Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yes, Things Do Get Better!


FruitEnthusiast

Recommended Posts

FruitEnthusiast Enthusiast

I've been agonizing over the time it's taking to heal, as I've mentioned in previous posts. Then I made an encouraging realization. Recovering isn't taking as long as I thought. I keep thinking I've been gluten free for nearly five months, which is technically true, but I've been developing sensitivities to other foods for the last three months, and was "glutened" a few times each of those months, not by actual gluten, but by other the other foods I've developed the exact same symptoms to: rice, eggs, and nightshades. Each time I was getting better before trying another new food. So, there is a direct link to my current symptoms, and still feeling bad makes sense. I've only been "reaction free" since eliminating the last problem food. That was only three weeks ago! In reality I've only been "gluten" free for three weeks! No wonder I've been so sick. There aren't any foods left to "test", so that's great. I still have to eat the extremely limited diet I'm eating now, for a long time, but I won't be eating anything else new, so I really can start to recover, finally. I already am.

Thank goodness I kept track of each dietary change on my calendar, otherwise I wouldn't be able to put these pieces together. I think the brain fog, depression, and anxiety (all part of the entire group of symptoms I experience) has kept me from seeing this pattern sooner. I can tell my mind is clearing because I'm starting to think about things I haven't thought about in a long time, like my future, instead of just trying to get through each day. I'm feeling a lot more positive, listening to music, working on my artwork, and exercising again.

Things do get better. Even when I have any other setbacks, because, of course, this road will never be entirely free of "bumps", I can look back at this post and others like it, and remind myself to be patient, and that the recovery will come.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Sara, that is great to hear. We have all been or are going through something that will, in the long run, make us stronger people. We have learned to cherish the good days, and we have learned patience to get us through the bad ones.

But most of all, I think this disease teaches us about hope. And hope is one of the most beautiful words in the English language.

Keep up the good work, and here's hoping your setbacks are mild and infrequent! :)

cahill Collaborator

I have been gluten free since 2009 and soy free since 2010 and I still keep a food journal.

I can not stress how helpful it has been.I would suggest that anyone having food issues keeps a food journal.

Glad things are looking up :)

FruitEnthusiast Enthusiast

It's such a rollercoaster right now. A good day then a bad one and so on... I still don't know what each day will be like. Didn't feel well again today, but seem to be bouncing back tonight. Tomorrow who knows? It feels good to be feeling more like myself again though. It means so much to me to be able to check in on this site, and see what's happening with all the rest of you who are having similar experiences. I felt so alone with this stuff before, and since finding this forum, I feel like I'm part of a community. It's really nice. I hope others who are suffering will find it too.

cahill Collaborator

It's such a rollercoaster right now. A good day then a bad one and so on... I still don't know what each day will be like. Didn't feel well again today, but seem to be bouncing back tonight. Tomorrow who knows? It feels good to be feeling more like myself again though. It means so much to me to be able to check in on this site, and see what's happening with all the rest of you who are having similar experiences. I felt so alone with this stuff before, and since finding this forum, I feel like I'm part of a community. It's really nice. I hope others who are suffering will find it too.

It is a rollercoaster right now but just hang in the there. At some point you will realize that you are having more good days than bad. Then you will realize it has been awhile since you had a bad day.

It DOES get better :)

1desperateladysaved Proficient

"But most of all, I think this disease teaches us about hope. And hope is one of the most beautiful words in the English language."

Five years back when I was terribly ill I saw a Home for sale sigh. I thought it said "Hope for Sale." Oh, I could use some hope I thought. I had no hope in this world, but God was my hope. He is bringing me through it.

Thanks for this thread it is hard not to lose sight of the light ahead sometimes.

FruitEnthusiast Enthusiast

It is a rollercoaster right now but just hang in the there. At some point you will realize that you are having more good days than bad. Then you will realize it has been awhile since you had a bad day.

It DOES get better :)

I really like the way you put that. Thanks. Pretty sick again today. I believe in what you have said here though. I look forward to getting better and better. I know it will happen. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Good for you Sara. Simple food and a simple diet can make a big difference in healing speed IMHO. But it sitll takes time for things to settle down in your gut, and come to a new "normal". The usual things like avoiding sugar, taking probiotics, and digestive enzymes are helpful too.

I am trying to get started back up on doing my art right now. I got over a coconutting, a stomach ulcer, and a slight CC incident and feel ok again. All that only took a couple weeks to go by. Things do get better, it may take awhile, but they do get better given time and attention to diet. I hope you continue to improve! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748

    Dogdad21
    Newest Member
    Dogdad21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.