Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What This Is, But Trying To Figure It Out...


josh052980

Recommended Posts

josh052980 Enthusiast

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Ok, the really crappy part here is that it seems to happen only after eating at Five Guys. It's not a glutening, so I'm not sure what is going on.

If I eat at Five Guys (and I've been known to be a real ass there. The Five Guys in my neighborhood seems to be the worst of them. They have to be CONSTANTLY reminded about CC, to the point that I had them remake a burger and change their gloves. I know I'm not getting glutened for that reason, and this is just different symptoms than my glutening symptoms.

About 5 hours after I eat the burger, I get jittery. My joint begin to ache (when I'm glutened it's my entire body that aches) I'll get a bit of a headache, some heart palpitations and the most noticable of all, SWEATING. Last night for example. I had Five Guys for lunch, dealt with joint aches from about 7pm on, then I went to sleep. I was jolted awake for no reason around 2am, and the sheets had several sweat spots in them, where they were just soaked, but my body was dry. My heart wasn't racing, but it was pounding.

My first thought with all of this is MSG, but I'm not sure. I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

Are you ok with peanuts/legumes? I know the ones I've been to fry the potatoes in peanut oil.

josh052980 Enthusiast

I kept the burger pretty plain (ketchup, onions, green peppers and mayo, didn't have any fries). Anyone have any ideas?

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

jerseyangel Proficient

I am fine with peanuts/legumes, and it wouldn't matter anyways, I didn't have any fries.

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

josh052980 Enthusiast

Whoops, my mistake. Can't think of anything else, I'm sure you are normally ok with the things you had on the burger or you wouldn't have ordered it that way. Sometimes I get reactions that I just can't pin to any one thing. It's frustrating, I know. Hopefully someone else will chime in with other ideas. :)

I'm still thinking it's MSG. I've heard they lace the burgers with it too, but I've never been able to find a way to substantiate that claim.

kareng Grand Master

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

josh052980 Enthusiast

Just a thought but, if everytime you eat there, you feel bad.....don't eat there? :)

I may just do that. I can't seem to narrow down the culprit. It's not every time I eat there though, that's the kicker. I guess it's going to have to be a once in a while thing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Salax Contributor

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

josh052980 Enthusiast

My first thought was a possibility of MSG as well. I wonder if you could get them to put no seasoning on it if it would help? Or even call the corporate office and ask if they use MSG? Or like someone else said, don't eat there LOL. B)

I HATE the possibility of not eating there; there's not many places near me that are safe to go out and eat, so it's yet another limitation. But waking up in a sweat kinda sucks too...

Salax Contributor

Understandable. So maybe see if they put seasoning on it while it's cooking and ask them not too and see what happens? Hopefully that will solve it. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.