I got lazy one day and didn't feel like mixing any up and used baby shampoo instead. Big mistake! Within 24 hrs my head was itching like mad and I had started to develop sores. So back to the "no poo" for me.

When I fist started I had hair down to the middle of my back and needed to use the vinegar solution. I cut my hair to just below my chin and have found with it shorter I don't need to use it as often. If I use it too much my head gets to greasy and I'll get sores from that too. You just have to play around with it for awhile to get the right balance.

Lol thanks Roda! I will try that. I am going to the doctor today so we will see if we can find out definitively what it is. Afterwards I will give my head a good rub with baking soda then apple cider vinegar. My hair is short and tightly curly so but I know baking soda will frizz up and come out probably pretty easily. The last time I tried to wash my hair with my old product it came out in clumps! Ahhh! Is that typical?

Roda Rising Star

Lol thanks Roda! I will try that. I am going to the doctor today so we will see if we can find out definitively what it is. Afterwards I will give my head a good rub with baking soda then apple cider vinegar. My hair is short and tightly curly so but I know baking soda will frizz up and come out probably pretty easily. The last time I tried to wash my hair with my old product it came out in clumps! Ahhh! Is that typical?

My hair is naturally wavy and my hair has never been frizzy at all. If anything I find it great for wavy/curly hair.

Razzle Dazzle Brazell Enthusiast

My hair is naturally wavy and my hair has never been frizzy at all. If anything I find it great for wavy/curly hair.

K thx :-)

Razzle Dazzle Brazell Enthusiast

UPDATE: I have been using the baking soda and my scalp feels much better. Now i just need to find something that wont make me hair too greasy but will moisturize my scalp.

Thx everyone for your suggestions.

Jestgar Rising Star

Try going longer between washings. Most people find that their hair doesn't get as nasty when they stop using chemical conditioners.

Razzle Dazzle Brazell Enthusiast

Try going longer between washings. Most people find that their hair doesn't get as nasty when they stop using chemical conditioners.

Yeah you are right. I dont have a choice but to avoid washing my hair too much.

squirmingitch Veteran

I've been Googling baking soda b/c of the comment bartful made saying use corn free baking soda. I had no idea baking soda had corn in it. Every way I have Googled it I only come up with baking powder not baking soda & in fact they are saying to make baking powder use baking soda & something else.

Can someone please verify if baking soda does or does not have corn in it.

bartfull Rising Star

I'M SORRY! My mistake. You are right, it is baking POWDER that has corn, not baking soda. (I have always gotten those two mixed up. Have I told you about the biscuits I made using soda instead of powder? One bite and you knew I had made a mistake! Holy cow, they were so bad that even after spitting it out and rinsing your mouth and brushing your teeth, the taste stayed with you.)

Once again, my apologies.

jerseyangel Proficient

Razzle, glad the baking soda is working for you. I was thinking that if every once in a while you wanted to use a soap, I would give you the link to the shampoo bar that I used when going through a period of being seemingly chemical-sensitive. I didn't have rashes, but things like headaches and dizziness. Anyway, these are organic, and have very few ingredients. The Olive Oil and Babassu does not contain coconut, which is in many shampoos both natural and regular and is an irritant for me.

Open Original Shared Link

Another mild option would be plain castile soap. I use this everyday in the shower as most other soaps irritate and dry my skin. It can be used on hair as well.

Open Original Shared Link

squirmingitch Veteran

I'M SORRY! My mistake. You are right, it is baking POWDER that has corn, not baking soda. (I have always gotten those two mixed up. Have I told you about the biscuits I made using soda instead of powder? One bite and you knew I had made a mistake! Holy cow, they were so bad that even after spitting it out and rinsing your mouth and brushing your teeth, the taste stayed with you.)

Once again, my apologies.

LOL! Oh that's okay bartful! Don't think another thought about it. Seriously! I'm just glad to know it doesn't have corn in it. And I can see how you could say one when thinking of another --- I've done the same kind of thing myself. AND I'm laughing.laugh.giflaugh.giflaugh.gif So no harm, no foul.

Those must have been some wretched biscuits. My mom once got flustered by something while making some muffins or something with cinnamon in them & she put cayenne pepper instead. laugh.giflaugh.giflaugh.gif My dad was first to take a bite. Guess what? He never even noticed!!!!!!! He would scarf anything! Mom never told him about it. He ate all the rest of them w/o noticing or if he did he didn't say a word.laugh.gif

bartfull Rising Star

Mom used to tell a story about HER Mom when she first got married. She was making a cake for my grandfather's lunches and discovered she was out of vanilla. She substituted with some type of laxative that had a sweet taste, thinking it was such a small amount, and cooking would probably kill the laxative properties anyway.

My poor grandfather came home early that day and made a mad dash for the outhouse. He tripped over the fence he tried to jump and, well, cleanup wasn't easy... :lol:

squirmingitch Veteran

laugh.giflaugh.giflaugh.gif bartful!

I'm glad I read this thread. Not only did I get some laughs but I had been wondering the other day if I could wash my hair with baking soda & how well it would work. What a timely thread! I am having to be low sals & I know my shampoo --- all shampoos are high sals & the dh in my scalp is killing me. So I thought I would like to try something low sal to clean my hair. The only low sal shampoo I could find, even online, was $14 a bottle & not that big a bottle either. OUCH!

So I'm going to try this baking soda shampoo.

Razzle Dazzle Brazell Enthusiast

I found a baking powder that is made with potato starch commercially available at my local all organic grocer. I will hafta post the brand name once I get home.

Jestgar Rising Star

I found a baking powder that is made with potato starch commercially available at my local all organic grocer. I will hafta post the brand name once I get home.

You can always just make your own: Open Original Shared Link

Roda Rising Star

You can always just make your own: Open Original Shared Link

I was gonna suggest the same thing. I've had to in a pinch when I've run out.

Razzle Dazzle Brazell Enthusiast

Razzle, glad the baking soda is working for you. I was thinking that if every once in a while you wanted to use a soap, I would give you the link to the shampoo bar that I used when going through a period of being seemingly chemical-sensitive. I didn't have rashes, but things like headaches and dizziness. Anyway, these are organic, and have very few ingredients. The Olive Oil and Babassu does not contain coconut, which is in many shampoos both natural and regular and is an irritant for me.

Open Original Shared Link

Another mild option would be plain castile soap. I use this everyday in the shower as most other soaps irritate and dry my skin. It can be used on hair as well.

Open Original Shared Link

I think olive is high sals and idk if that would be a problem for me right now. I am attempting to lower sals in my diet and it does seem to be helping. I will keep that in mind.

Mom used to tell a story about HER Mom when she first got married. She was making a cake for my grandfather's lunches and discovered she was out of vanilla. She substituted with some type of laxative that had a sweet taste, thinking it was such a small amount, and cooking would probably kill the laxative properties anyway.

My poor grandfather came home early that day and made a mad dash for the outhouse. He tripped over the fence he tried to jump and, well, cleanup wasn't easy... :lol:

Hahaha! Wow that is absolutely gut-bustingly funny.

You can always just make your own: Open Original Shared Link

I actually had planned to but found that one already made so it made me happy.

The baking powder I bought was made by Main pure foods and is called featherweight baking powder.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.